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Hello All!
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Topic: Hello All! (Read 2673 times)
LuvforMom
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positive vibes....I need some positive vibes!!
Hello All!
«
on:
July 07, 2009, 08:39:42 PM »
Hello, I am new to this site. I joined with the hopes of getting more information about my moms condition and helpful hints on how I can improve her living situation since she is living with me. She was diagnosed with Kidney failure in Feb 2009, by March she was on PD dialysis. Now 6 months later she is forced to do the hemo dialyisis due to a severe infection. I DO NOT LIKE HER DOCTOR! I would just like to be better informed and educated.... I could use some help!! I have tons of questions and I dont feel confident to ask her doctor....
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RichardMEL
Member for Life
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Re: Hello All!
«
Reply #1 on:
July 07, 2009, 08:54:03 PM »
hey there... how does your mom feel about her doc? maybe she should get referred to another specialist that you both may feel more confident with and comfortable to ask the questions you want to ask.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Chris
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Re: Hello All!
«
Reply #2 on:
July 07, 2009, 09:13:20 PM »
I agree with RichardMel, ask another doctor for a referal or if you can, ask other dialysis patients at her facility in the waiting room. I didn't like my first Nephrologist I was assigned to in the hospital and the next time I was admitted, I asked for another one and I am very happy with my local nephrologist.
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Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
LuvforMom
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Posts: 6
positive vibes....I need some positive vibes!!
Re: Hello All!
«
Reply #3 on:
July 07, 2009, 09:22:19 PM »
My mom doesn't complain, she trust the doctors to just do what they're supposed to do. Her kidney started failing due to "uncontrolled blood pressure" which is bs since she's been on blood pressure medication for as long as I can remember so surely a doctor or 2 missed that her blood pressure was out of control and that the medications she's using are not working. I guess I just need to do more research on Las Vegas doctors....
thank you for the replies! i will definitely look into getting recommendations for other doctors
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Chris
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Re: Hello All!
«
Reply #4 on:
July 07, 2009, 09:27:32 PM »
I would have your mom look into this or other sites so she can see what others go through and things to look out for. Trusting doctors 100% is something I no longer do. So what your doing by researching is good, but show what you find to your mom in a non pushing manner so she won't shrug it off.
I'm sure others will have input in the morning/afternoonish time tomorrow.
«
Last Edit: July 10, 2009, 12:33:30 PM by Chris
»
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Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
Joe Paul
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Posts: 4841
Re: Hello All!
«
Reply #5 on:
July 07, 2009, 10:56:30 PM »
Welcome LuvforMom, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Hanify
Elite Member
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Hadija, Athol, Me and Molly at Havelock North 09
Re: Hello All!
«
Reply #6 on:
July 07, 2009, 11:45:37 PM »
Hi Luvformum. Good to meet you. Please ignore anything Richard or Chris say - they are trying to be nice cos they're bloody excited about how HOT you are! Nah - just kidding (about them - not about how hot you are). They know what they're talking about...I think.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
paul.karen
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Re: Hello All!
«
Reply #7 on:
July 08, 2009, 06:22:55 AM »
LFM.
Do you or your mother keep track of her bloodpressure? There are many cheap electronic BP machines you can buy, i have learned from this site it is best to be proactive.
I am guessing your mom had a bout of Peritonitis if so sorry to hear that.
I also second if you dont like your Neph change him/her. It is your moms life and she deserves to have someone she feels comfortable with. And you should as well like the neph since you are the care giver.
Look through the many threads and learn as much as you can.
P&K
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
monrein
Member for Life
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Posts: 8323
Might as well smile
Re: Hello All!
«
Reply #8 on:
July 08, 2009, 01:34:35 PM »
and I want to say how lucky your Mom is to have you researching things for her and helping to support her as she goes through this stuff. Post often.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
Elite Member
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Posts: 3957
Re: Hello All!
«
Reply #9 on:
July 08, 2009, 01:37:56 PM »
LuvforMom. Bless you for being here for your Mom. Find another doctor that you are comfortable with. Tons of information and support here and we hope to hear more from you.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
jessup
Sr. Member
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Posts: 773
Gemma - the tucker monster
Re: Hello All!
«
Reply #10 on:
July 08, 2009, 03:21:38 PM »
G'day and
You will find this site a blessing
Everything you need to know is right here
All the support you will need is here
Thankyou for being a loving proactive caring daughter
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David13
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Posts: 12712
A meow massages the heart.
Re: Hello All!
«
Reply #11 on:
July 10, 2009, 04:14:07 AM »
Welcome!
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
paris
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Posts: 8859
Re: Hello All!
«
Reply #12 on:
July 10, 2009, 03:46:08 PM »
Welcome to IHD. Your mother is indeed fortunate to have a daughter who is reserching for her. Not everyone has a family member who is willing to help like this. I am sure your Mom is very proud of you. I hope we can help both of you by answering questions or just being here to listen. This is a great group of people and we do care about each other. Looking forward to learning more about your Mom and you. Post often.
paris, Moderator
«
Last Edit: July 10, 2009, 03:50:32 PM by paris
»
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Bajanne
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Posts: 5337
Goofynina and Epoman - Gone But Not Forgotten
Re: Hello All!
«
Reply #13 on:
August 04, 2009, 07:02:36 AM »
Welcome to our community! You have joined us for what I consider one of the best of reasons - love and concern for a loved one! This is a great place for information and support. You have already got some good advice here. This is a genuine family that you have joined here
We will be with you and your mom all the way. Your mom's attitude is typical of the last generation - they trust doctors totally! We know better, and understand that we have to be proactive. 'Knowledge is Power!' Just keep reading, keep asking your tons of questions, and keep posting, letting us know how your mom is doing.
Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
kitkatz
Member for Life
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Posts: 17042
Re: Hello All!
«
Reply #14 on:
August 04, 2009, 02:52:48 PM »
Welcome to the site. You joined to help a family member and that is great! Unfortunately with the new privacy laws it is going to be hard to get information from her doctor for you to have. I wish you luck.
kitkatz,Moderator
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
MandaMe1986
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Posts: 2464
Re: Hello All!
«
Reply #15 on:
August 04, 2009, 04:07:14 PM »
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.
Matthew 5:3-9
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