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Author Topic: hello everyone  (Read 2549 times)
ahqudit
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« on: April 27, 2009, 08:46:26 AM »
I s really suckstarted dialysis a year ago in april i'm 51 and found out i have multiple myeloma which made my kidneys quit right now im going thru a stem cell transplant was so glad to find this site hoping to find info.and yeah i'm pissed i have dialysis and chemo try sitting 4hours at chemo and then 4 hours at dialysis it
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Alan
willieandwinnie
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« Reply #1 on: April 27, 2009, 08:52:03 AM »
 :welcomesign; ahqudit. Glad you joined us and you do have a lot on your plate right now. I'm sorry but we are also here to help answer questions and lend support when you need it. Please post often and check some of the older threads, loads of information there.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #2 on: April 27, 2009, 08:54:09 AM »
My husband always says that even when life sucks, think of the lternative!  :rofl;

We are glad you found us. You'll find lots and lots of support and information here.

 :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #3 on: April 27, 2009, 02:50:31 PM »
Hiya,
I also have multiple myeloma which lead to kidney failure.  Good luck with your stem cell treatment.  I'm really interested to see how it goes.  Here in ew Zealand they won't do stem cell on dialysis patients, so I can't get one.  I am currently on velcade which is doing a great job.  Magic.  Ask about the possibility of peritineal dialysis - I much prefer it to haemo.  Hang in there - I know it must seem like the weight of the world is on your shoulders, but it's amazing the drugs and stuff now that can help you get better.  Know we are all thinking of you and sending positive thoughts your way.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Zach
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"Still crazy after all these years."
« Reply #4 on: April 27, 2009, 03:28:10 PM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
glitter
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« Reply #5 on: April 27, 2009, 04:28:26 PM »
Hello- nice avatar!!!  :welcomesign;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
G-Ma
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« Reply #6 on: April 27, 2009, 04:38:49 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kellyt
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« Reply #7 on: April 27, 2009, 04:46:07 PM »
 :waving;  Sounds like you have a lot going on in your life.  We all agree it sucks!   ;D    Welcome to this fabulous site!  You'll love it here!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Joe Paul
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« Reply #8 on: April 28, 2009, 12:57:32 AM »
Welcome ahqudit, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
MandaMe1986
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« Reply #9 on: April 28, 2009, 12:59:51 AM »
Welcome!  :waving;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Ang
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« Reply #10 on: April 28, 2009, 01:00:12 AM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
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