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Author Topic: Regarding willieandwinnie  (Read 7207 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: June 16, 2009, 01:25:15 PM »
For those of you who have PM'd me about missing willieandwinnie  -- I just got a note from Kathy - they are ok, still dealing with some heath issues, and some family stuff too - but hope to be back posting again soon.

 :grouphug; Here's a BIG hug Kathy and Len.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #1 on: June 16, 2009, 01:27:25 PM »
 :grouphug; :cuddle; :grouphug; :cuddle; :grouphug;

More hugs for both of you.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paul.karen
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« Reply #2 on: June 16, 2009, 01:33:56 PM »
Hope you feel better soon and work out the isues your dealing with.
Miss ya   :grouphug;
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Romona
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« Reply #3 on: June 16, 2009, 01:35:46 PM »
 :grouphug;
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rose1999
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« Reply #4 on: June 16, 2009, 02:04:49 PM »
Hugs from me too  :grouphug; :grouphug;
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paris
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« Reply #5 on: June 16, 2009, 02:42:43 PM »
Thanks for letting us know.  In my fever stupor the other day, I started wondering about several members--and Kathy and Len were first in mind.   We'll be here when she can come back   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Darthvadar
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« Reply #6 on: June 16, 2009, 02:58:07 PM »
Looking forward to seeing you back 'home' soon!..

God bless...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
willieandwinnie
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« Reply #7 on: June 16, 2009, 03:11:42 PM »
 :cuddle; Thank all of you that actually missed me. I was changing Len's bandage when my daughter called this afternoon to tell me that okarol had called her. Bless her heart. Len is still not feeling well and I finally lost it  :boxing; I told our GP, Neph, transplant coordinator and transplant surgeon that they were going to find out what the hell was going on with my husband and we weren't leaving until they did. All the doctors decided to run a thyroid test to see if that is the problem. Len is not sleeping, is freezing cold all the time, losing weight and having terrible muscle aches. We are waiting for our favorite doctor to call us with the results which will probably be Thursday or Friday.  I hope this will give us some answers. Len had to have some growths removed that doctors were concerned about and I am changing bandages again.

Then there's me. All of you know that I have had a few bouts with vertigo and it is always in my left ear, well I woke up the other week with a pillowcase covered in blood. My kids decided for me that it was time to go see doctor only to find out that I have a ruptured eardrum, which by the way is very painful and now I can't hear worth a damn out of my ear. It has stopped bleeding but I am getting yucky dried blood out of it and it burns, if that makes sense. I told okarol "Golden years my ass".

There's also things going on with family, but I won't get into that here. It's just that everything gets throw at me at one time and I just lose it sometimes. Imagine that. I have some catching up to do I see. Thanks for your thoughts and I'll keep posting.  :cuddle;
« Last Edit: June 16, 2009, 03:14:19 PM by willieandwinnie » Logged
"I know there's nothing to it, but I want to know what it is there's nothing to"
Darthvadar
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« Reply #8 on: June 16, 2009, 03:19:35 PM »
Good to see you, Hon....

Sorry you're having such an awful time of it...

Thinking of, and praying for you both....

Love...

Darth...

P.S.... I love your pawed people... Very Cute!....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
lola
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I can fly!!!
« Reply #9 on: June 16, 2009, 03:38:49 PM »
W&W xoxoxoxoxo :grouphug; :grouphug; :grouphug; :grouphug;
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kitkatz
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« Reply #10 on: June 16, 2009, 06:00:35 PM »
 :grouphug; :grouphug; :grouphug; :grouphug;  All I can say and do for you.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #11 on: June 16, 2009, 07:35:11 PM »
At our house, when it rains, it pours.  It sounds like that's the way it is with you and Len, too. 

I've missed seeing you here, Kathy, and I'm glad you had the chance to update us.  Hang in there, girl.  Love to Len.
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MIbarra
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Stopping to smell the bluebonnets
« Reply #12 on: June 16, 2009, 08:25:24 PM »
Hang in there!  :cuddle;
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Cadaver transplant April 29, 2007
kellyt
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« Reply #13 on: June 16, 2009, 08:44:16 PM »
Oh willie!   :cuddle;   You need to go get some McDonald's for dinner, because "you deserve a break today".  We miss you!  I hope everything gets worked out soon for both you and Len.   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
thegrammalady
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« Reply #14 on: June 16, 2009, 08:44:52 PM »
big hugs for both of you
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Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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Chris
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WWW
« Reply #15 on: June 16, 2009, 08:51:27 PM »
Sorry to hear w&w
Hopefully the doctors find out hat is going on with Len and that you feel better. I have no idea if a ruputured eardrum can heal to where you have hearing back, but hope that happens.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #16 on: June 16, 2009, 09:19:37 PM »
Thinking of you both. :bestwishes;
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
kristina
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« Reply #17 on: June 17, 2009, 02:06:21 AM »
I hope things are being sorted out soon
and send you my kind regards, Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
kimcanada
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WWW
« Reply #18 on: June 17, 2009, 02:27:28 AM »
Hi WW  :waving; you are one tough person, I am sure Len is glad you are on his side  :cuddle;
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harley08
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« Reply #19 on: June 17, 2009, 06:43:33 AM »
Really hope all will be OK and everything soon gets back to as normal as can be for you both... Thoughts and prayers with you :grouphug;
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Romona
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« Reply #20 on: June 17, 2009, 08:59:44 AM »
I hopeyou get answers soon. This has been going on far too long.  :grouphug;
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peleroja
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I have 16 hats, all the same style!
« Reply #21 on: June 17, 2009, 11:50:52 AM »
Many hugs and good wishes for winnieandwillie.    :cuddle;
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MandaMe1986
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« Reply #22 on: June 17, 2009, 12:15:27 PM »
 :grouphug; :grouphug; :grouphug; :grouphug;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Slywalker
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« Reply #23 on: June 18, 2009, 09:35:56 AM »
 :grouphug;  :grouphug;
when it rains it can certainly pour

Take care   :grouphug;
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