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Author Topic: Essay Contest: "What Helps You Live a Joyful Life in Spite of Kidney Disease?"  (Read 11371 times)
paris
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« Reply #25 on: March 24, 2009, 03:27:22 PM »

I think the big differnce at least for me was before i found this site.

I was just gonna do what i was told to do when i was told to do it.  What did i know.

I agree with both Rerun and Paris.  I am sure there is a hugh differnce predialysis and actualy doing dialysis.  But also we are all in the same boat.  With the same or close to the same goal.

This site has been a godsend to me.  I have learned SO MUCH and have even SO MUCH more to learn.  But i feel like i am in control now where as before i was just a pawn in a game.  Being told where to go and what to do.

I dont need any essay or prize to know i have already won just by finding this site.
Thank you all.  Even the ones who dont care for me.  I still learn from you  ;D

Well said!  That is how I feel about IHD!!    We love you Paul!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Rerun
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Going through life tied to a chair!

« Reply #26 on: March 24, 2009, 05:10:33 PM »

Zach does that include free drinks??

                       :rofl;
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kitkatz
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« Reply #27 on: March 24, 2009, 06:21:28 PM »

Zach=Renalist
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
twirl
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« Reply #28 on: March 25, 2009, 11:00:25 AM »

I still do not get it.
duh....................
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breezysummerday
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« Reply #29 on: March 25, 2009, 12:18:24 PM »

  :secret;  Does the essay have to be 750 words Zach?  :secret;


 8)

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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
Zach
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"Still crazy after all these years."

« Reply #30 on: March 25, 2009, 12:32:31 PM »

  :secret;  Does the essay have to be 750 words Zach?  :secret;


 8)

Actually, no essay.  Just a phone call at midnight will suffice.    :o
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
paris
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« Reply #31 on: March 25, 2009, 02:15:48 PM »

And what is that number??    :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Stacy Without An E
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« Reply #32 on: March 25, 2009, 03:30:02 PM »

You want to read some good essays?  I'm going to start a contest for the most bitter, angry, self-loathing Dialysis patient in the country.

First place is a chance to beat the hell out of a Dialysis machine with a baseball bat.  Second place is the ability to censure the most annoying patients at your clinic.  Third place is the ability to perform a fifteen minute tirade on the worst employee at Dialysis.
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Stacy Without An E

1st Kidney Transplant: May 1983
2nd Kidney Transplant: January 1996
3rd Kidney Transplant: Any day now.

The Adventures of Stacy Without An E
stacywithoutane.blogspot.com

Dialysis.  Two needles.  One machine.  No compassion.
Rerun
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Going through life tied to a chair!

« Reply #33 on: March 25, 2009, 03:35:16 PM »

Where do I sign up!

I did the 30 minute tirade on the Social Worker last night!  It was like punching a bag of flour. 
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kitkatz
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« Reply #34 on: March 25, 2009, 03:40:39 PM »

Yeah, they tend to let you rant, then shrug and walk off.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
twirl
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« Reply #35 on: March 25, 2009, 03:50:11 PM »

I think that Rerun could win the contest --- she has a way with words --- her post on her first dialysis
treatment is halarious -- I still laugh about it ----

Rerun -- write fiction is you have to ------ you could use the money ---- buy furbaby an indoor
puppy spa

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okarol
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« Reply #36 on: March 26, 2009, 03:14:45 PM »

You want to read some good essays?  I'm going to start a contest for the most bitter, angry, self-loathing Dialysis patient in the country.

First place is a chance to beat the hell out of a Dialysis machine with a baseball bat.  Second place is the ability to censure the most annoying patients at your clinic.  Third place is the ability to perform a fifteen minute tirade on the worst employee at Dialysis.

Now you're talking!

Where do I sign up!

I did the 30 minute tirade on the Social Worker last night!  It was like punching a bag of flour. 

