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Author Topic: 6 month update!!  (Read 4304 times)
draven
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« on: June 01, 2009, 07:28:16 AM »

So its been 6 months since the transplant

I must say things are going pretty good. apart from side effects from the meds my health better then its been in 10 years. my creatinine levels was 137 last time i checked a tiny bit higher then last time, but doc says it was higher due to me having the flu. i went for bloods today so will give a update soon.

the only issues i have at the moment is the cellcept which is still giving me the occasional upset stomach.
and the weight gain, which is coming off slowly. and thats it really nothing new to report.
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MandaMe1986
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« Reply #1 on: June 01, 2009, 07:30:14 AM »

Yey Draven!  That is great news.  And here is to 6 more months and many more to come  :beer1;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: June 01, 2009, 07:35:02 AM »

I find transplant news uplifting, no matter how routine the report sounds.

Yea! Yea!  :cheer: :cheer:

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kellyt
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« Reply #3 on: June 01, 2009, 08:54:04 AM »

 :clap;    :yahoo;     So good to hear this!

I'm going through some medication adjustments at the moment.  Also, my weight.  It has at least stopped going up, but it's going down yet.   :thumbdown;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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« Reply #4 on: June 01, 2009, 11:33:02 AM »

Thanks for the update Draven - I hope your labsare good.
Jenna still takes Prilosec once a day and has had no trouble with the Cellcept.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #5 on: June 01, 2009, 01:45:15 PM »

The weight gain stinks! I am glad you are doing well.
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draven
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« Reply #6 on: June 02, 2009, 11:27:17 AM »

Update on the blood results: my creatinine is 122 which in my Docs words are "fantastic"
so things are going good
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dwcrawford
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Getting the heck out of town.

« Reply #7 on: June 02, 2009, 11:41:49 AM »

Wish somebody would explain creatine levels to me.  Mine was 8.5 at the time I had to start dialysis... and you are 122 and that's good.  Does it go down when you start dialysis or up.  Haven't heard a word about it since I started.
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Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
draven
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« Reply #8 on: June 02, 2009, 12:42:06 PM »

Hi dwcrawford

Creatinine levels are calculated diffrently in diffrent countries. i think monrein or okcarol can send u a link for a creatinine calculator

your creatinine was 8.5 when u started dialysis and mine was 980.
my creatinine is now 122 and im guessing a good creatinine level in your country is about 1.5 or 2.0
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dwcrawford
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Getting the heck out of town.

« Reply #9 on: June 02, 2009, 12:44:23 PM »

I'll ask the doctor next week if nobody knows in here.  Why do they make all the numbers so hard for me?  Although I must admit that my weight sounds a lot better in Kilos than in pounds.

Where are you draven?   UK?
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
draven
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« Reply #10 on: June 02, 2009, 01:34:54 PM »

I'm from South Africa. we use mostly UK measurements here
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okarol
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« Reply #11 on: June 02, 2009, 03:44:11 PM »

here's a clinical unit conversion :   http://dwjay.tripod.com/conversion.html
to convert from the large numbers (i.e. 120, 130, ..1200) to the small ones, use (µmol/L) to (mg/dL)
so, for example, 120 would be 1.4
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
dwcrawford
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Getting the heck out of town.

« Reply #12 on: June 02, 2009, 03:57:34 PM »

Thanks Okarol.... that'll be a useful tool... now I just need to ask if my creatine has gone down or up.  I'm really not sure what it is although it has been explained a couple of times.

Draven, Not having been much of a world traveler outside of N. and S. American and Europe, I'd really appreciate watching your comments expressing culture differences -- nothing major.  I'm more interested in day to day culture differences.  I've never had a friend from S. Africa before and you know that everybody on IHD has to be your friend.  It's a rule. 
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
draven
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« Reply #13 on: June 03, 2009, 01:12:22 AM »

Hi dwcrawford

sorry if i said something offensive, I'm not actually sure what you mean by " expressing culture differences"
unless you are referring to the way countries use diffrent conversions for creatinine levels.

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dwcrawford
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« Reply #14 on: June 03, 2009, 04:07:41 AM »

Quite the Opposite Draven.  I just meant I wanted to get to know you because I think your experieces would be very interesting.  I like knowing people from different cultures than mine.   Nothing you've said was offensive.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
draven
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« Reply #15 on: June 03, 2009, 04:19:38 AM »

Ok Cool  :beer1;
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dwcrawford
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« Reply #16 on: June 03, 2009, 04:25:19 AM »

Culture difference... examples and kind of silly.  What do you eat that's differenct from me?  Favorite spirts or movies, etc.  Anything political going on...  What's the weather like etc.  Nothing big, just looking forward to seeing your posts and  learning a little about you from time to time.

I'm am new to all of this.  I read all your posts but rarely respond because I am new and not so experienced as others on here.  I've had kidney problems (serious) for six months and dialysis for five weeks and most of what I know was by reading posts on here...
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
draven
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« Reply #17 on: June 03, 2009, 04:40:10 AM »

Hmmm lets see

Well we eat pretty much the same as everybody. we have mcdonalds and KFC and so on. For me living in Cape Town we have a large Muslim/Malaysian  community ( i'm Catholic) so there is a malay influence in some dishes.

Sports is where we may differ. we are more into British type sports like Rugby,Cricket and Soccer.

Movies are the pretty much the same. we have cinemas all over the place and the candy and beverages all so super expensive.

Politics in this country is a very touchy subjects. we recently had a new president elected. problem is he has been charged with Fraud and Coruption on previous occasions, and no one really likes him.... yet he wins the elections.

Weather, its currently winter at the moment and it wont stop raining. our summer happens in december.

Hope this helps a little  :)
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Des
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« Reply #18 on: June 24, 2009, 04:08:24 AM »

So cool!

Congrats Draven,,, Did you wait on a list or did you have a live donor?

I'm also from SA and a bit more north than Cape Town.... we have no rain (very very little) and have mostly sunshine even in winter. We have summer thundershowers.

There are so many diffirent cultures here that every household in the same street can do things differently.

As Draven said.... We are sort of updated moviewise.. just a few months after its release there by you's then we get it here.... The internet and DSTV has shrunk the world ... we are all one big community now. 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Wilda
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Never give up...

« Reply #19 on: June 24, 2009, 10:33:20 AM »

Don't worry about the weight, it will come off eventually. When I had my transplant, because I was on a high dose of Prednisone I was so swollen. My brother came to visit from out of town when I got out of the hospital and I was sitting on the couch when he walked in and he didn't even recognize me. My face was hugh. The swolleness and puffyness went away as they lowered my milligrams on the meds.
Congrats on your transplant. I hope you have many many happy healthy years.
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I received a kidney from my sister on March 16, 1978. :)
Never ever give up.
Live life to its fullest...
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