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Author Topic: What's positive about doing dialysis? Help me with my list.  (Read 12149 times)
G-Ma
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« Reply #25 on: April 18, 2009, 09:13:31 PM »

dw...no don't stop coming here.  We need you here  We all make mistakes or typing errors and I have seen many posts that are the same as other threads.  I think we all needed to read your thread on this topic.  I myself try to look for other posts before I post something and sometimes when doing this no one responds, not sure about why???  But that happens.  I think we all enjoy what you write and your good humor.

 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kristina
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« Reply #26 on: April 19, 2009, 01:46:08 AM »

Hallo, DW,  you said earlier you love music and playing the piano - how about choosing a special piece you always really wanted to play, approach it slowly and during dialysis think about that particular piece, think it over again and plan the next step how to play it? Good luck and best wishes from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
MIbarra
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« Reply #27 on: April 19, 2009, 02:21:59 AM »

DW... one of the positives...

You get to freak out people with your fistula! I super enjoyed freaking the heck out of my brother when I pulled up my sleeve at Thanksgiving.  =)  Priceless to see the look on my older (much older) brother's face.   ;D
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Cadaver transplant April 29, 2007
okarol
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« Reply #28 on: April 19, 2009, 08:18:55 AM »



hey DW - don't feel abused - Epoman moved some of my early posts around and moderators suggested things - I learned not to take it personally - the goal is to make the forum work well for everyone - so I hope you keep posting - this is a great thread.

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
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« Reply #29 on: April 19, 2009, 11:32:06 AM »

- when you're sicker than usual on a certain day you get pity gifts!
- You can yell at people and not feel bad ;)
- People will help you with just about anything
- You can get out of things you don't want to do (even if dialysis has absolutely nothing to do with it, heh)
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.

"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
Sluff
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« Reply #30 on: April 19, 2009, 11:50:58 AM »

Dan
Please answer the PM I sent you.

Thanks.

Sluff
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willowtreewren
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« Reply #31 on: April 19, 2009, 12:53:12 PM »

Oooh, Dan,
The "freaking folks out with your fistula" is a GREAT amusement! One of the kids in my husband's class can't keep her hands off it! She loves the "thrill" of it. It's a great ice-breaker at parties, too.

And PLEASE, PLEASE, don't stop posting. I so enjoy your humor and would truly miss your voice.  :guitar:

What I really want to hear is that you are doing great and feel loads better after getting on the dialysis train.

So post again as soon as you can this week.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paddbear0000
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« Reply #32 on: April 19, 2009, 01:22:41 PM »

- when you're sicker than usual on a certain day you get pity gifts!

You do???   ???  Where are mine?!
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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« Reply #33 on: April 19, 2009, 01:36:40 PM »

I will have my mom and fiancee send you some  :grouphug; Everyone should get pity gifts!
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.

"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
RightSide
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« Reply #34 on: April 19, 2009, 03:13:33 PM »

Some more positive things:

1.  Instead of having to make an appointment and wait weeks or months to see a neph or dietitian, they come to see you, without an appointment, every week.

2.  Once you're on hemodialysis, getting IV meds is a piece of cake, compared to the way it used to be before.

3.  You can fine-tune your "antennae" so you notice your ESRD symptoms worsening in time to do something about them.

4.  A renal diet (low sodium, high protein) is healthy for anybody, whether or not they've got ESRD.

5.  You can frighten away even guys who are built like Rambo--just show them your HD catheter stuck in your neck.

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RichardMEL
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« Reply #35 on: April 19, 2009, 07:27:32 PM »

pity gifts? What are these "pity gifts" of which you speak??

The closest I got was a couple of weeks ago the boss nurse at dialysis organised "grief counselling" for me when my football team turned in one of the worst efforts of all time!! That was pretty funny.. even the chaplain had a laugh about it but still gave me my counselling....

Unfortunately we've lost the next 3 games I fully expect another session tomorrow!  :rofl;

Hey Dan, another positive thing.. for the past 3 years the unit has been sending medical students to examine me and take histories and do "real world" tests with me (being assessed by a senior professor)... now this is a positive because most of them are younr and CUUUTEEEE!!!!  Always great when my BP is a bit low!!  :rofl;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Wattle
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« Reply #36 on: April 19, 2009, 10:02:25 PM »



Unfortunately we've lost the next 3 games I fully expect another session tomorrow!  :rofl;



 :rofl; :rofl; :rofl; :rofl; :rofl;  It's not counselling you need you need Richy.... It's a new team!    :rofl; :rofl; :rofl; :rofl;



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PKD
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July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
paddbear0000
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« Reply #37 on: April 19, 2009, 11:48:23 PM »

I will have my mom and fiancee send you some  :grouphug; Everyone should get pity gifts!

I was only kidding! They don't need to do that!

Some more positive things:

1.  Instead of having to make an appointment and wait weeks or months to see a neph or dietitian, they come to see you, without an appointment, every week.

Yours come around that often? Mine only come around once a month.
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
RichardMEL
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« Reply #38 on: April 20, 2009, 01:27:12 AM »




 :rofl; :rofl; :rofl; :rofl; :rofl;  It's not counselling you need you need Richy.... It's a new team!    :rofl; :rofl; :rofl; :rofl;

A Tiger never changes his stripes.... but I'm sure glad the IPL is on to take my attention away from the mess that is yellow and black.

*sigh*

maybe I'll get a kidney from an Essendon supporter or something and wake up supporting another team.. though I have already declared I will *never* accept an organ from a Carlton or Collingwood supporter... I'd rather chop my heart out !!!! :D
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
twirl
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« Reply #39 on: April 20, 2009, 03:18:40 AM »

crawfish ----- keep posting and making threads --- unless we read every thread ever written - we may not know if we are repeating --
anyways it freshens up old threads with a new perspective

I find you very entertaining and you add some humor and seriousness to my life --
smart asses rule
 :sir ken;

positive about dialysis --- I have special parking  :waving;
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kristina
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« Reply #40 on: April 20, 2009, 03:31:47 AM »

Hallo Twirl, so glad to see you back again! You really had us worried. Hope you feel better, kind regards from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
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« Reply #41 on: April 21, 2009, 08:20:33 AM »

Dan, you are in my thoughts constantly this week.  Hoping the surgery and the start of dialysis goes smoothly with not much pain.   :cuddle;   We miss you when you aren't online!  Take care, friend.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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« Reply #42 on: April 21, 2009, 11:55:08 AM »

So, Dan,
I'm hoping and hoping that you are going to chime in when you get back and tell US all the positives about dialysis. I am so looking forward to hearing from you again.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
twirl
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« Reply #43 on: April 21, 2009, 03:54:43 PM »

positive --- Crawfish --- you will live longer  :clap;
go to Babin's - they have so many crawfish dishes on the menu

and stay positive --- I do not know how to do that but we need your for your wit  and smart
butts rule  :cheer:
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kitkatz
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« Reply #44 on: April 21, 2009, 07:32:31 PM »

So get back here quick DW!   :basket: :basket: :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #45 on: April 22, 2009, 02:24:46 AM »

A positive is that you get to know who you can count on , family ,friends and such . Sometimes I just don't have the energy to do things, or I feel like crap!! and don't feel like doing much and people still
want to be your friend even after you cancel out  on them. :puke;
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Gus-
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My dear daughter

« Reply #46 on: April 23, 2009, 07:14:42 AM »

One good thing about dialysis is that you almost never have to use those porta-potties at outdoor events.  (no pee)   :flower;
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
paddbear0000
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« Reply #47 on: April 23, 2009, 04:39:33 PM »

 :rofl;  Haha! good one!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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