Hahahah a bag of flour?? hahahaha I don't even know what that means but it's funny!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
twirl
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« Reply #37 on: March 26, 2009, 03:17:08 PM »

okarol    see ???  that proves my point     rerun needs to enter
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Beth35
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« Reply #38 on: March 26, 2009, 03:49:53 PM »

There is one thing that makes me joyful about being on dialysis.  I can go to a football game or the Zoo or some public place and I can be there all day and NEVER have to use the dirty bathrooms or porta potties.  That is the most awesome thing ever!  I could go six or seven hours without having to pee.  Just awesome.  People were so totally jealous of me for that. :rofl;
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Found out I had kidney disease when I was 15.
Started dialysis when I was 20.
Got a kidney transplant when I was 25.
Kidney failed at 37 and I began my second journey on dialysis.
MandaMe1986
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« Reply #39 on: March 26, 2009, 05:01:42 PM »

I think I might write an essay.  There are lots of things in life that are joyful, and yes inspite of my kidney diease.  I have been sick sense I was 14.  I have gone through the depression, and the wanting to kill myself.  But you know what my kidney problems are only a part of who I am.  It dosn't make up even a 1/4 of what I am.  Yes I am in pain a lot of the time, I almost always have a headace, I am always tired, I hate being sick.  But what about everything else?  I  have two beautiful babies, that I get to help become wonderful people.  I have a few really amazing friends, a wonderful family.  Dispite being sick I make the most out of what God has given me. Sorry if I get a little worked up here, but it gets me going when people only think about the bad in there life.  Just remember that there is always and I mean ALWAYS someone out there who has it worse then you.   You know when I first got sick I took it really hard. And my thearapist told me that if I where to throw all my problems into a bowl and have everyone around me thorw theres in too. I would pick mine back out.  Because we know them, and even though we may hate them we trust them.  And I thought a lot about what she said a lot, and from time to time think about it some more. And you know what she was right. I would pick mine.  I know how to handle mine most of the time, and when I feel like I can't there is always someone right there with me to help me get through it.  And after they arnt so bad.  I don't know I think this contest is a really good idea thanks for sharing it.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Beth35
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« Reply #40 on: March 26, 2009, 05:28:43 PM »

MandaMe, I think you are right in many ways however I think people tend to sway back and forth when it comes to being "okay" with being sick.  There have been many times that I have said, "Hey I'm glad I have this disease and not that disease."  Or I'm just lucky to be alive.  And I am.  But there are good days and bad days.  Being in and out of the hospital all of the time is not fun.  Knowing that you are only alive right now because of a machine is not fun.  I think it's okay to say, "Hey this isn't fair. This sucks!"  I think it's also great to have a sense of humor about things.

I am so grateful for my kids and just being alive but I have to admit that I'd rather have lived my life WITHOUT this burden ya know?  There are times when I'm more "joyful" than others and I think that's normal.  I just tend to sway all over when it comes to my emotions on this.

I think you should totally enter the contest.  I'm sure we could all use that money! LOL!
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Found out I had kidney disease when I was 15.
Started dialysis when I was 20.
Got a kidney transplant when I was 25.
Kidney failed at 37 and I began my second journey on dialysis.
kitkatz
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« Reply #41 on: March 26, 2009, 07:27:05 PM »

http://ihatedialysis.com/forum/index.php?topic=416.msg3930#msg3930


I think we should send in Goofynina's answers to my rant to the contest
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Zach
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"Still crazy after all these years."

« Reply #42 on: March 26, 2009, 09:10:22 PM »


There is one thing that makes me joyful about being on dialysis.  I can go to a football game or the Zoo or some public place and I can be there all day and NEVER have to use the dirty bathrooms or porta potties.  That is the most awesome thing ever!  I could go six or seven hours without having to pee.  Just awesome.  People were so totally jealous of me for that. :rofl;


 :beer1;
Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
monrein
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Might as well smile

« Reply #43 on: March 27, 2009, 12:28:21 PM »

http://ihatedialysis.com/forum/index.php?topic=416.msg3930#msg3930


I think we should send in Goofynina's answers to my rant to the contest

I think we should enter that posthumously and if Susie wins, the money can help support this site.   Or go to her family if we prefer that option.  Admins could decide.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #44 on: March 27, 2009, 06:37:00 PM »

If it is all right with the admins I am going to put Suzie's answers together to make sense for the contest.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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