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Author Topic: Never Thought I'd Be Here  (Read 2491 times)
Slats325
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« on: May 19, 2009, 06:57:35 AM »
Hi, All. My kidneys have been damaged by Diabetes, a heart attack and two bouts of pneumonia. Aren't I the lucky one? My kidney function was down to 22% when we decided to go with PD. I have a Baxter HomeChoice, but it dropped dead last night after three usages. I have been experiencing some cramping during the therapy, so I am going to the hospital for X-Rays, to make sure that the catheter hasn't wound itself around my colon. Great, Huh? I am in the process of filling out the paperwork in an attempt to get on the kidney transplant list at KU Med Center in Kansas.
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May 2009: Catheter surgery and start of at-home CCPD
May 2009: Cathter and stomach hernia surgery


"No retreat...never surrender."
cherpep
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« Reply #1 on: May 19, 2009, 07:40:35 AM »
Welcome slats!!!  Sorry to hear about all you are going through.  What a hassle!!!!  I hope everything gets worked out quickly for you.  Come back and let us know how everything goes - the good and the bad.  We're here for you.  You'll be amazed at how many people understand what you are going through.  WELCOME! 

 :welcomesign;
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willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: May 19, 2009, 07:44:49 AM »
Yes, Slats. It sounds like a tough stretch for you. BUT, you have found a family that really, really understands. We have our ups and downs. The good thing is that when the rest of the non-dialysis world doesn't get it, IHD is here. We DO get it.

Share often.  :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
David13
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A meow massages the heart.
« Reply #3 on: May 19, 2009, 07:46:42 AM »
Welcome, Slats!   :welcomesign;

This is a great site for both useful information and support as well as some fun.  I'm glad you found us!

I hope to see you posting often!  Let us know how it goes with the PD catheter situation.   
« Last Edit: May 19, 2009, 08:03:19 AM by David13 » Logged
“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
Slats325
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« Reply #4 on: May 19, 2009, 07:57:09 AM »
Thanks, cherpep. Much appareciated. Just heard from Baxter and another machine will be here this afternoon, so I will race home after work to meet it. To add insult to injury, they think something is wrong with my catheter. For whatever reason I cramp when I lie down and have the therapy. Baxter has adjusted settings on the machine and they will try again tonight. I could use a break; maybe Powerball?
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May 2009: Catheter surgery and start of at-home CCPD
May 2009: Cathter and stomach hernia surgery


"No retreat...never surrender."
Slats325
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« Reply #5 on: May 19, 2009, 08:00:37 AM »
Thanks to all of you for the warm greetings. It is very comforting to find a place where people know what you are talking about, going through and feeling. I sincerely appreciate your kind words and thoughts and hope that I will do right by all of you.
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May 2009: Catheter surgery and start of at-home CCPD
May 2009: Cathter and stomach hernia surgery


"No retreat...never surrender."
monrein
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Might as well smile
« Reply #6 on: May 19, 2009, 10:56:28 AM »
 :welcomesign;  Glad you found us and hope you will post often.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #7 on: May 19, 2009, 11:03:00 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #8 on: May 19, 2009, 11:57:47 AM »
Welcome to our community, Slats!  we are so glad that you found us and decided to join us.  I know you will not regret it.  This is the place for information, support, and even some fun.  This site has developed into a real family - caring and sharing  :grouphug;  Here you are free to rant, rave, vent, or rage.  We do UNDERSTAND!  So you just take advantage of all this site has to offer.  Read and read, and post and post.  (maybe you will get around to explaining your screen-name!)
Looking forward to hearing from you.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #9 on: May 19, 2009, 03:02:23 PM »
Hi Slats sorry you're having a bit of trouble.  I also had a few problems after starting with the cycler, and my tube twisted up and stopped working.  I had to have a small op to straighten it - but that wasn't too bad.  Re the cramping, it is worse at the beginning and does settle down.  It's like your insides get used to it or something.  Keep posting and I look forward to getting to know you.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Romona
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« Reply #10 on: May 19, 2009, 06:42:59 PM »
 :welcomesign;
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Slats325
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« Reply #11 on: May 19, 2009, 09:46:55 PM »
Found out via X-Rays today, that the pain is being caused by my catheter winding around a portion of my colon. Never a dull moment. Going back into surgery Friday morning. This will be the 8th surgery at this hospital in three years. By my count I have paid for the new Admissions area and the sealing and striping of the hospital's West parking lot. hey, I have to try and laugh at this or I will lose my sanity. I will keep plugging away.

 :boxing;
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May 2009: Catheter surgery and start of at-home CCPD
May 2009: Cathter and stomach hernia surgery


"No retreat...never surrender."
Joe Paul
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« Reply #12 on: May 19, 2009, 09:54:03 PM »
Welcome Slats, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
MandaMe1986
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« Reply #13 on: May 20, 2009, 02:53:56 PM »
Welcome Slats happy to have you  :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Wenchie58
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Always carrying the big silly grin!
« Reply #14 on: May 20, 2009, 03:31:22 PM »
Thats right...find something to laugh at in everything and life will go smoother. I've paid for new paint, wallpaper and carpet at my clinic!  I asked them when they are going to put up a plaque with my name on it....then I said...oh yeah, a couple more treratments to pay for the plaque!  :)

Keep smiling it beats the alternative!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
willieandwinnie
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« Reply #15 on: May 22, 2009, 03:20:00 PM »
 :welcomesign; Slats. You'll love it hear. We are some great people and we hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
TeenHatesDialysis
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« Reply #16 on: May 22, 2009, 09:54:48 PM »
 :welcomesign; Slats,

Hang in there. There are lots of informative members here on PD. Dialysis is definitely an adjustment so please post any concerns you may have. These members have been there and dealt with that and usually have better answers than the nurses and docs at our hospital.

I am glad that you joined the group. :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
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