kin2pt
Newbie
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Posts: 3
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« on: January 29, 2009, 09:51:15 AM » |
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Hello all,  I am the caretaker of a family member with kidney disease and I have some things to say !!! Thanks for giving me the vehicle to speak out!  |
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paul.karen
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« Reply #1 on: January 29, 2009, 09:58:03 AM » |
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 Kin Yup this is a good place to vent, get great info and just talk to people in a similar circumstance. Hope to see you on many of the threads. P&K |
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
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MandaMe1986
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« Reply #2 on: January 29, 2009, 10:17:35 AM » |
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Hi Kin! Well rant away, we are happy to have you.  |
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.
Matthew 5:3-9
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willieandwinnie
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« Reply #3 on: January 29, 2009, 10:29:55 AM » |
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 kin. I too am a caregiver and I have spoken out plenty. Hope we can answer your questions and support you when you need a rant. Please post often.  |
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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Bajanne
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« Reply #4 on: January 29, 2009, 10:50:18 AM » |
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Welcome to our community! You have come to the right place. Here everyone has a voice and is encouraged to use it. So feel free to rant, vent, rage or rave!!! I am particularly gratified when people join our group because of their love and concern for a loved one! You see, this is not just a website - this is family  So you just post as much as you like. Looking forward to hearing from you.  Bajanne, Moderator |
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"  I LOVE my IHD family! |
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monrein
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« Reply #5 on: January 29, 2009, 10:59:00 AM » |
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Looking forward to hearing what you have to say. Glad you found us.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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G-Ma
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« Reply #6 on: January 29, 2009, 11:37:01 AM » |
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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Sluff
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« Reply #7 on: January 29, 2009, 12:19:37 PM » |
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The floors yours kin2pt .
We are here for you. Thanks for joining our family.
Sluff/Admin
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Romona
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« Reply #8 on: January 29, 2009, 12:28:49 PM » |
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Normie
Jr. Member
Offline
Gender: 
Posts: 89
Ellie
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« Reply #9 on: January 29, 2009, 02:54:02 PM » |
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Hi Kin and Glad you found us. This sure is a great place to rant and rave when you need to. Welcome to the family. Normie |
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Normie
Kidney damage 4/22/07
Predialysis
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Joe Paul
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« Reply #10 on: January 29, 2009, 07:33:40 PM » |
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Welcome kin2pt, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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kellyt
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« Reply #11 on: January 29, 2009, 08:14:11 PM » |
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It's always good to hear from the Caretakers! We all appreciate the Caretakers!!
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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Mimi
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« Reply #12 on: January 29, 2009, 09:26:10 PM » |
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Welcome Kin. Well go ahead and let her rip. Everyone understands.
Love, Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
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Hilrose
Newbie
Offline
Gender:
Posts: 37
Me and my sister 09/08
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« Reply #13 on: January 30, 2009, 07:13:57 AM » |
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hilrose- hemodialysis patient since April 2007
Transplanted from living donor March 2007 and failed
Kidney rejected August 2008 no longer considering removing
No longer on waiting list 2008
Neverless very happy to be alive!
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boxman55
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« Reply #14 on: January 30, 2009, 04:15:32 PM » |
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Hi Kin, we are so glad you found us. It can be tough being a caretaker and we are here to help if we can. Please post often with your questions or if you just want to scream
Boxman,Moderator
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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kin2pt
Newbie
Offline
Posts: 3
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« Reply #15 on: February 01, 2009, 02:04:57 AM » |
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Thank you all for your welcome!!! I am afraid of nothing anymore and it will be my pleasure to speak up and to speak out!!!!
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Dan.Larrabee
Full Member
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Gender: 
Posts: 150
Dialysis Dan
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« Reply #16 on: February 01, 2009, 02:10:56 AM » |
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Thanks for taking care of one of us mechanical kidney people! Rant away, i would love to hear what my care giver may not be telling me.
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AKA Dialysis Dan Feeling the best I can because of Home Hemo Doing it the best way I can by making it Nocturnal Sharing it to help everyone feel they best they can www.youtube.com/dialysisdan |
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paris
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« Reply #17 on: February 01, 2009, 04:49:10 PM » |
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We have been waiting for you! Glad you found us! This is just the place for you to yell and scream. There are many caregivers here who will be give you a shoulder to lean on. Welcome!!
paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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jessup
Sr. Member
Offline
Gender:
Posts: 773
Gemma - the tucker monster
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« Reply #18 on: February 03, 2009, 01:45:04 AM » |
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G'day and mate |
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pelagia
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« Reply #19 on: February 03, 2009, 03:37:47 AM » |
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and fell free to tell us a little more about yourself and your situation.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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Tinah1968
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« Reply #20 on: February 03, 2009, 11:37:20 AM » |
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Glad you found us anything you have to say we are ready to hear. We all have our rants as well Welcome
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
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