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Author Topic: How many meds do you take?  (Read 3569 times)
Jess21
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« on: February 14, 2009, 06:08:28 PM »

Just seeing...
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Deanne
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« Reply #1 on: February 14, 2009, 06:53:33 PM »

Not all prescription:

Iron -- 3x day
Calcium -- 3x day
Fish oil -- 3x day
aspirin
lisiniprol
lasix
norvasc
zetia

Fosamax once / week
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
monrein
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« Reply #2 on: February 14, 2009, 07:53:24 PM »

Dilantin  (for epilepsy)
prednisone
prevastatin
renagel
Replavite
Fish oil
coenzymeQ10

Only the first four are prescription meds.



This is a huge decrease from transplant time when I had 6 more prescriptions.
« Last Edit: February 14, 2009, 08:25:28 PM by monrein » Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kellyt
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« Reply #3 on: February 14, 2009, 08:00:43 PM »

Currently taking 10 scripts, but these will start to decrease in about three months.  And these meds are anti-rejection, blood pressure and cholesterol only.   Not including the prn meds I take for allergies and mild asthma.   I feel so old.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Tinah1968
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ME

« Reply #4 on: February 14, 2009, 08:03:42 PM »

I take
Diovan
Altace
Fish Oil
allipurinol
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
swramsay
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« Reply #5 on: February 14, 2009, 08:16:15 PM »

If you include supplements:
Renvela
Calcium acetate
Estrogen/Progesterone/DHEA
B12/Folate
C
Milk Thistle
Omega 3
Zinc

If you just want pharmaceuticals, then only the Renvela and Calcium Acetate for phosphorus at home. I don't know exactly what they give me at the dialysis center...iron, D, epogen...

As a matter of fact, I am going to search for topics on supplements. I am so used to taking many more than I am currently but learning about the effects of supplements with no kidneys is daunting. I want to make sure I am doing the right things. I have seen an amazing oncologist/naturopath for years. I can tell the kidney thing has thrown him a bit too.

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JUST KEEP GOING.
March 2009: NxStage Pureflow Home Dialysis 5-6 x's week
Sept 2008: In center dialysis
Sept 2008: Left kidney removed (bladder cancer)
April 2006: Right kidney removed (bladder cancer). Chemo for lymph node mets.
April 2004: Bladder removed plus hysterectomy & neobladder made (bladder cancer)
Feb 1994: Original bladder cancer diagnosis & beginning of this journey

www.marykay.com/wramsay
Restorer
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« Reply #6 on: February 14, 2009, 08:58:13 PM »

Every day:
Benazepril 20 mg - blood pressure
Renvela 3x800mg with each meal - phosphorus binder
Fosrenol 750 mg with each meal - phosphorus binder

Some days:
Tylenol 500-1000mg as needed - pain relief

Every two weeks:
Epogen 20,000 U - to treat anemia

And then a couple times a year, I have 5 sessions of Venofer infusions (iron), 2 vials in a bag of saline each session.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
deafman
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« Reply #7 on: February 15, 2009, 03:13:22 AM »

I am not sure if you meant while on dialysis or transplant?

This is mine

cyclosporine - anti rejection
mcopyphenolate - anti rejection
prednisolone - anti rejection
amlodipine - blood pressure
atenolol - blood pressure
diltiazem - to increase the effect of cyclosporine
ramipril - blood pressure
pravastatin -  lower celesterol level.
bactrim - protection against Melioidosis which exist in my local area during the wet season.

