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Author Topic: Happy to be here!! I hope I can find the answers I'm looking for!  (Read 3206 times)
happyonhemo
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« on: March 28, 2009, 01:44:24 PM »
Hi Everyone! My name is Liza.I'm 49 and I currently live in the Tampa Bay area of Florida although I'm really a New Englander.I'm sure I'll end up back there but for now this is where I need to be.I started dialysis in1989 due to Lupus.It seems like the Lupus came,did it's damage,and then went away all before I knew I had it. I was on dialysis for 4 years and then I got a transplant(from a cadaver),That lasted 6 years and I've been on dialysis ever since(10 years).I've always done in-center hemo 3 times a week,3hrs 15mins.I started that way because my kids were young then and I could go while they were at school and then be there for them when they got home.Also, it was important to me to go to dialysis and then leave it all there when I came home so that my kids were not constantly reminded that their mother was sick.I wanted them to have a normal happy childhood and that meant not having to worry about me all the time.Recently,I started in-center nocturnal hemo and it was the best thing I ever did!I feel sooo much better physically and mentally and I didn't think I was feeling that bad to begin with.My phosphorus is in the normal range for the first time in 10 years and everyday is a good day now,not just the off-dialysis days.Now the next step for me is home hemo and then all will be right but I'm having trouble finding what I need to make this happen.I guess I'll go to the home hemo section to look for some answers and if I can't find them I'll post my questions there.See ya!
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MandaMe1986
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« Reply #1 on: March 28, 2009, 01:50:29 PM »
Hi Liza  :waving; Well I am 23 with Lupus and seems it has done some danage to my kidneys too.  So it will be nice to get to know you and some of the stuff you have gone through.  Hope to see you around!
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
willieandwinnie
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« Reply #2 on: March 28, 2009, 01:54:45 PM »
 :welcomesign; Liza. Glad you found us and we do have lots of information and support. If you can't find what you are looking for, ask away, we will answer. Please post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
G-Ma
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« Reply #3 on: March 28, 2009, 01:58:52 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
monrein
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Might as well smile
« Reply #4 on: March 28, 2009, 03:30:33 PM »
 :welcomesign; Liza.  Nocturnal is a terrific option and it's great to hear how well you're doing on it.  Now, you can start doing your own needles and try it at home.  If you don't like it you can always go back in-center I assume.  I look forward to getting to know you better through this site.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Joe Paul
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« Reply #5 on: March 28, 2009, 03:39:53 PM »
Welcome Liza, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
kellyt
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« Reply #6 on: March 28, 2009, 04:08:38 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Razman
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« Reply #7 on: March 28, 2009, 04:26:19 PM »
It's great that you joined. I'm not on it yet my my plan is to be on home nocturnal asap.  I have only heard good things about it.   Please stay in touch and let us know how things work out. 
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peleroja
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I have 16 hats, all the same style!
« Reply #8 on: March 28, 2009, 06:38:56 PM »
Welcome aboard, Liza.  Lots of good information here.  Come on back and post often.
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boxman55
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« Reply #9 on: March 29, 2009, 11:01:12 AM »
Welcome to IHD. Glad you joined and help is here for you just ask questions. I look forward to your posts.

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Zach
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"Still crazy after all these years."
« Reply #10 on: March 29, 2009, 11:10:48 AM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
TeenHatesDialysis
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WWW
« Reply #11 on: March 29, 2009, 01:19:50 PM »
 :welcomesign; Liza,

Great information and support here 24/7!

 :flower;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
Marsh
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« Reply #12 on: March 29, 2009, 05:24:14 PM »
Hi Lisa!!!  I'm pre-dialysis and I live in Clearwater.
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