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Author Topic: Dangela421 is in the house..  (Read 3649 times)
dangela421
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« on: April 28, 2009, 11:03:15 PM »
Hi all,
My name is Angela and I am 37 years old, married with three daughters and live in MN.  I started dialysis last August. Well, technically this my second time on dialysis. The first time was 2 1/2 years of age as the result of HUS (hemolytic uremic syndrome). The kidneys came back and have been holding their own for the last 35 years. Fast forward to Spring 2008. I just started feeling sick in a.m., itching like mad, restless legs (OMG, someone shoot me). Tried to just ignore it all/ sleep it off. Yeah, I know. Finally, went to Doc because I just couldn't function. Doc advised it may be time to start dialysis. I already had a fistula from a hospitalization 2 years earlier. I started dialysis in center the next week and ran 3X a week/ 3 hours from August to March. In March I began training w/ Nx stage and am now dialyzing at home 5X a week/ approx. 2 1/4 hours. Did I mention that I feel like a new frickin person. Duh, right? I haven't felt this good in three years. I know this site is called "I Hate Dialysis" but let me just say how thankful I am for dialysis. I have like a million things I want to do with my life. Yes,  I'm on the "list". Got a call a month ago w/ a zero mismatch. Biopsy came back bad. Oh well. Better luck next time . Hope to make some new friends here.
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #1 on: April 28, 2009, 11:26:39 PM »
This is such a fantastic site, cos if you're ever feeling a bit sorry for yourself (which I'm sure we all do some days) you just need to come here and read other people's storys!  Wow.  I am so impressed and moved by all you out there - not just the patents, but the partners and families who are no positive and still willing to have a laugh.
I think we're all maaaaarrrrrvelous!!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Joe Paul
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« Reply #2 on: April 28, 2009, 11:52:24 PM »
Welcome Angela, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Trikkechickk
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« Reply #3 on: April 29, 2009, 04:31:12 AM »
Hi Dangela, I'm also from MN (Minnetonka) and am doing Nxstage too.  I trained at the Mpls HH office.
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willieandwinnie
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« Reply #4 on: April 29, 2009, 04:44:04 AM »
 :welcomesign; Angela. So glad you found us and what a great introduction. Please hang around and check some of the older threads as there is tons of stuff in them. Please post often and hope you get a new kidney soon.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
lola
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I can fly!!!
« Reply #5 on: April 29, 2009, 09:29:00 AM »
 :welcomesign; I'm from MN also but it's my husband though on the machine, he also does home-hemo :grouphug;
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www.caringbridge.org/visit/ottomachado
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #6 on: April 29, 2009, 09:34:04 AM »
 :welcomesign; :welcomesign;

My husband is using the NxStage machine and he also feels 100% better.

I'm glod you found us!

 :clap;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paul.karen
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« Reply #7 on: April 29, 2009, 09:46:50 AM »
 :waving; Dangela.

Glad you found us.  Love the great attitude :thumbup;
Hope to see you post on many threads...
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
MandaMe1986
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« Reply #8 on: April 29, 2009, 10:00:06 AM »
Happy to have you with us  :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Zach
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"Still crazy after all these years."
« Reply #9 on: April 29, 2009, 11:11:46 AM »
Glad you joined our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
David13
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A meow massages the heart.
« Reply #10 on: April 29, 2009, 11:15:44 AM »
Welcome, Angela!   :welcomesign;

You will find a great deal of both information and support here.  I am glad you are doing so well with the home hemodialysis. 

I hope to see you posting often.
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
Ang
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« Reply #11 on: April 29, 2009, 04:22:08 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
kellyt
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« Reply #12 on: April 29, 2009, 04:31:09 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Wallyz
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« Reply #13 on: April 29, 2009, 04:36:27 PM »
Welcome Angela. I'm in my 30's with kids as well.  On NxStage, and on the list.  I''m in Seattle.  Welcome.
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Trikkechickk
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« Reply #14 on: April 30, 2009, 03:57:15 AM »
Well, if it ain't the crazy one I trained with!  That HH clinic has not been the same since we left.  All the other patients now in training seem so nice and polite!  I can say, I absolutely had some great laughs when training with you!  And we probably made the staff quite weary as we left for the day.

I still like my clinic visits, as I love disrupting the nurses day!  Of course, it is just a short drive for me to visit.

I thought the description might be you, but wasn't sure since your mug shot wasn't there when I first read your intro.

When are we going to have our chicks nite out - and we can dialiyze together.  I'm a 1 3/4 hour run -
how about you?

Cindy
'
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monrein
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Might as well smile
« Reply #15 on: April 30, 2009, 05:17:47 AM »
 :welcomesign; Dangela.  I look forward to hearing more from you and I love your approach to dialysis...a means to an end cuz you've got things to do.  :clap;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Wenchie58
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Always carrying the big silly grin!
« Reply #16 on: April 30, 2009, 09:39:33 AM »
 :welcomesign;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
G-Ma
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« Reply #17 on: April 30, 2009, 03:21:40 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Brightsky69
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« Reply #18 on: May 01, 2009, 05:50:49 AM »
Welcome!!  :flower;
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
Romona
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« Reply #19 on: May 08, 2009, 09:30:35 AM »
 :welcomesign;
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