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monsterman
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Impossible Is Nothing

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« on: April 04, 2009, 07:54:16 PM »
Hi everyone,

My name is Chris I am 29 and recently started Dialysis. I am a Type I Diabetic with many Diabetic Complications. Renal Failure being one of them.. It took a good 5 months or so for my kidneys to finally shut down and stop functioning. Before that I was struggling going back and forth to the ER and many ICU stays because of HIGH CREATINE Levels and being Toxic.. Or so I call it. The last straw was around 3 weeks ago. I spent 5 days in ICU and then they told me I was going to have to start Dialysis.

The following day I went upstairs and had a port put in my chest. I thought it was really going to be bad but after the 2nd Dialization boy did I feel like a million bucks. And to this day I am still feeling 100 times better. My Blood Sugars have seemed to level back out again. I am also getting IV Nutrition at the same time I do the Dialysis at the Center so I have also managed to put on around 12 pounds to date. I am looking forward more and more to each and everyday. I honestly forgot how it felt to feel good. I am so glad that I have kept on fighting and not given up on this entire situation. Its been a rough 10+ years.

Anyhow so glad I found this site and am looking forward to meeting new people, making friends and also finding some Dialysis Patients in my areas. So if you are on Long Island please let me know..
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Chris
TeenHatesDialysis
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« Reply #1 on: April 04, 2009, 08:24:00 PM »
 :welcomesign; Chris,

I am glad to hear that you are feeling much better on dialysis.  ;D  This is a very knowledgeable and supportive group.   :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
Zach
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"Still crazy after all these years."
« Reply #2 on: April 04, 2009, 09:21:04 PM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
MIbarra
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Stopping to smell the bluebonnets
« Reply #3 on: April 04, 2009, 09:44:57 PM »
 :welcomesign;
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Cadaver transplant April 29, 2007
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #4 on: April 04, 2009, 10:48:07 PM »
 :welcomesign;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Yvonne
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Yvonne
« Reply #5 on: April 04, 2009, 10:57:15 PM »
 :ukflag;  :welcomesign; from the UK, you will just love this site it is so helpful, Yvonne
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
Wallyz
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« Reply #6 on: April 04, 2009, 11:31:15 PM »
Welcome.  I am also a type 1.  Have you started looking at SKP transplant yet?
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Joe Paul
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« Reply #7 on: April 05, 2009, 03:30:06 AM »
Welcome  Chris, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
G-Ma
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« Reply #8 on: April 05, 2009, 03:31:53 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Sluff
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« Reply #9 on: April 05, 2009, 05:59:52 AM »
Welcome Monsterman,

It's always good to see new meat.  :rofl;  Someone new to harass. naw we don't want to scare you off, we are glad to have you here with all the other meat.  Here you will find many different stories and many answers to any questions you might have now or in the future. Enjoy your stay and come back often.

Sluff/Admin
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Romona
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« Reply #10 on: April 05, 2009, 06:07:14 AM »
 :welcomesign;
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willieandwinnie
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« Reply #11 on: April 05, 2009, 06:53:52 AM »
 :welcomesign; Chris. We are so glad that you found us. Stick around and check out the older threads as they contain loads of information and if you have any questions, ask away. Hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
MargretL
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« Reply #12 on: April 05, 2009, 05:40:14 PM »
 :welcomesign;
Good to have you here!
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Second time on Dialysis!
First time for 2 plus years. 97 to 99
99  to 07 Had Kidney transplant
07 to 08 Back on Dialysis
08 was put back on Transplant list
08 to now Nxstage!
pklipe57
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« Reply #13 on: April 06, 2009, 07:28:31 AM »
 :welcomesign; to the world of IHD.  We're glad you're here.
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paris
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« Reply #14 on: April 09, 2009, 07:47:04 PM »
 :welcomesign;  Glad you joined this great group.  Sounds like you have been dealing with a lot, especially the past few weeks.  I look forward to learning more of you story and experiences.  You have landed among friends who understand what you are going through.  Post often   :2thumbsup;  Nice to meet you  :cuddle;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
MandaMe1986
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« Reply #15 on: April 09, 2009, 08:07:18 PM »
Hi Chris happy to have you  :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
monsterman
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Impossible Is Nothing

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« Reply #16 on: April 20, 2009, 10:13:28 PM »
Thanks for the Warm Welcome Everyone!! It feels good to feel like I am part of a big family. I have to say though these last few weeks have seemed so overwhelming although the family I have now begun to meet at the Dialysis Center I go to every 2 days are really amazing people. Not only are the staff great people but so are all the other patients who go there.

I do the AM Dialysis! I am up at 4am and head out the door by 4:45 to be there for 5am.. Its a long 3 1/2 hours but I pop on my trusty Zune and listen to the tunes until I fall asleep  time seems to pass by so much quicker that way. I am usually sleeping the entire Dialysis session unless an alarm wakes me up or the Nurse needs something like blood or just hast to move a tube or check on me.

Anyway I am not new to forums so I should fit right in here. I am a Moderator on an Radio Control Car Forum called the HPIBajaforum.. Its a cool site and one of my few hobbies. I'll have to post up some pictures of my 26cc 3ft long gas powered monsters one of these days  :2thumbsup;

Anyhow I have a few questions to ask so let me go find the proper section to put them in..
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Chris
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My two beautifull granddaughters

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« Reply #17 on: April 21, 2009, 07:38:42 AM »
Hi, Chris!
 :welcomesign;

I have a type 1 diabetic child in my class. He was diagnosed at age 4. He has been very interested in my husband's dialysis process, as is his mother.

You have come to the right place to get your questions answered.

Welcome to a wonderful community.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Romona
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« Reply #18 on: April 21, 2009, 01:37:09 PM »
 :welcomesign;
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paul.karen
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« Reply #19 on: April 21, 2009, 04:05:36 PM »
Glad you found the #1 Dialysis site.

I checked out your forum nice. :thumbup;
I have about 10 RC's.  Great fun hobby but man it gets expensive with the repairs.
I only have the RTR's and a plane i built and wrecked soon afterwords. But i can appreciate the
time and work people put into some of there toys.

I have a 73 Baja vw that i am getting ready to uncover for the summer.
I may by a shell for one of the RC's and paint it like the bug to take to shows with me.

I think there is a hobby page you could post your pics on.  With a few other RCs on it.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
kellyt
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« Reply #20 on: April 21, 2009, 04:11:15 PM »
 :waving;    So glad you found us!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
twirl
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« Reply #21 on: April 30, 2009, 05:49:18 PM »
hey and never give up
you are too young
 :cheer: :cheer: :cheer:
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monrein
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Might as well smile
« Reply #22 on: April 30, 2009, 08:10:21 PM »
 :welcomesign;   glad you found us and I love your attitude.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Brightsky69
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« Reply #23 on: May 01, 2009, 05:47:30 AM »
 :welcomesign;  Hi And Welcome!
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
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