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Author Topic: Joda I'm new here  (Read 2854 times)
joda
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« on: April 13, 2009, 01:46:08 PM »
 :pics;   Hello Everyone:)

             I'm new here just reading some of your post was interested too talk too the person who was talking about you don't die from dialysis!! I don't agree when a love one's blood pressure is constantly not watched at I walk in and it's dropped too 48/24 I'm sorry but that's negligences in my books!!!

            What's your opinions??  :grouphug;  The only way that I have survived is turn my life over too MY Lord because no one else is going too do it for me. In fact some family members are saying that I didn't do enough!!! I'm trying really hard to forgive them!! 

            Just curious what do you all think of all this?              joda


Edited: Fixed smiley error - paris, Moderator

                                                               
« Last Edit: April 13, 2009, 05:25:06 PM by paris » Logged
Rerun
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Going through life tied to a chair!
« Reply #1 on: April 13, 2009, 03:29:50 PM »
Hi Joda...  Welcome to IHD.   I would like to know more about you.  When did you first start dialysis?  I take it you are on incenter Hemo if you are frustrated with the Idiots that work there!  Do you live in the U.S.?  Oh, I read your post again.... maybe you have a loved one on dialysis... who would that be?

I agree with your frustration.  Just take some time and read some of the posts here to KNOW that we understand and you will learn lots.  AND maybe laugh again......

God is the only way I survive... knowing there is a better place waiting for me. 

                                 :welcomesign;
« Last Edit: April 13, 2009, 03:32:02 PM by Rerun » Logged
Joe Paul
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« Reply #2 on: April 13, 2009, 03:48:17 PM »
Welcome Joda, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Romona
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« Reply #3 on: April 13, 2009, 04:34:30 PM »
 :welcomesign;
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Zach
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"Still crazy after all these years."
« Reply #4 on: April 13, 2009, 04:44:01 PM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
paris
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« Reply #5 on: April 13, 2009, 05:26:56 PM »
 :welcomesign;  We are glad you joined us.  There is a lot of information, opinions and support here.  We look forward to hearing more from you.  Welcome to IHD.





paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
MIbarra
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Stopping to smell the bluebonnets
« Reply #6 on: April 13, 2009, 05:50:49 PM »
Hello!  :waving;
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Cadaver transplant April 29, 2007
G-Ma
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« Reply #7 on: April 13, 2009, 06:17:06 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
willieandwinnie
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« Reply #8 on: April 14, 2009, 08:08:26 AM »
 :welcomesign; joda. Please post more about your experience. It is hard for us to give good information when we don't have very many facts. There is loads of information on this site and so many caring people. We look forward to hearing more from you.  :cuddle;
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monrein
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Might as well smile
« Reply #9 on: April 14, 2009, 08:43:28 AM »
 :welcomesign;  I'd love to hear more about your personal experiences so we can not only learn from you but lend our specific support as well.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
TeenHatesDialysis
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« Reply #10 on: April 14, 2009, 11:07:37 PM »
 :welcomesign;

I am the caregiver of 14 year old daughter on dialysis and several times her bp dropped too low on dialysis and she passed out. It can be a very scary situation.  There are alot of supportive people here with lots of great information. Please share your experiences as we all gain from hearing what others are experiencing.

Thanks for joining the group. :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
RichardMEL
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« Reply #11 on: April 14, 2009, 11:12:40 PM »
I think if the BP is that low there may be an issue with the dry weight not being calculated properly and too much fluid has been taken off - or it could be any number of things. This clearly needs to be taken up with whose giving the dialysis and/or the nephrologist. It's certainly something that shouldn't be put up with because that is extremely low. I know in our center they wouldn't let anyone go anywhere with that sort of BP!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
MandaMe1986
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« Reply #12 on: April 15, 2009, 08:03:15 AM »
Hello there Joda happy to have you!  :waving;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
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