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Author Topic: Wife of PD  (Read 3428 times)
bwisern
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« on: January 10, 2009, 06:56:24 AM »
Hi everyone, glad to have found this site. Let me introduce myself.  The name is Bren, and  I am the mother to 3 great kids: 2 boys and a girl, and married my husband since 1995. I am also an RN, but primary background is OB, general Med/Surg.  In 1997  hubby was diagnosed with IgA Neph with renal insufficiency at the age of 27. For the last 10 years we have been on the roller coaster of CKD.  Have retired 2 great Neph's and breaking in the 4th one (we won't talk about the first one, the only thing he did for us was get the kidney bx and confirm the diagnosis, other than that he was a quack!!) Over the last 2 years we were on the roller coaster  fluctuating creatinine levels and of "better get the shunt in........no, let's wait".  In July of '08 he reached 14% function, was feeling like crud, but his doc wanted to wait 2 months to see if his creatinine would drop back down.  Well, it didn't so he had surgery on Sept 19 to have his PD cath and AV fistula placed.  He has been doing PD since October 6 and just got set up on the cycler in December. He still hasn't gotten much energy back, having pain on the cycler.  Now is looking at having to have a second surgery on his AV because it may have a vein branching off of it. 

He was devastated when we had to start dialysis.  ( I say "we" in starting dialysis, because he is the patient, but it does impact all of us). I tried to tell him that it isn't a "death sentence" but is his life line. I think he is adjusting. I am glad for a place like this to get info, support and vent when needed. (I am in the need of a serious vent right now)  I welcome any, all advice from anyone who shares our fears, concerns, experiences.  I hope to make contact with other spouses, as I truly think that we need to support each other.

Thanks for the op to intro myself!

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willieandwinnie
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« Reply #1 on: January 10, 2009, 07:11:55 AM »
:welcomesign; Bren. I am so happy you found us. Lots of great information and support here. I too am a caregiver (not a nurse though, so you have an advantgage there) to my husband. He lost his kidneys suddenly in 2001 and we went on home hemo in 2003. He received his transplant in Sept 07 and we are still having a rocky road. This is a great place to rant and there is a caregivers section for just us. You should have your husband join also since I'm sure he would get some great support from the members here. Hope we hear more from you and you post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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« Reply #2 on: January 10, 2009, 07:48:08 AM »
 :welcomesign;  Bren, you and your family are already on the roller coaster so you might as well be on IHD which should help to level out some of the bigger bumps with great information and support.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
thegrammalady
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« Reply #3 on: January 10, 2009, 07:52:28 AM »
 :welcomesign; this is the best possible place to land
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
bwisern
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« Reply #4 on: January 10, 2009, 07:53:45 AM »
:thx; for the replies, I have been reading through alot of the boards and don't feel so alone now.  It is great being a nurse, I have the background to help, but other times it's a hindrance also.  There have been times that because I am a nurse, I don't feel like we have been fully informed, it's assumed that I know what to do.....I have delivered babies for the last 8 years.  there is a BIG difference from a uterus and a kidney  ;D.  Hubby is not a man of many words, but I hope that he will check this site out. I am heading over to the caregiver site- i need to purge some feelings and don't want to do that here LOL
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peleroja
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« Reply #5 on: January 10, 2009, 08:34:03 AM »
Welcome, Bren.  You have found the #1 place for great information and shoulders to cry on.  Keep us posted on how hubby is doing.
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Wenchie58
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Always carrying the big silly grin!
« Reply #6 on: January 10, 2009, 08:51:33 AM »
 :welcomesign;

Welcome to the group! 
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Razman
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« Reply #7 on: January 10, 2009, 09:41:20 AM »
It is a roller coaster ride but  you found the best place to talk to others that will understand.   :welcomesign;
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Joe Paul
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« Reply #8 on: January 10, 2009, 10:05:57 AM »
Welcome Bren, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
jessup
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Gemma - the tucker monster
« Reply #9 on: January 10, 2009, 10:09:28 AM »
G'day and  :welcomesign;
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boxman55
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« Reply #10 on: January 10, 2009, 03:50:53 PM »
Welcome Bren, We love ranting women on this site. We already have a few pros so join in. I look forward to your posts

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
lola
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« Reply #11 on: January 10, 2009, 05:35:13 PM »
 :welcomesign; Bren, my husband Otto is on Home-Hemo...... vent away :cuddle; Amy(lola)
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www.caringbridge.org/visit/ottomachado
Wattle
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« Reply #12 on: January 10, 2009, 07:11:53 PM »
 :waving;  Hi Bren and family!

I am also on PD. The rollercoaster gets easier the longer you have been on the ride!   :cuddle;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Romona
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« Reply #13 on: January 10, 2009, 08:31:18 PM »
 :welcomesign;
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pelagia
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« Reply #14 on: January 10, 2009, 09:23:42 PM »
 :welcomesign;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #15 on: January 11, 2009, 12:59:46 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paul.karen
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« Reply #16 on: January 12, 2009, 10:16:44 AM »
:waving;  Bren and family

A PD and a fistula.  My neph told me only one or the other.  I haven't said anything YET but have to ask him what will i do if my Cath screws up??  I would like to have a fistula in case of an emergency. Better that then the other option.

Hope to see you all around the boards and welcome.

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
bwisern
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« Reply #17 on: January 12, 2009, 06:13:48 PM »
Our surgeon said that is the only way he would do it, and it makes sense to us.  It has time to mature and no real care for it other than the exercises, and if we ever need it, it's there.  If your under anesthesia why not do both.  Have to let me know how it goes!
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #18 on: January 13, 2009, 02:05:21 PM »
Welcome to our community, Bren!  I can see that you already 'get it'!  This is the place to be.  I hope that your husband will take some time to check us out. This is a great place for information and support and an excellent outlet for ranting and venting!  We are more than a website; we are a genuine family  :grouphug;  Keep reading and keep posting.  Let us know how you two are doing.
Looking forward to hearing from you.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
paris
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« Reply #19 on: January 21, 2009, 07:42:15 PM »
 :welcomesign;   We are glad you joined us.  Your husband is fortunate to have you.  Being the caregiver is hard.  This is a great place for both of you.  Post often   :grouphug;






paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
petey
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« Reply #20 on: January 22, 2009, 01:54:31 PM »
Hi, Bren!  Welcome to our family.

I, too, am a caregiver (to husband Marvin, who started on in-center hemo in March of 1995 -- got a living donor -- ME -- transplant in July of 2000, and has been back on hemo since October of 2003 -- HOME HEMO since July of 2007).

I like the way you said "we" because I feel like I've been right there with my Marvin every step of the way.  It's his body, but the disease affects us both.

I'm a high school English teacher, but many days, I feel like a nurse (I have read and researched so much about kidneys, dialysis, transplantation, etc.), and, of course, I'm his dialysis partner six days a week.  I know way more "medical" stuff that your average school marm.  Ah, well, such is my life.

I look forward to your posts.
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breezysummerday
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« Reply #21 on: January 25, 2009, 08:28:51 AM »
Hello Bren
I am a caregiver too
And a Medical Assist in L/D

Meconium happens, eh?   ;)
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
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