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Author Topic: Introduction  (Read 4460 times)
Kidneyboy61
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« on: January 25, 2009, 07:44:15 PM »
Hi everybody, My name is Charlie, I'm 47 Years Old and Live in The Columbus Ohio Area. I've Been A Dialysis Patient For a Year and A Half. The First year on Hemo, And now on PD. Before my Present Predicament, I was a Trucker, and Delivered Freight around the Lower 48. Now Except For an Occasional Road Trip to my In laws in PA, I'm stuck Here. Freedom Was a Big Part of my life, and I miss it Terribly, So,I Got my Motorcycle permit and am Thinking about the Open road on the Back of a Harley (Much to my renal Doctors Dismay). Actually it will Probably be a Cheap Piece of junk (I'll get the Harley after I Hit The lottery or Find Gold in my Toilet or Something). My Social worker at Davita "Turned Me On" to this Website, and It looks like a Fine Site. I'm not exactly The perfect Patient. My Diet Is Horrible, I still Like an Occasional Bottle of "Sam Adams", well, maybe more than Occasional, and I'm a Fast food Junkie. My Phosphorus Levels are Always Through the Roof, but I'm sure One Day I'll see the Light and Live on Tofu And Spring water Like My doctor wants me To. Like you I find Hemo Dialysis to Be Quite Uncomfortable. I used to Feel like I was A prisoner in some Goofy Jail, Where the Techs had Complete Control over You for 4 hours. I actually went there once after Attending The Columbus "Octoberfest", I had a Necklace on That Featured Tiny Plastic Beer Steins, And yes I had A "Few Too Many"but Hey I'm only Human. Man they were Mad ,But I don't Know whether They were Mad Cause I was Cockeyed, or Whether They were Stuck inside with 20 senior Citizens While The rest of the world Was Having a Party. Well I'm starting To Ramble, so , Nice to meet you All, and remember , Since we have extra toxins in our blood, I'm pretty Sure We are safe From Vampires. ---------------------Later
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Wenchie58
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Always carrying the big silly grin!
« Reply #1 on: January 25, 2009, 08:51:54 PM »
Great intro Charlie!  Welcome to the group!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Chris
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« Reply #2 on: January 25, 2009, 09:09:08 PM »
Heck I would be laughing my butt off if someone came in blitz/ cockeyed or something to liven the place up.  :rofl; :rofl;

Atleast with PD you have more freedom of what you can have to eat and drink compared to hemo. I would hate to meet your doc, I'd tell him where he can stick that tofu crap! Doesn't sound like a realistic doctor to say thatwhen he knows a little about your past.

When I was on dialysis, I did cheat to and I believe most of us do on occassion. Just get your phosphorus and potassium under control and you'll be ok.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Wallyz
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« Reply #3 on: January 25, 2009, 09:22:35 PM »
Welcome!  Look into nocturnal home hemo.  A lot less diet restrictions.
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Joe Paul
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« Reply #4 on: January 25, 2009, 10:00:23 PM »
Welcome Charlie, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #5 on: January 25, 2009, 11:31:07 PM »
Welcome to our community, Charlie!  Loved your intro!  I can see that you are about to join the group of 'characters' that we have in our IHD family.  :grouphug;  I understand what you are saying about freedom.  These days I am only a weekend traveller.  But I am so thankful for the many years of travelling I have already had and am grateful that dialysis is at least keeping me alive to see my grandson grow up.  Be careful about your phosphorus, though.  The eventual results of poor phosphorus management are not pretty.  Do you take your phospate binders regularly (the pot asks the kettle)?
Give your social worker a hug from me -  :cuddle;
Please take advantage of all this site has to offer.  Read a lot and post alot.  There is a loads of information here, lots of support and barrels of fun. (Our administrator, Sluff, is a Harley guy)
Looking forward to hearing more from you.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
circleNthedrain
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« Reply #6 on: January 26, 2009, 12:15:47 AM »
Welcome Charlie from another ex-trucker.  I hope you post often.
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
monrein
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Might as well smile
« Reply #7 on: January 26, 2009, 05:00:13 AM »
 :welcomesign;  Charlie.  Hope you'll post often here and I can join your doctor in saying "It's your life and your body, look after yourself buddy".  This stuff isn't easy but please take your binders and practice responsible cheating.  See, we care already and don't even know you yet.  You are of course welcome to ignore anything we might say, just like your doctor.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paul.karen
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« Reply #8 on: January 26, 2009, 05:26:47 AM »
Hey Charlie welcome to the site.

