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Wallyz
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« on: May 25, 2009, 05:59:09 PM »
The transplant coordinator said she would call at 5:00 with an update, either head in for the transplant,or go eat dinner.  I am hungry, anxious and irritated.

This is the fourth donor to get this far in the process.  They give me a phone number to call that ends up in voice mail.


I fracken hate this crap.


Vent over.  Thank you for your attention.
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willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: May 25, 2009, 06:01:06 PM »
I understand your frustration. Wish I could do something to help... :(

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
okarol
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« Reply #2 on: May 25, 2009, 06:04:12 PM »
I am sorry, it's just not right to have you wait without giving you a number where you can reach her. I don't blame you for being upset. And hungry too! I hope you hear something soon.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
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« Reply #3 on: May 25, 2009, 06:25:40 PM »
Wallyz this IS so frustrating.. my thoughts are with you and hoping THIS freakin one is the one for you!!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
MandaMe1986
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« Reply #4 on: May 25, 2009, 06:43:21 PM »
I am sorry I can't do anything to help it go any better. I will pull my hair out for  you give you a brake for a bit.  :stressed;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
monrein
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« Reply #5 on: May 25, 2009, 06:54:11 PM »
I hope that call came through...one way or the other, although I do have a preferred outcome of course.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!
« Reply #6 on: May 25, 2009, 06:54:57 PM »
I'm not going to eat either until you hear!

                                            :waiting;
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Wallyz
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« Reply #7 on: May 25, 2009, 08:04:43 PM »
Oh No! Rerun, eat something, quick!



Pancreas was significantly undersized.  I mass 128 kilos, so they gave it to a small person in Colorado.

Blech.  This roller coaster is old.
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Sluff
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« Reply #8 on: May 25, 2009, 08:22:05 PM »
Damn Wallyz I wished it had worked out.
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donnia
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me and my donor Joyce
« Reply #9 on: May 25, 2009, 08:38:24 PM »
UUUGGGHHH Wallyz!   :grouphug;   BTW....  UUUGGGHHHH sounded much better than what I said in real life :)
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
jbeany
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« Reply #10 on: May 25, 2009, 09:28:51 PM »
 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
RichardMEL
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« Reply #11 on: May 26, 2009, 04:19:09 AM »
mate I am swearing so loud the people in the building next door can hear!

I'm so sorry yet another hope is dashed....

I suppose though, you have a reason that makes some sort of reasonable sense.

You MUSt be so bloody close given all the calls you have had lately!!

My fingers are still crossed....
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
kimcanada
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« Reply #12 on: May 26, 2009, 09:11:20 AM »
what do all these "maybe's" do to your mind??

I wish there was a better way  :cuddle;
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okarol
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« Reply #13 on: May 26, 2009, 10:33:44 AM »
I am one of those people who hate when people say "It could be worse" but I do want mention that there are so many people who will never get a call - for years - if ever. So I am going to keep positive throughts that your opportunity is very close and all of this is a practice of patience.
I would still ask for a number where you can check in with the transplant coordinator.
It's cruel to give you a time deadline and then not follow up with you.
Best of luck to you!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willowtreewren
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My two beautifull granddaughters

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« Reply #14 on: May 26, 2009, 11:30:24 AM »
I wish this had been the time, Wallyz. My hopes were running high for you.  :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
rose1999
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« Reply #15 on: May 26, 2009, 11:49:46 AM »
I'm sorry your hopes were dashed, I hope it will be your turn very soon :grouphug;
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Wenchie58
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Always carrying the big silly grin!
« Reply #16 on: May 26, 2009, 12:35:24 PM »
Keep your chin up Bud.  The odds have GOT to be in your favor with all these calls, but the tension is well.....GRRRRRRRRRRRRRRR blankety blank bleep bleep!  Censored myself, I might mature yet.....but it's doubtful!

 :banghead;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Wallyz
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« Reply #17 on: May 26, 2009, 02:28:56 PM »
Thanks  for the support.  It helps to be able to vent here, and to know that there are swear words being shouted around the world in solidarity. 
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kellyt
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« Reply #18 on: May 26, 2009, 03:04:13 PM »
Swear word just shouted out on your behalf here in San Antonio, TX!    :stressed; 

 :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
kimcanada
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« Reply #19 on: May 26, 2009, 03:08:07 PM »
The F's are flyin in Nova Scotia Canada!!!
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paris
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« Reply #20 on: May 26, 2009, 04:29:15 PM »
Wallyz, I am sure the neighbors are wondering why this normally sweet spoken person is cursing up a storm right now!!  I cannot begin to comprehend how frustrated you are.  Now that I am done swearing, I will start praying that the next call is the REAL deal!!  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Romona
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« Reply #21 on: May 26, 2009, 06:31:31 PM »
 :grouphug;
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