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paris
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« on: September 09, 2006, 02:16:50 PM »
Diagnosed Nov."04 with FSGS. Not on dialysis yet. Dr. had hoped for transplant before dialysis. I  have been on the transplant list since Dec.'05, but after testing several living donors, it has been determined that my antibodies are extremely high and will reject even a good match. Johns Hopkins now has my medical records to see if I can be accepted in their plasmapheresis program.  So, more waiting and testing. Kidney failure is teaching me patience and acceptance. I am good at neither!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Black
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« Reply #1 on: September 09, 2006, 02:41:04 PM »
 :welcomesign;
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
goofynina
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He is the love of my life......
« Reply #2 on: September 09, 2006, 03:06:10 PM »
Hello Paris and Welcome.  I am so glad you found us, especially at this time where i am sure you have so many questions.  Please feel free to look through our thousands of posts for some of your answers and if you do not find what you are looking for, please, do not hesitate to ask.  You are not alone, there are many members here that are going through a similar situation.  Please feel free to post comments and concerns as well,  We look forward to hearing more from you... :)
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....and i think to myself, what a wonderful world....

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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #3 on: September 09, 2006, 04:12:31 PM »
 :welcomesign; to our community.  This is just the place for you to be. This is a caring and sharing community, and I am sure it will be a great help to you in days to come.  Feel free to vent when you need to, ask questions, answer some and generally feel yourself a part of this interesting community.  :grouphug;  Welcome again.  Looking forward to hearing more from you.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Rerun
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Going through life tied to a chair!
« Reply #4 on: September 09, 2006, 07:19:54 PM »
Hi Paris.  This site is where you need to come when your patience are running thin.  You can come here where we all have one thing in common ESRD.  Please read the site rules and regulations. http://ihatedialysis.com/forum/index.php?topic=540.0

There is a lot to read, so just browse the topics your are interested at first.  Have fun.   :welcomesign;
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Zach
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"Still crazy after all these years."
« Reply #5 on: September 09, 2006, 09:19:17 PM »
Hi Paris!
Welcome to the site.
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Sluff
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« Reply #6 on: September 09, 2006, 10:36:25 PM »
 :welcomesign; 
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Joe Paul
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« Reply #7 on: September 10, 2006, 01:27:30 AM »
Welcome paris, glad to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
mallory
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« Reply #8 on: September 12, 2006, 09:39:16 AM »
Welcome, Paris!  Kidney failure sure does teach you patience, I'm not doing very well with the acceptance part, myself.  Glad you're here, and keep posting!
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
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angieskidney
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« Reply #9 on: September 23, 2006, 03:35:05 PM »
Welcome!  :welcomesign; I was gonna ask you what plasmapheresis is but then I realized I should ask you to eventually make a new thread telling about it since this is just the intro section! ;)

I am glad you are here! You can teach us a few things!  :2thumbsup; :clap;
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Bajanne
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« Reply #10 on: September 23, 2006, 05:05:21 PM »
Quote from: angieskidney on September 23, 2006, 03:35:05 PM
I was gonna ask you what plasmapheresis is but then I realized I should ask you to eventually make a new thread telling about it since this is just the intro section! ;)
Of course you can ask to explain a word.  That rule means that the person introducing themselves should not use this section to ask questions concerning dialysis, etc., but should start a thread if they need info.
I, too, want to know what plasmapheresis means!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Rerun
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Going through life tied to a chair!
« Reply #11 on: September 23, 2006, 09:30:47 PM »
This intro is almost a "month" old.  This has already been explained.  I'll try and find it for you two.

Here -  http://ihatedialysis.com/forum/index.php?topic=1319.0
« Last Edit: September 23, 2006, 09:34:42 PM by Rerun » Logged
angieskidney
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« Reply #12 on: September 23, 2006, 09:49:09 PM »
Quote from: Rerun on September 23, 2006, 09:30:47 PM
This intro is almost a "month" old.  This has already been explained.  I'll try and find it for you two.

Here -  http://ihatedialysis.com/forum/index.php?topic=1319.0
Thanks Rerun!!  :2thumbsup; :clap; :2thumbsup; :cuddle;
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
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