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Author Topic: Greetings from California  (Read 3795 times)
treehugger
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« on: May 01, 2009, 10:31:21 AM »
Good morning, everyone. I just found this site a few days ago, have been lurking as a guest, and am now very excited to be here and making my first post. What a great place for information and support.

My husband Joe and I live in the SF Bay Area with our two rescued racing greyhounds (that's our Mandy in my avatar) and two cats.

Joe was diagnosed with kidney disease (we don't know the cause) in August 2002 as a "lucky" accident after a month-long gout attack (he had had gout for 6 years). He started out with 30% kidney function and had a very gradual decline until his nephrologist deemed him ready for dialysis late last spring. He had his catheter surgery in June and started manual and then cycler PD in August/September of last year.

He has been on "the list" for about 3.5 years, but now we are very excited to be starting the (very long) paired exchange process with me as the potential live donor (we don't have the same blood type). So happy that California finally got on the paired exchange band wagon. I just mailed in my paperwork last week, so now we are waiting for the next step. As far as I know, I have two very healthy kidneys, so it's time to get rid of one of them and put it to better use!

That's probably enough of an intro for now. Thanks to everyone who makes this site such a haven.

Cheers,
Kara
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Wife and partner to CKD patient (diagnosed in 8/2002) who has been on PD since 9/2008.
Hopeful future live kidney donor (via paired exchange).
Wallyz
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« Reply #1 on: May 01, 2009, 10:36:17 AM »
Welcome, and thanks for donating.   


Question about the greyhounds-  have you ever thought of getting some monkey jockeys?
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paul.karen
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« Reply #2 on: May 01, 2009, 10:45:43 AM »
LOL WallyZ

Nice to have you here kara.
And it is nice that you are getting in on the paired exchange program.  That just seems to be a win win for everyone involved.  :thumbup;

Sounds like a great house with all the pets.  And Mandy is a cutie.
Hope to see you and Joe post often on many threads.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
monrein
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« Reply #3 on: May 01, 2009, 11:26:27 AM »
 :welcomesign;  Kara.  Living donors rock and paired exchange is such a great way to go about donating when incompatibility is a factor.  I look forward to hearing more about your journey here.  :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MandaMe1986
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« Reply #4 on: May 01, 2009, 11:46:50 AM »
Hi there Kara happy you found us. Come back often!  :waving;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

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willieandwinnie
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« Reply #5 on: May 01, 2009, 12:00:45 PM »
 :welcomesign; Kara. Glad you joined our wonderful family. Loads of information and support are here. Hope to hear more from you and that was a great introduction.  :cuddle;
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Maxridex
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« Reply #6 on: May 01, 2009, 02:29:48 PM »
 :welcomesign; Kara :D I'm new here today too :D Hope you keep contact with us on forums :)
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'' Never give up '' & '' You will never walk alone ! ''

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Zach
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« Reply #7 on: May 01, 2009, 02:32:17 PM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
G-Ma
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« Reply #8 on: May 01, 2009, 03:01:20 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
treehugger
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« Reply #9 on: May 01, 2009, 03:58:29 PM »
Thanks for all the warm welcomes! I can see I have a lot more reading to do this weekend, both here, and at the livingdonoronline site (which I learned about at IHD, naturally). Now, about those monkey jockeys...  :P
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Wife and partner to CKD patient (diagnosed in 8/2002) who has been on PD since 9/2008.
Hopeful future live kidney donor (via paired exchange).
David13
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« Reply #10 on: May 01, 2009, 04:12:21 PM »
I would like to add my welcome to the others!   :welcomesign;

This is a great site, as you have already found.

Keep us updated on the donation process. 
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willowtreewren
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My two beautifull granddaughters

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« Reply #11 on: May 01, 2009, 04:19:47 PM »
Hi, Kara,
I'm a caregiver, too. Still trying to donate to my husband.  :cheer:

It's great to have you on board. A big  :welcomesign; from Tennessee, too.

Keep us informed.  :waving;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Jean
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« Reply #12 on: May 01, 2009, 11:24:02 PM »
Welcome from Sunny Southern California, Riverside to be exact. You will learn a whole lot of stuff here. All valuable in one way or another.
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One day at a time, thats all I can do.
Joe Paul
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« Reply #13 on: May 02, 2009, 03:02:25 AM »
Welcome Kara, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
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Transplant Jan. 8, 2010
TeenHatesDialysis
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« Reply #14 on: May 02, 2009, 11:02:36 PM »
 :welcomesign;

Where is your husband's tranplsnt going to take place?

Although we currently live in Colorado, two of my daughters are listed at Lucile Packard Childrens Hospital at Stanford...so we are ready to fly 24/7.

I was born in SF and grew up in Pleasanton and love the Bay Area, but we chose Stanford as our transplant hospital due to their superior non-steroid protocol.  They have an awesome transplant team  :2thumbsup;

Please keep us updated on your paired exchange! Exciting! :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
angellady07
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« Reply #15 on: May 02, 2009, 11:47:25 PM »
Welcome.  :waving;
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Yvonne
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Yvonne
« Reply #16 on: May 03, 2009, 12:17:21 AM »
 :welcomesign; :ukflag; Hope all goes well with the tests, I'm a carer also.
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
idahospud
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« Reply #17 on: May 03, 2009, 05:59:06 AM »
 :welcomesign; glad to have you with us  :grouphug; carol
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treehugger
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« Reply #18 on: May 04, 2009, 08:32:35 AM »
Quote from: TeenHatesDialysis on May 02, 2009, 11:02:36 PM
Where is your husband's tranplsnt going to take place?

I was born in SF and grew up in Pleasanton and love the Bay Area, but we chose Stanford as our transplant hospital due to their superior non-steroid protocol.  They have an awesome transplant team 


Hey, I grew up in Pleasanton. Small world, huh? So, the big question is, which highschool did you go to? I'm class of '92, Amador.  :waving;

Our transplant is going to take place at UCSF.

Thanks for the welcome and best wishes to your daughters!

Kara
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Wife and partner to CKD patient (diagnosed in 8/2002) who has been on PD since 9/2008.
Hopeful future live kidney donor (via paired exchange).
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