Deafman
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boxman55
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« Reply #8 on: February 15, 2009, 10:11:41 AM »

 take so much crap I had to do my list as an attachment...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Chris
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« Reply #9 on: February 15, 2009, 11:42:45 AM »

I have a long list also and probably more to add later, so here is the form I always use to bring to the hospital and doctors office. I just took off personal information to post.
« Last Edit: February 15, 2009, 09:37:56 PM by Chris » Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
elvisxm
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« Reply #10 on: February 15, 2009, 02:24:24 PM »

Allopurinol
Fosrenol
Metoprolol (thankfully not the recalled variety)
Norvasc
Rena-Vite
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MIbarra
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Stopping to smell the bluebonnets

« Reply #11 on: February 15, 2009, 03:49:27 PM »

anti rejection:  prograf   cellcept   prednisone
blood pressure: atenelol   guanfacine   clonidine   atacand
insulins:   novolog and lantus
others:   furosemide   bactrim    aspirin   multi-vitamin   lipitor

and nexium to save my stomach from all this junk!  But I have a good enough functioning kidney right now! And it is all worth it.
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Cadaver transplant April 29, 2007
paddbear0000
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« Reply #12 on: February 15, 2009, 03:51:39 PM »

Novolog insulin (in insulin pump)
Nephrocap (renal vitamin)
Benazaril 15 mg (blood pressure)
Levothyroxine 75 mcg (hypothyroidism)
Simvastatin 40 mg (cholesterol)
Flonase (allergies)
Calcitriol 0.25 mcg (vit. D deficiency)
Cymbalta 60 mg (depression)
Wellbutrin 100 mg (depression)
Ativan 1 mg (anxiety)
Ambien 5 mg (insomnia)
Phenergan 25 mg (nausea/vomiting)
Aspirin 81 mg (prevent heart trouble)
Omega 3-6-9 (prevent heart trouble)
Tums (calcium)

At dialysis:
Epo 6000 units (3x a week at session)
Iron (2x a month)

Temporarily (for graft surgery):
Vicoden 5/500mg as needed

And this does not include all of my prescriptions for diabetes supplies (test strips, lancets, insertion sets for pump, reservoir sets for pump, insulin pump, glucometer, ketone strips, glucagon emergency kits, and a long-acting back up insulin).
« Last Edit: February 15, 2009, 03:57:46 PM by paddbear0000 » Logged

********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
BRANDY
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« Reply #13 on: February 15, 2009, 07:50:58 PM »

Im curious, Im reading what meds you take but I dont see any pain meds on your lists. I thought dialysis patients hurt why not take pain meds?
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Adapt and Overcome
 
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
  Im diabetic with neuropathy, ckd ,bad back bad neck
RichardMEL
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« Reply #14 on: February 15, 2009, 08:03:03 PM »

Im curious, Im reading what meds you take but I dont see any pain meds on your lists. I thought dialysis patients hurt why not take pain meds?

the only "normal" pain during dialysis is the entry and exit of the needles... and most of the time even that doesn't hurt (specially in a mature strong fistula the skin gets tough and most of the time needles don't hurt at all).. so no, I don't think pain meds are normal to have.

If you're expecting a lot of pain Brandy please be reassured that in the normal course of events there isn't much at all. I had a local the first time I was needled and haven't had one ever since. :)

Now for my daily meds...

2 or 3 x renagel 800 (with food - phosphate binder)
1 x calcitricol 0.25mg
1 x sensipar 30 (this stuff is awesome!)
1 x zyloprim (for gout)

non daily meds include monthly iron infusion @ dialysis, and evern 3 weeks aranasp 50 for hemoglobin.

all in all not too bad.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Slywalker
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« Reply #15 on: February 16, 2009, 09:30:54 AM »

During my many years of kidney failure the number of meds increased almost every year - I was once up to about 12 prescriptions - I think back now and I'm amazed.  Now post transplant I'm on high blood pressure, cholesterol, allergies  and only one anti-refection med (Prograf) med, even the electrolyte additives have been discontinued.  I'm thankful for my new found health with my donated kidney.

Sandyb

 :bunny:
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Chris
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« Reply #16 on: February 16, 2009, 03:08:55 PM »

I started out with less meds after transplant, no bp meds,, no cholesterol meds, etc, but as time went only new ones were added and I had to go back on bp meds. I'm just use to taking meds though, so it doesn't bother me much unless it is a horse pill.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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