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Author Topic: Hello, from the new guy.  (Read 3106 times)
Don S
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« on: March 05, 2009, 09:55:43 AM »
My name is Don. I'm 39 and live in Peculiar, MO.I found I had Glomerulonephritis about 15 years ago. GFR is now 10, and was told I'll start dialysis in a couple of months. Looking forward to getting to know everyone!
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paul.karen
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« Reply #1 on: March 05, 2009, 09:57:13 AM »
hey Don welcome to IHD.

See you are getting into it the fast way.
Read many threads and ask questions if you have them.
Hope to see you around here often.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
G-Ma
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« Reply #2 on: March 05, 2009, 09:58:28 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
lola
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I can fly!!!
« Reply #3 on: March 05, 2009, 09:59:52 AM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
Tinah1968
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ME
« Reply #4 on: March 05, 2009, 10:07:38 AM »
Hi Don and Welcome...  :welcomesign;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
monrein
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Might as well smile
« Reply #5 on: March 05, 2009, 10:40:31 AM »
 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #6 on: March 05, 2009, 12:26:30 PM »
 :welcomesign; Don. We have found the perfect place. Lots of information and support when you need it. Please post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Wenchie58
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Always carrying the big silly grin!
« Reply #7 on: March 05, 2009, 03:45:13 PM »
Hi Don!!  Welcome to the group!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #8 on: March 05, 2009, 04:10:49 PM »
Welcome to our community, Don!  You are joining it at what I consider the best time - just before you start dialysis.  There is so much information and support here that will help you through your transition.  And you will find that this is much more than just a website - it is a real family, :grouphug;  and we are looking forward to getting to know you.  Your hometown has a peculiar name, doesn't it?
Please keep reading and keep posting, so we will know how you are doing.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
TeenHatesDialysis
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WWW
« Reply #9 on: March 05, 2009, 05:33:35 PM »
 :welcomesign; to the group.  Lots of info and support here! :cuddle;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
boxman55
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« Reply #10 on: March 06, 2009, 04:48:22 AM »
Welcome Don, There is a lot of info to digest please use the search engine to help you with some answers. Once you got it down you can take the bag off so we know who you are  ;D


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Zach
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"Still crazy after all these years."
« Reply #11 on: March 06, 2009, 05:35:58 AM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Joe Paul
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« Reply #12 on: March 07, 2009, 01:12:57 AM »
Welcome Don, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paris
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« Reply #13 on: March 07, 2009, 01:15:03 PM »
Welcome Don.  We are glad you found us.  There is a ton of information here, but we give even more support to each other.   It is a great place to ask questions, rant, cry and laugh.  Come often  :2thumbsup;  Looking forward to hearing more from you.   





paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Dan.Larrabee
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Dialysis Dan
« Reply #14 on: March 10, 2009, 01:59:05 AM »
Hi Don!
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AKA Dialysis Dan
Feeling the best I can because of Home Hemo
Doing it the best way I can by making it Nocturnal
Sharing it to help everyone feel they best they can
www.youtube.com/dialysisdan
kristina
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« Reply #15 on: March 30, 2009, 02:20:47 AM »
Hallo, Don,
               Thank you for the Introduction. I love the name of your town!! How are you doing? Are you able to do things or does your ESR 10 make you very exhausted and tired? I was also diagnosed with glomerulonephritis many years ago and I do not understand why my Creatinine is going up and down, nothing seems reliable and that is why I still have hope. When my Creatinine was 436 in February this year I could hardly do anything at all and now it is suddenly 409 which enables me to go for walks and do things again. Do you have similar experiences? Have you already decided which dialysis you prefer?  All the best and kind regards from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
MandaMe1986
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« Reply #16 on: March 30, 2009, 09:35:05 AM »
Hi Don  :waving;.  We are  happy to have you. Make sure you come back often and get to know everyone.  There are some pretty cool catz here.  And some really helpful ones too. But 15 years under your belt already I am sure you will be pretty helpful yourself.  See you around
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
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