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Author Topic: I just spoke to twirl  (Read 4087 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: March 20, 2009, 10:51:24 AM »

For those who were wondering, I just spoke to twirl - she is fine - has had computer trouble AND also problems with logging in - she hopes to have her computer repaired or replaced soon. She said she misses everyone!

Come back soon twirlie girl!  :flower;

PS: If you see her signed in the next few minutes, it is because I am going to try resetting her password, so she isn't actually the one logging in, it's me.

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #1 on: March 20, 2009, 10:54:15 AM »

I have something for Twirl. I will send it in the mail. Hehehehe!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #2 on: March 20, 2009, 02:38:48 PM »

Things just aren't the same without Twirl around.   We miss you!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
mikey07840
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Her royal highness Queen Ruth on her throne, RIP

« Reply #3 on: March 20, 2009, 02:44:09 PM »

King Leon and I love our Twirl.  :cuddle;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
MandaMe1986
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« Reply #4 on: March 20, 2009, 02:49:39 PM »

Yes Yes Miss Twirl needs to come back soon...  :clap;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
David13
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A meow massages the heart.

« Reply #5 on: March 20, 2009, 02:59:33 PM »

Thanks so much for the update, Karol.
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
willieandwinnie
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« Reply #6 on: March 20, 2009, 03:53:27 PM »

 :grouphug; Thanks okarol. twirl, I miss you girl. I have been having trouble logging in myself and now Len and I are off to see our granddaughter in her play. talk to you soon..  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
G-Ma
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« Reply #7 on: March 20, 2009, 06:20:39 PM »

 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
MIbarra
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Stopping to smell the bluebonnets

« Reply #8 on: March 20, 2009, 06:48:09 PM »

Twirl, hurry up and get a new computer! You are needed here!  :waving;
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Cadaver transplant April 29, 2007
Wattle
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« Reply #9 on: March 20, 2009, 10:25:34 PM »

 :waving;  Hey Twirlly girl....

Hurry up and get your computer fixed!!    :cuddle;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
MiSSis
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« Reply #10 on: March 21, 2009, 08:52:29 AM »

I hope you're not suffering too much from IHD withdrawal Twirl.  I know I paniced a little when I wasn't able to log in at first.  Stupid me ... I'd forgotten about the update.  Hang in there...hopefully it won't be for too much longer.   :flower;
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"Keep your face to the sunshine and you will not see the shadows."  Helen Keller
twirl
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« Reply #11 on: April 05, 2009, 05:58:13 PM »

I talk to her everyday and it is no big deal  :urcrazy;
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pelagia
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« Reply #12 on: April 05, 2009, 06:21:45 PM »

One more and you can do the "Three Faces of Twirl."
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
twirl
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« Reply #13 on: April 06, 2009, 04:37:42 PM »

 :yahoo; :yahoo; :yahoo; :yahoo;
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