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Author Topic: The NEW guy! :)  (Read 3268 times)
ddawson77
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« on: March 25, 2009, 07:54:44 AM »
I everyone!  My name is Dave and I just joined the forum.  Believe it or not I am a salesman that is not very good at introducing himself, I am more one of listen to you type.  I am only 27, my kidney trouble came out of the blue when I was 21.  It september and I had been getting some really bad headaches, I put it off for a little while because heck I'm 21, I'm invincable!!!  So I thought.  A couple weeks had passed and I was still getting these headaches, so I finally went to the doc.  My bp was 220 over I don't remember.  So they gave me some meds and did some lab work.  Two days later they sent me to the hospital because my kidneys were failing.  I was able to get a little more than a year out of them but that follow dec I had to start dialysis.

I was able to find a living donor for a transplant, and had a transplant that following march.  But it wasn't long after my body started rejecting it but was able to get about three years out of it.

I had to start dailysis again in feb of 2008 and they are working with the Mayo to see if there was/is anything we can do to get a better transplant this time.  I was doing home hemo, 3 hours a night 5 times a week (I'm a big guy!) but we (my fiancee and I) didn't like that because it took all of our spare time.  We would come home from work and start setting up the machine.  So I convinced the clinic to let me go to nocturnal.  The trouble I had with that is that I could not sleep very long. I keep doing it for about 4 monts, getting about 2 hours of sleep everyother night, but it was killing me.  So about a month ago I went back to in clinic 3 times a week

I was working for a medical staffing company, but with the economy like it is, they were not willing to work with me.  So when I went back to incenter they told me I needed to get a FMLA with exactly what hours I could work.  Then they said they would reduce my pay hours by those hours, which I thought was completely understandable.  Then they told me they would not reduce my goals and I would be expected to produce the same as everyone else.  THEN to top it all off they said if I stayed late to make up they hours they would NOT pay me for them!!  So now I am looking at disability.

Wow I wrote a book here, if I left anything out let me know!!
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willieandwinnie
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« Reply #1 on: March 25, 2009, 07:59:05 AM »
 :welcomesign; Dave. Great introduction and I hope you can get another trasnplant soon. Please check out some of the older threads as they have a bunch of information. The search button at the top can really get you to some great information. Please post often and keep us updated on how things are going. Now I will go back and really answer you questions about disability. Again, welcome.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kellyt
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« Reply #2 on: March 25, 2009, 08:41:12 AM »
Hi Dave.   :waving;   It's nice to meet you.  I, too, hope you find another kidney soon.

What caused the rejection?   What anti-rejection meds were you on with your first transplant?  I just transplanted with a live donor in Nov.  I'm on Prograf and CellCept.  And Prednisone, of course, but hoping to be off that totally by the end of the year.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Run8
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« Reply #3 on: March 25, 2009, 09:09:23 AM »
Hello dave it is very nice to meet ya. You have found a great group of people here. Glad you joined.
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Wallyz
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« Reply #4 on: March 25, 2009, 09:38:26 AM »
Welcome. Go back to nocturnal home hemo,  you will live longer.  Figure out the job later.
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peleroja
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I have 16 hats, all the same style!
« Reply #5 on: March 25, 2009, 09:42:51 AM »
Hi, Dave, and welcome to the group.  I remember being in my 20s and feeling so invincible that I refused treatment for my high blood pressure.  Well, 40 some years later, here I am on dialysis.  Who knew?
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MandaMe1986
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« Reply #6 on: March 25, 2009, 10:14:37 AM »
Hi Dave, gald to have you. Hope to see you around! :clap;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Zach
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"Still crazy after all these years."
« Reply #7 on: March 25, 2009, 10:35:24 AM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
TeenHatesDialysis
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« Reply #8 on: March 25, 2009, 10:18:46 PM »
 :welcomesign; Dave,

I hope that you get a new kidney soon! Sorry that you are having a hard time sleeping....Having your blood recycled 20+ times a week is exhausting.  I know that there are some great threads here on sleeping problems.....Maybe you will find some information that will help you! 

This is a very supportive and entertaining group. I am glad you joined us!  :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #9 on: March 25, 2009, 10:49:51 PM »
 :welcomesign;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #10 on: March 26, 2009, 08:40:15 AM »
Welcome to our community, Dave!  No, your intro was not too long.  The founder of this site, Epoman, loved long intros.  You would get an A!  I totally understand your job frustrations.  I was on dialysis for two years from 2005 to 2007.  When my appointment came up for renewal ( I was a high school teacher without tenure - the contract was renewable every two years) they did not renew in spite of my excellent evaluations.
This is an excellent site for information, support, a place to rant, vent, rage or rave - even a place for fun.  We are a genuine family here  :grouphug; as you will find out if you hang around.
Looking forward to hearing more from you.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
David13
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A meow massages the heart.
« Reply #11 on: March 26, 2009, 08:50:19 AM »
Welcome, Dave!   :welcomesign;

I am hoping you are finding your way around the site and discovering all of the great information that is to be had here.  We are also a great source of support.

I hope to see you posting often!
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
Sluff
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« Reply #12 on: March 26, 2009, 07:37:59 PM »
Welcome to ihatedialysis.com

Welcome to our community!  This is exactly where you need to be. Read, and ask questions.  Rant and rave when you need to.  We have been there, so we know exactly how you feel.  This site is a source of strength and knowledge, and knowledge is power!


Sluff/Admin
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Joe Paul
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« Reply #13 on: March 26, 2009, 11:03:21 PM »
Welcome Dave, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
monrein
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Might as well smile
« Reply #14 on: March 27, 2009, 12:19:21 PM »
 :welcomesign;  glad you found us and joined.  I look forward to getting to know more of your story here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
ddawson77
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« Reply #15 on: March 27, 2009, 06:16:18 PM »
Thanks for all of the warm welcomes!!  I am very happy I did find this site, there is soooo much information available, and it just seems like a place you can lean on if you need something!!!!
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kristina
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« Reply #16 on: March 28, 2009, 06:34:36 AM »
Welcome and thanks for the introduction. Do you know what caused the rejection? Best wishes from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
G-Ma
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« Reply #17 on: March 28, 2009, 01:16:17 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
boxman55
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« Reply #18 on: March 29, 2009, 11:06:01 AM »
Welcome to IHD, Dave. Sorry to here about your problems at work I hope you ger it straightened out. Please look around the site and post often.


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
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