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Author Topic: Rejection treatment  (Read 5341 times)
donnia
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me and my donor Joyce
« on: May 20, 2009, 10:41:12 PM »
Has anyone had any treatment for rejection?  I am in my transplant hospital.... we just did an 'open biopsy' which means they gave me a general, cut me open and cut a pinky nail  piece of kidney.  We should hear the results pretty soon. 

My tx surgeon said he thinks it might be a rejection episode.  If so, I come back to Lubbock and they will do a 3-5 day treatment of IV meds.

Has anyone had this treatment??  If so, could you offer information please.
 :flower;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
pelagia
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« Reply #1 on: May 20, 2009, 10:43:13 PM »
I hope Wenchie comes by soon, because I think she has had some treatment for rejection.  Donnia, I am thinking of you and holding you in my prayers.  I will keep thinking positive thoughts for Hope to recover.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
charee
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« Reply #2 on: May 20, 2009, 11:17:03 PM »
Hi Donnia, I had a rejection epsiode very early on , i had to have 3 days of IV prednisoine very high dosage at first and gradually decreased the dose  then had another biospy which showed things were ok. good luck thinking of you :cuddle;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #3 on: May 20, 2009, 11:32:09 PM »
Praying all goes well Donnia.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Wenchie58
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« Reply #4 on: May 20, 2009, 11:51:11 PM »
I'm here!!!  Thanks for the PM Pelagia!

Donnia..
   I have had three biopsies and three bouts of rejection and three rounds of treatments...all in the past 6 months...and I am here to tell about it...with my lil kidney (Kalvin) chugging along.
  First I had plasma pheresis...not a fun treatment, but not painful, to get my antibodies in check. 
  Round two: treatments of IVIG ( Intra Venous Immuno Globulin) sorry if that is spelled totally wrong, with a Rituxan chaser.  The IVIG was nothing, only time consuming.  The Rituxan can cause a bit of a reaction, but they pre treated me with benedryl and tylenol and I did fine.
 Third episode was treated with high dose prednisone and another Rituxan chaser.
  All of these treatments are time consuming, but none painful and none caused anything but maybe minor reactions (just the Rituxan).
  My creatnine levels run a bit high still, but have settled in around 2.5, but I have only ever been as low as 1.5 since transplant and I have been as high as 3.6.
  Feel free to PM me if you have any specific questions...I am here several times a day checking in.  Keep your chin up...I will keep you in my thoughts...a positive attitude goes a long way.  When you feel like it's time to give up...don't give in!  Best of luck!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
donnia
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me and my donor Joyce
« Reply #5 on: May 21, 2009, 12:32:33 AM »
Thanks for the help y'all!!!!  I love you guys and gals!!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
G-Ma
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« Reply #6 on: May 21, 2009, 07:05:38 AM »
 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
twirl
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« Reply #7 on: May 21, 2009, 07:20:22 AM »
 :waving;
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Laurie
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May 13, 2008
« Reply #8 on: May 21, 2009, 08:32:05 AM »
I was treated with 7 doses of Thymoglobulin a couple of weeks after my transplant. I had a reaction to the first dose but after that no problems. The hardest part was being in the hospital for seven days. I had no symptoms and felt fine. It was so boring.
Hang in there. :grouphug;

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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Romona
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« Reply #9 on: May 21, 2009, 09:16:55 AM »
 :grouphug;
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kimcanada
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WWW
« Reply #10 on: May 21, 2009, 03:40:27 PM »
Thinking of you   :cuddle;
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kellyt
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« Reply #11 on: May 21, 2009, 03:51:30 PM »
Me too!     :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
chris73
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its me ...Chris

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« Reply #12 on: May 21, 2009, 05:19:05 PM »
donnia , sorry  you are going through this ,thought all of this was behind you by now. hope the the Drs can solve this issue quickly. I will keep you in my thoughts and prayers...God Bless!! Chris.  Keep "us" updated!!
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11/10/07 esrd
12/07/07 permcath placed
dialysis started 2 days later
transplant 4/15/08  from close friend and coworker  of 12 yrs. Thanks Jeff!!
MIbarra
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Stopping to smell the bluebonnets
« Reply #13 on: May 21, 2009, 05:58:21 PM »
I was treated with thymoglobulin right after the transplant as it took a bit to kick in. The first round made me shake uncontrollably so they ran it a little slower the next time and gave me some benadryl. Nothing bad... I think I had it about 4 times before I left the hospital. Not too sure.. things are a bit blurry for me during that time.
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Cadaver transplant April 29, 2007
donnia
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me and my donor Joyce
« Reply #14 on: May 23, 2009, 12:41:25 AM »
I will start treatment tomorrow.  I will let yall know how it goes.... thank God for my laptop, without it I would be bored to tears.
Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
MIbarra
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Stopping to smell the bluebonnets
« Reply #15 on: May 23, 2009, 07:23:09 AM »
I hope everything goes well and this works!  :cuddle;
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Cadaver transplant April 29, 2007
donnia
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me and my donor Joyce
« Reply #16 on: May 23, 2009, 04:03:16 PM »
Thanks for all the support   :2thumbsup;
Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
pelagia
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« Reply #17 on: May 25, 2009, 11:41:13 AM »
I am thinking of you!  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
donnia
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me and my donor Joyce
« Reply #18 on: May 25, 2009, 09:03:25 PM »
3 treatments down, so far, so good :)

Praying my creatinine goes down again tomorrow.
Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
charee
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« Reply #19 on: May 26, 2009, 12:32:26 AM »
Thinking of you Donnia :cuddle;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #20 on: June 12, 2009, 03:59:30 AM »
catching up on all posts, does anyone know how donnia went ?

hope all went great, and thinking of ya girlie !!!
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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