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Author Topic: Newbie from the OC  (Read 4335 times)
YLGuy
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« on: May 31, 2009, 08:48:16 AM »
Hello,
My name is Marc I am 46 and I am a single dad of 3 (17, 15 & 11).    I LOVE being a dad!  I live in Orange County in southern California.  On March 23, 2009 I thought I had pneumonia so I called my doctor and he suggested I just go to the ER for a chest X-Ray.  I was wrong.  I found out that I had congestive heart failure.  They did the labs and found that my creatinine was 8.0.  They then did an ultrasound on my kidneys and informed me that I was in stage 5 renal failure.  I had no idea!   I was stuck in the hospital for 17 days.  They had to do the catheter and fistula operations both twice.  I currently go dialysis 3/week for 3:15.  Next week they are going to try and use the fistula that was done on 4/1/09.  I am looking forward to having the catheter removed from my chest.   
I am very new to all this and am trying to learn as much as possible.  The sudden transition to my new life has been difficult. I stumbled across this website and began to read your posts.  I believe I owe a big thank you to Epoman for starting this website along with the moderators. THANK YOU!   :clap;
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monrein
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Might as well smile
« Reply #1 on: May 31, 2009, 08:54:06 AM »
 :welcomesign;  I feel sure that you will gain much from this site, we all do, and I look forward to your contributions to our collective experience with ESRD.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
dwcrawford
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Getting the heck out of town.
« Reply #2 on: May 31, 2009, 08:57:41 AM »
Marc, you must be in total shock.  I started dialysis 4 weeks ago first in the hospital after the Catha and fistala were put in.  I'm relative new too so I have no words of wisdom for you but hoping we can ofter each other support along the way.  By the way, I was 22 years your senior when I found out... though I didn't experience any of your other problems.  Hang in and read what these people have to say (well, read it judicially).  There are lots of good positive and helpful people on here with loads of experience.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: May 31, 2009, 09:26:56 AM »
Welcome, Marc,

It must have been very difficult for you learning of your kidney condition as you did. My heart goes out to you and your family. We had lots, and lots of forewarning as PKD runs in my husband's family.

You'll find community, information, support, and humor here. Visit often. I look forward to getting to know you better.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
willieandwinnie
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« Reply #4 on: May 31, 2009, 10:00:12 AM »
 :welcomesign; Marc. Your cute. We are so happy that you stumbled on us. We are a great group for information and support and you'll find some laughs in here too. Hope to hear more from you and let us know how you do next week. Welcome to the family.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kellyt
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« Reply #5 on: May 31, 2009, 10:08:20 AM »
I agree!  What horrible way to find out you are in Stage 5 renal failure.  We all owe so much to Epoman, as well as the Moderators, for this site.  It's truly a life saving, as well as sanity saving, website.

Good luck with your fistula. I hope the transition is a smooth one.   I look forward to hearing more about you and your experiences with dialysis and dealing with kidney failure.     :welcomesign;    :waving;
« Last Edit: May 31, 2009, 10:48:23 AM by kellyt » Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
peleroja
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I have 16 hats, all the same style!
« Reply #6 on: May 31, 2009, 10:41:57 AM »
Hey, Marc, welcome aboard from a PD cycler person in Carson (right between Long Beach and Torrance).  This is a great place for info and to make new friends who usually know just what you're going through.
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Romona
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« Reply #7 on: May 31, 2009, 01:21:30 PM »
I had congestive heart failure too. I had the flu and it attacked my heart. I was transferred to UPMC in Pittsburgh and they straightened my heart out, but I found out my kidneys were bad. Welcome and best of Luck!  :waving;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #8 on: May 31, 2009, 02:08:19 PM »
Welcome to our community, Marc!  So glad that you found us.    Here is the place for information, support and even fun.  We are much more than a website, as I am sure you have seen.  We are a genuine family  :grouphug; caring and sharing.  Please take advantage of all this site has to offer, and please let us hear more from you.
How did your daughters cope with this new challenge?  What about your job?
[not being nosey - just being family!}



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
paris
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« Reply #9 on: May 31, 2009, 05:18:27 PM »
Welcome, Marc.  We are glad you joined us.  There is so much information here and even more support. We are a family and we truly care about each other.  This is a safe place to ask questions, vent and share.  We look forward to getting to know you better.  Welcome to IHD   :2thumbsup;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
serpico
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« Reply #10 on: May 31, 2009, 06:09:27 PM »
Marc, you found a great site! I have been a member for a short time and just reading the stories has helped me. Good Luck! :welcomesign;
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YLGuy
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« Reply #11 on: May 31, 2009, 06:58:40 PM »
Bajanne,
I don't think you are being nosy at all.  I do not mind answering any questions you may have  :secret; .  My daughter is the 15 year old.  It was really hard on the boys and her while I was in the hospital.  My mother flew out from Connecticut to care for the kids during that time.  (I do not have any family in the area. My ex-wife's company moved us out here 9 years ago.)  I USED to work at an animal hospital.  the vascular surgeon and the nephrologist told me I should stop working there.  My arms have many scars from scratches and bites from the pets I cared for.  I did not want to risk my fistula being damaged or the high risk of infection. 
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MandaMe1986
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« Reply #12 on: May 31, 2009, 07:04:03 PM »
Welcome happy to have ya.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Wenchie58
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Always carrying the big silly grin!
« Reply #13 on: May 31, 2009, 07:39:51 PM »
 :welcomesign;
Glad you joined us!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Joe Paul
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« Reply #14 on: May 31, 2009, 10:35:34 PM »
Welcome Marc, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Chris
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« Reply #15 on: May 31, 2009, 10:41:38 PM »
Nice chatting with you Marc on Sunday night.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jean
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« Reply #16 on: May 31, 2009, 11:27:16 PM »
Welcome Marc. Sorry you had to find out so late in the game, but it is a good thing it was found when it was. I am in Riverside, right up the street from you and also, am a Connecticut native. Good luck to you and post often. There are tons of info here.
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One day at a time, thats all I can do.
CRG59
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I am the infant and my donor is to the left!
« Reply #17 on: June 01, 2009, 12:06:25 PM »
YL guy,

I can relate to your thrown into dialysis, that happened to me also.  Yes it is a whole new world and a big change also.  I just want to encourage you.  You have a lot to live for and many depending upon you.  Just take one day at a time and you will do just fine!

Curt
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #18 on: June 01, 2009, 04:33:41 PM »
Welcome.  So pleased you found us.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Wallyz
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« Reply #19 on: June 01, 2009, 08:50:08 PM »
Welcome.  I had a similar shock.  I was working on a boat in Alaska, and I thought I had bronchitis that turned into pneumonia.  I was only in 11 days, but the rapid gear switching, the loss of income, worrying about kids.

Prayers, and keep in touch.

Look into getting home on dialysis soon.
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