Hope to see you post often
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
willieandwinnie
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« Reply #9 on: January 26, 2009, 05:43:40 AM »
 :welcomesign; Charlie. What a great introduction. Your going to fit in nicely around here.  :clap; We are a great group and can offer bunches of information and support. Please post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Razman
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« Reply #10 on: January 26, 2009, 04:51:00 PM »
Quote from: Kidneyboy61 on January 25, 2009, 07:44:15 PM
Since we have extra toxins in our blood, I'm pretty Sure We are safe From Vampires.

Kidney patients have said that they can go camping and the mosquitoes won't even bother them, so I guess it's the same for Vampires !!!

Its great that you joined , please stay in touch.
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G-Ma
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« Reply #11 on: January 26, 2009, 04:54:28 PM »
 :welcomesign; to a great group of people.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
petey
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« Reply #12 on: January 26, 2009, 05:18:19 PM »
Welcome, Charlie!  It's good to have you join the family.

My husband Marvin has been a dialysis patient (mostly hemo) for the better of 14 years.  He's on home hemo now, and we have found that we love this modality.  Like Monrein said, try to practice "responsible cheating."  Over all these years, Marvin has found that if he denies himself the things he really, really loves to eat (but shouldn't eat), it just makes him crave them more.  He occasionally "cheats" and has small portions of those "no no" foods.  Of course, he gobbles binders like they're candy after he cheats (he says he can open his mouth to speak, and I'm tossing a binder or two in  :rofl; ).  You still have to find some "joy" in life, and if it's eating a LITTLE of the things you shouldn't eat, Marvin and I think that's okay.

Visit and post often.
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Normie
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Ellie
« Reply #13 on: January 26, 2009, 09:31:58 PM »
 :welcomesign;  Charlie.

Great to have you here.  You sure have a sense of humor.  I am glad to learn that we don't have to worry about Mosquitoes or vampires. :)

Keep posting,

Normie
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Normie

Kidney damage 4/22/07

Predialysis
idahospud
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« Reply #14 on: January 27, 2009, 04:14:19 AM »
 :welcomesign;
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boxman55
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« Reply #15 on: January 27, 2009, 05:43:31 AM »
Welcome Charlie to IHD this kidney stuff does effect the life you once led. being spontaneous is impossible and drives me crazy. Hope you post often and again welcome

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
pam49
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« Reply #16 on: January 27, 2009, 06:17:27 AM »
 :bunny:  Gosh you sound alot like me.And I live in Columbus Ohio too.My levels are always high and I have a hard time sticking to my diet.I sometimes have a few bud lights (my favorite) and I smoke(trying to quit).






Edited: Fixed smiley error - paris, Moderator
« Last Edit: February 03, 2009, 04:13:33 PM by paris » Logged
with God all things are possible!
Find beauty in all things
Romona
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« Reply #17 on: January 27, 2009, 02:06:52 PM »
 :welcomesign;
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jessup
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Gemma - the tucker monster
« Reply #18 on: February 03, 2009, 01:48:03 AM »
G'day and  :welcomesign; mate
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pelagia
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« Reply #19 on: February 03, 2009, 03:33:55 AM »
 :welcomesign; 
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paris
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« Reply #20 on: February 03, 2009, 04:20:13 PM »
 :welcomesign;   Great introduction and love you sense of humor!   I am from Columbus (now in NC) --family is all still there.  Graduated from Groveport HS and went to Ohio State.   Still have to visit to get my White Castle and Donatos fix!  I think you will like it here.   There is tons of information, great support and people who really understand what you are talking about.  Looking forward to reading more of your posts.    :2thumbsup;





paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Dan.Larrabee
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Dialysis Dan
« Reply #21 on: February 03, 2009, 06:16:27 PM »
You’re in inspiration already. I have never thought of cheating on my diet.  I am on home hemo now and just asked for a cold one. “Yeah right” was the answer. Maybe I need to practice my clamp cut and run procedure.

 :welcomesign;
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AKA Dialysis Dan
Feeling the best I can because of Home Hemo
Doing it the best way I can by making it Nocturnal
Sharing it to help everyone feel they best they can
www.youtube.com/dialysisdan
drinkboy
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« Reply #22 on: February 04, 2009, 09:43:37 AM »
Welcome Charlie...you're gonna fit in great around here.  Hope to see more posts from you in the future.
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Tinah1968
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ME
« Reply #23 on: February 06, 2009, 10:27:56 AM »
welcome Charlie
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
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