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Author Topic: Howdy  (Read 2645 times)
makevalue
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« on: May 03, 2009, 07:51:39 PM »
 :waving;

I am 53, married with 2 kids under 7.  My disease progression:
- measles at 3 years supposedly damaged my kidneys.
- no lifestyle changes until I started taking ACE and allupurinal at 42.
- Very  active physically which probably kept the disease at bay.
- Stress, lack of exercise and perhaps the normal course of the disease caught up with me last year and I started dialysis in Feb.  I just started doing PD with a cycler.

I am considering a transplant but just learned I have a high immune response.  I am working with Cedar Sinai in LA and they have protocols for this.  Not really sure I want to go that way yet.

I've been active with RSN and have friends who are CKD patients.
I am planning a blog to consolidate information for new patients.  "ESRD for Dummies" but obviously not that title.  I think of myself as smart but getting the answers I need has been really difficult.  It shouldn't be so hard to get info and make decisions when a person is under the stress of a severe medical issue. As I saw in someone's tagline, dialysis is not for sissies. Your thoughts are welcome.

Blessings all.
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kellyt
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« Reply #1 on: May 03, 2009, 07:55:02 PM »
Welcome!  You'll find answers here - no problem.  Your blog sounds like it will be fun!  Good for you.
Enjoy this site!  You'll fit in just fine.    :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
angellady07
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« Reply #2 on: May 03, 2009, 08:18:23 PM »
Welcome.  :waving;
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willieandwinnie
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« Reply #3 on: May 04, 2009, 04:40:50 AM »
 :welcomesign; You love it here, so much information and support. Hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #4 on: May 04, 2009, 05:53:15 AM »
 :welcomesign; :welcomesign; :welcomesign;

This is the place for you, MakeValue. You will be able to find support and information here!

Welcome to the community.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MandaMe1986
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« Reply #5 on: May 04, 2009, 05:54:24 AM »
 :waving; :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
monrein
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Might as well smile
« Reply #6 on: May 04, 2009, 06:48:59 AM »
 :welcomesign;  Glad you found us and I look forward to getting to know you better.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Joe Paul
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« Reply #7 on: May 05, 2009, 02:04:53 AM »
Welcome makevalue, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Rerun
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Going through life tied to a chair!
« Reply #8 on: May 05, 2009, 09:21:39 AM »
Welcome to IHD.  Go read some Transplant Stories.  There is one on Positive Crossmatch that goes through every step.

                                        :welcomesign;
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pklipe57
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« Reply #9 on: May 05, 2009, 11:28:10 AM »
 :welcomesign; to IHD.  We're glad you're here.
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peleroja
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I have 16 hats, all the same style!
« Reply #10 on: May 05, 2009, 12:20:26 PM »
Welcome to the group.  Gee, I thought I was the only person who said howdy; nice to know there are others about!
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