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Author Topic: new member  (Read 3707 times)
susiesue
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« on: May 28, 2009, 02:53:34 PM »
 :flower;
Hi everyone not sure i'm doing this right - am I hi
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #1 on: May 28, 2009, 03:01:25 PM »
Hi Susie, welcome aboard.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Rerun
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Going through life tied to a chair!
« Reply #2 on: May 28, 2009, 03:03:15 PM »
You are in the right place now just tell us about you.  Are you on dialysis or going to start or know someone who is?  Where do you live etc....

                                       :welcomesign;
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G-Ma
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« Reply #3 on: May 28, 2009, 03:25:05 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
susiesue
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« Reply #4 on: May 28, 2009, 03:25:18 PM »
hi everyone is this where I introduce myself- did this but on't know where it went??? :flower;


Edited: Topic merged into Introduce Yourself - okarol/admin
« Last Edit: May 28, 2009, 07:36:42 PM by okarol » Logged
susiesue
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« Reply #5 on: May 28, 2009, 03:43:32 PM »
Hi nice to join you all!!Been reading this site for about 3 months plucking to courage to admit to self i really am 'one of them'. Became ill very suddenly in May 2007- never been ill, no hospital visits except for the births of my 2 kids(now 15 and 15), Don't drink at all or smoke, always very healthy then started with headaches- visted doc, he said blood pressure a little high but nothing to worry about, - gave me migrane tablets . over the next 5 months got worse headaches andhe gae me repeat prescriptions for migrane until I spent most of the weekend on the bathroom floor vomiting.Saw Dr. monday at 4.30 by 9.00 they had my blood and urine back, sent an ambulance out to admit me and by 4pm the next day I was on a life support machine. Blood pressure 250+/130+, after 4 dys they told me my kidneys had failed and I would need a transplant!!!! WHOA!!!!
I wnt through the next year in a blur of denial, almost trance like and still fely reasonably well- still had mt energy reserves    but the second year was B******S. Problems with calcuim and phosphate, Was on CPAD but didn't work very well and then I got peritonitis and had yo go on H.D. Then problems with Pottassium where my muscles became paralysed in legs and neck- very scary!! It lasted 3 weeks and disappeared as suddenly as it came, Then had my parathyroidectomy and was really ill afterwards, think it was just a cumilation of 4 general anaesthetice in under a year and my body said WHOA -too much!!!
I still work, i'm an addictions therapist and work in a treatment centre for heroin ,crack,and all substance addictions plus eating disorders and self-harmers.Can be hard when they think I'm one of them with aa the 'track' marks up my arm!!!
Nice to join you all I can talk for England so will leave it there for now!! :cheer:
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willieandwinnie
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« Reply #6 on: May 28, 2009, 03:47:45 PM »
 :welcomesign; susiesue. We are happy that you found the courage to join us. I'm sure you have been reading some of the older threads because they are loaded with information. Sick around, we are all here for support and information when you need it.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Wenchie58
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Always carrying the big silly grin!
« Reply #7 on: May 28, 2009, 03:49:48 PM »
 :welcomesign;  Susie!  Glad you're here!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
MandaMe1986
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« Reply #8 on: May 28, 2009, 04:01:57 PM »
Welcome!  :waving;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
monrein
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Might as well smile
« Reply #9 on: May 28, 2009, 04:35:49 PM »
Although this is not a club that anyone would want to join willingly, if a person happens to be stuck with ESRD then this is a very good group to hang out with.  Sounds like you've had your share of the rollercoaster ride that is kidney disease and I look forward to getting to know you through this site.  :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

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« Reply #10 on: May 28, 2009, 04:48:22 PM »
Hi, Susie. I'm glad you found us!

And a big  :welcomesign; to you!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Romona
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« Reply #11 on: May 28, 2009, 05:04:02 PM »
 :welcomesign;
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Joe Paul
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« Reply #12 on: May 28, 2009, 10:14:45 PM »
Welcome Susie, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Yvonne
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Yvonne
« Reply #13 on: May 28, 2009, 11:09:04 PM »
 :ukflag; :welcomesign; Hi another UK great. You will just love this site it's helped me so much as a carer to my husband all your questions can be answered here, good luck Yvonne
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
David13
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A meow massages the heart.
« Reply #14 on: May 29, 2009, 06:10:51 AM »
Welcome!    :welcomesign;

This is a great place to find answers and support.

Look around!  I hope to see you posting often!
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #15 on: May 29, 2009, 05:37:51 PM »
Welcome to our community, Susie.  And a special welcome from one born under the Union Jack :ukflag; (in Barbados) and now living under the Union Jack (British Virgin Islands)!!
I am so glad you finally decided to join us.  You see, this is much more than just a website - it is a genuine family  :grouphug;  You will soon find that out.  Feel free to rant, rage, rave or vent as needed!
Keep reading and keep posting.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
paris
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« Reply #16 on: May 29, 2009, 06:24:05 PM »
Susie, I am so glad you found us and have become part of the family.  Any journey is easier when you share it with others. I hope you find lots of support here.  We do really care about each other.  We cry, laugh, and learn together.  I look forward to more of your posts.  Welcome to IHD   :2thumbsup;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kristina
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« Reply #17 on: June 02, 2009, 04:51:58 AM »
Dear Susie,
I am so sorry for the ordeal
you went through.
Migraines indeed!
I do hope,
your BP is now being
professionally looked after
and your PCT gave you a chance
to change the GP-doctor?
All the best and good luck.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
cherpep
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« Reply #18 on: June 02, 2009, 08:34:45 AM »
Welcome, Susie!!  You've been through a lot.  I'm glad you decided to post, there are a lot of people on here who share similar stories.  How are you feeling these days?
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Leon
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Daughter (Shawna), Me, Wife (Juanita) 2003
« Reply #19 on: June 02, 2009, 09:00:43 AM »
Ms Susie,

Welcome.  I have only been here a short time but have found loads of information and support.  I am blessed that I am just battling not to have to do dialysis.  I had one bout with kidney failure and did not like it.  Real surprise huh.  Well, hang in there.  We'll pray that you begin improving right away.

Be blessed,
Leon
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Leon
Tinah1968
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ME
« Reply #20 on: June 02, 2009, 11:03:59 AM »
 :cheer: :welcomesign;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
serpico
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« Reply #21 on: June 03, 2009, 06:38:39 PM »
  Good luck and welcome :welcomesign;
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