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Author Topic: Successful Positive Cross Match Kidney Transplant at Mayo!  (Read 6268 times)
deahuff
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« on: March 25, 2009, 05:27:25 PM »
Hi All,
I am very new to site, tried to join on dialysis and just got it all cleared up. I just had a positive cross match kidney transplant at Mayo. This place is just great. I am four weeks out and the kidney is working like a champ.

I tried for 2.5 years of dialysis (last transplant 96, last 10years, removed at Mayo for causing infections) and my cross match numbers were over 500, finally my friend Trevor was tested at 430 and they said we could do it. I had a research drug Velcade before hand along with 2 others, we all just transplanted successfully. Injection once a week for four weeks(Dec. 2008). Then I flew in Feb.19(2009) for 5 days of Plasmapheresis, does not really hurt or anything. Then after plasma directly to IVIG, for 2 hours, also no side effects. Then IVIG during transplant and another new research drug Eculizmab during transplant. Things went so good, no Plasmapheresis after, only weekly eculizmab infusions for 1/2 hour with no side effects.My cross match numbers are still high, but because of the eculizmab they are not bothering the kidney at all.  I should be going home next week to Alaska, week 5. I feel great and creatinine is 1.2.

I had really high anti body counts in 400-500 range with everyone tested. Mayo is such a great place for positive kidney transplants, they really know what they are doing and the procedure is almost getting routine or least they made it seem like that.Currently I am 35 years old.
Dea
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ESRD March 96
Dialysis March to July
Transplant from Mom July 96
Transplant failed Sept 2006
Dialysis Sept 2006
New PosXmatch kidney transplant 02/24/2009 from Trevor, friend in Alaska
pelagia
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« Reply #1 on: March 25, 2009, 05:37:16 PM »
It's great to hear your good news.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #2 on: March 25, 2009, 05:40:28 PM »
How wonderful            :flower;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
deahuff
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« Reply #3 on: March 25, 2009, 05:46:34 PM »
Thanks, I just realized Jill is here also. I just posted to her thread and I hope she is doing better. Dr. Gloor is the best so I know she is in good hands.
Dea
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ESRD March 96
Dialysis March to July
Transplant from Mom July 96
Transplant failed Sept 2006
Dialysis Sept 2006
New PosXmatch kidney transplant 02/24/2009 from Trevor, friend in Alaska
Romona
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« Reply #4 on: March 25, 2009, 07:14:06 PM »
 :grouphug; I am so happy for you!
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kellyt
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« Reply #5 on: March 25, 2009, 07:30:29 PM »
Congratulations on your successful transplant!   :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Jill D.
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« Reply #6 on: March 26, 2009, 11:27:29 AM »
This is so wonderful...please keep us posted on how things are going once you get home Dea!
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
MandaMe1986
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« Reply #7 on: March 26, 2009, 11:34:39 AM »
YEY!!!! :bandance; :bandance; :bandance; :bandance; I am so happy for you!
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
deahuff
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« Reply #8 on: May 06, 2009, 05:24:32 PM »
Life is getting back to normal in Fairbanks, AK. I have felt sooo great though and no problems at all with the kidney even though are cross match numbers are sky high! They believe it is because of the new research drug eculizmab that is supposed to help prevent rejection when you have high antibodies after transplant. Seems to be working great so I am staying on it every other week for 1 year. Commuting from Alaska to Mayo is busy, but well worth it! I am currently catching up on everyone!
Dea
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ESRD March 96
Dialysis March to July
Transplant from Mom July 96
Transplant failed Sept 2006
Dialysis Sept 2006
New PosXmatch kidney transplant 02/24/2009 from Trevor, friend in Alaska
okarol
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« Reply #9 on: May 06, 2009, 05:28:30 PM »

I am so please you're doing well Dea! Best wishes to you and tell Trevor he ROCKS!  :cheer:  :cheer:  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #10 on: May 06, 2009, 07:46:52 PM »
Wishing you, Trevor and the kidneys all continued success. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

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« Reply #11 on: May 07, 2009, 09:49:12 AM »
Dea,
I just LOVE transplant stories and yours is a great one! Thanks for the inspiration.  :thx; :thx;

This is wonderful news and I, too, send good wishes that all will continue to go smoothly. :cheer: :cheer: :cheer:

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Jill D.
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« Reply #12 on: May 10, 2009, 07:31:01 PM »
Hi Dea - it's great to hear from you and that all is still going well! It is looking like I will be needing another transplant - I go back out to MAyo Clinic on May 17 to get my evaluation - so I am really interested in any and all info on your transplant. You posted that you will stay on the drug for one year - do they think that after that time you can stop taking it and your antibodies won't attack the new kidney?
Logged
Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
Beth36
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« Reply #13 on: May 11, 2009, 09:34:13 AM »
Congrautlations!! My mom was the first person to have that drug at Mayo last June. She got a kidney from my sister and is doing great!! She had IVIg and plasmapheresis but had a very bad reaction to the plasmapheresis, however, she's doing great. They go next month for her one year check-up and we are looking forward to good news. Her numbers have been stellar so far! We're very grateful to Mayo for all they have done. This was a great Mother's Day for us! I am so happy to hear that you are doing well! It's great to hear about others getting this drug and getting a transplant when they might not otherwise! Way to go!

Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
Sunny
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Sunny
« Reply #14 on: May 12, 2009, 12:25:17 PM »
This is wonderful news. It give hope to those of us with high PRA's.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
deahuff
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« Reply #15 on: May 18, 2009, 01:57:34 PM »
Hey Jill,
They are just hoping my antibodies are down by the 1 year mark. I think that is as long as the drug is allowed to be given. I think they would have to write a new protocol or something if I needed after that. You should at Mayo right now, I am thinking about you. Everything here is great!

Beth, That is great to here about your mom. Luckily so far I have not needed IVIG or plasma after the transplant. I did do it before hand. Good Luck with the 1 year check up!

Dea
Logged
ESRD March 96
Dialysis March to July
Transplant from Mom July 96
Transplant failed Sept 2006
Dialysis Sept 2006
New PosXmatch kidney transplant 02/24/2009 from Trevor, friend in Alaska
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