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tubes
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Miss you so much Susie. Will always <3 you!
« on: September 28, 2006, 03:37:36 PM »
Hi Everyone.

My name is Robert and I'm 26.  I've been on dialysis for 10 yrs. now.  I was born with polycystic kidneys, well just the left one.  Half of the left kidney was removed when I was 2 weeks old.  The docs. told my parents I would live a normal life.  (yeah right)   When I was 14, we found out my right kidney was failing.  At the age of 16 I finally started dialysis.  I started on hemo.  I was on hemo for 4 months then stared on peritoneal.  I was on peritoneal for 9 yrs.  Kept the same catheter too.  After the 9 yrs. the peritoneal quit working.  So I'm on hemo again and have been doing that this past yr.

Let me rewind a bit.....The first 4 yrs. I was on dialysis I rebelled.  I wouldn't go to my appointments, skipped dialysis and wouldn't take my meds.  Started drinking, doing drugs and skipping school.  When I was 20...sigh...I found out I had osteoporosis.  I was very sick, could hardly get around.  I lost my job and friends.  So my grandma came to the rescue and moved me out of Omaha and out to Ks.  She gave me a 2nd chance.  Doing much better, although I have lost a few inches. 

I'm going to be taking the Transplant classes next month.  Then I will be able to meet with the surgeon.  I have done this several times the past 4-5 yrs., but then I get scared and back off.  Hopefully this time I will go through with it.

I suppose that is all.  :thx; for reading and have a good day ! ! !
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"To be happy is the choice I wish to make in spite of the circumstances that are strewn in my path."

1996 - started incenter hemo
a few months later, started PD
2005 - started incenter hemo
AGAIN
  - on transplant list as of August 7, 2009.
2011/June - 15 years on "D"
Transplant - Tuesday October 18th 2011
Sluff
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« Reply #1 on: September 28, 2006, 05:21:10 PM »
Welcome Robert to IHD. I hope you go through with the transplant this time. Enjoy the website there are threads about transplants that might help you.  :welcomesign;
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goofynina
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He is the love of my life......
« Reply #2 on: September 28, 2006, 06:38:32 PM »
Hey Robert,  Glad you found us and joined our "family"  We all have something in common here, unfortuantely, it is dialysis,  but we are all still learning and sharing stories and experiences that we have lived while on dialysis, we all know what you are going through.  Some have been sick since an early age and they can help with any questions you may have, heck, any one of us can (hopefully)  Well, just wanted to welcome you and let you know we are looking forward to hearing more from you :)   
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Rerun
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Going through life tied to a chair!
« Reply #3 on: September 28, 2006, 06:45:17 PM »
Hi Robert.  I feel bad for kids having to deal with dialysis.  It is bad enough as an adult.  Welcome to the site.  It will keep your mind occupied for hours.  Chip in with your opinions, it proves for a good debate.
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Joe Paul
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« Reply #4 on: September 28, 2006, 07:19:21 PM »
Welcome Robert, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Zach
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"Still crazy after all these years."
« Reply #5 on: September 28, 2006, 09:12:21 PM »
Welcome Robert.  Glad you joined the community!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Oc
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« Reply #6 on: September 28, 2006, 10:41:39 PM »
Good to see you, Robert!  I look forward to hearing more from you.
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angieskidney
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« Reply #7 on: September 29, 2006, 12:39:15 AM »
Welcome Robert! I was on dialysis the first time when I was 16 and I did quite a bit of rebelling as well and my parents kicked me out of the house when I was 18 and I have been on my own since then. It has been hard and friends don't always understand. Been through a lot! I wish you the best! We are always here for you when you need to talk! I know I have found that here!


 :welcomesign;
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #8 on: September 29, 2006, 01:16:14 AM »
Adding my welcome to all the others.  We are glad to have you here.  Let us hear some more from you.  There is lots of read here and I am sure that with your experiences, you have a lot to offer as well.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
mallory
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« Reply #9 on: October 02, 2006, 10:04:22 AM »
Welcome, Robert, glad to have you here! :welcomesign;
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
Black
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« Reply #10 on: October 02, 2006, 10:47:17 AM »
:welcomesign;  Glad you're here, this a great group. 

Do you have ARPKD, or early onset ADPKD?  My husband and two of his adult children have ADPKD, and others here also have it.  Have you been checked for the other PKD disorders?  If not, that will be part of the transplant work up.

I hope you go for the transplant.  Children and young people shouldn't have to deal with dialysis.
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
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