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Author Topic: Hello everyone, I'm Gus  (Read 3044 times)
sewerrat4u
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« on: January 12, 2009, 06:51:40 PM »
Hello, I'm Gus the newbie here and I'm happy to find this place. I'm a 50 yr old male on dialysis for 6 months now . I do (PD) and do my therapy at night. I have been asking my team of nurses how do other people cope with this, it was difficult to gage their answers because I'm sure it's not the same for everyone, so I'm glad to have a place to express how I feel and how to deal with kidney failure. 
  I believe that my wife, Patti, and I have been trying to learn all that we can, but it's hard to say how dialysis is just scary to us . we both need a place  like this. Thank You , Gus.
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Gus-
Rerun
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Going through life tied to a chair!
« Reply #1 on: January 12, 2009, 07:05:09 PM »
Hi Gus and welcome to IHD.  I'm so glad you found us.  Kidney failure is scary and there is a lot to learn for both of you.  I think PD at night is the best option unless you can get a transplant.  You are on the right track.  Just keep finding threads on this site that interest you and read, read, read. 

Best of luck.                                                                :welcomesign;
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Wenchie58
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Always carrying the big silly grin!
« Reply #2 on: January 12, 2009, 07:09:44 PM »
Welcome Gus!  If you're like me you will get lost in this forum, but while you are lost...you will learn, laugh and grow to love this crazy bunch!!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
cookie2008
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« Reply #3 on: January 12, 2009, 07:22:39 PM »
 :welcomesign; Gus







EDITED: fixed icon error - Bajanne, Moderator
« Last Edit: January 13, 2009, 01:18:00 PM by bajanne2000 » Logged
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
peleroja
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I have 16 hats, all the same style!
« Reply #4 on: January 12, 2009, 07:48:43 PM »
Hi, Gus, welcome aboard.  This is a great place for information and shoulders to cry on.  Tell us more about the problems you're having with PD.
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Zach
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"Still crazy after all these years."
« Reply #5 on: January 12, 2009, 07:59:06 PM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
G-Ma
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« Reply #6 on: January 12, 2009, 08:34:55 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Joe Paul
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« Reply #7 on: January 12, 2009, 09:29:38 PM »
Welcome Gus, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
monrein
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Might as well smile
« Reply #8 on: January 13, 2009, 01:49:37 AM »
 :welcomesign;  Gus, to both you and Patti. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MiSSis
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« Reply #9 on: January 13, 2009, 01:58:30 AM »
Hi Gus.  Welcome to IHD.  We have a number of PD patients who are members here and have quite a bit of experience.  If you haven't already done so, be sure and check out the home dialysis section.  I'm sure you and your wife will find lots of useful information there.  But if there are still questions you would like answered, be sure to ask.  People here are more than willing to offer their experience, support and comfort whenever you need it.
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"Keep your face to the sunshine and you will not see the shadows."  Helen Keller
willieandwinnie
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« Reply #10 on: January 13, 2009, 04:46:27 AM »
 :welcomesign; Gus. So glad you found us. Lots of information and support from the folks here. Hope we hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paul.karen
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« Reply #11 on: January 13, 2009, 05:01:29 AM »
 :waving;

Hey Gus glad you found IHD.
Hope to see you around the boards.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Tinah1968
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ME
« Reply #12 on: January 13, 2009, 05:30:27 AM »
Welcome
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
boxman55
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« Reply #13 on: January 13, 2009, 05:58:17 AM »
Hi Gus, your right, we all need a place like this. IHD has tons of info and also some fun forums. Hope you post often


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
idahospud
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« Reply #14 on: January 13, 2009, 06:13:55 AM »
:welcomesign; glad to have you  Carol
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sewerrat4u
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« Reply #15 on: January 13, 2009, 12:43:21 PM »
Hello everyone, Thank you all for your kind replies.  I would like to ask my first question, does anyone out there on PD still work a
40 hr week? I have been having problems with high blood pressure and have not been at work for 3 months now, I find it hard to think of going back to work while dealing with this disease.  If you no longer work ,when you do get an SSI benefit,( and you are not age 62) . When you do get a transplant and recover are your ssi benefit's taken away? I'm thinking about retiring from my job at Vons/Safeway I've been there for 32 yr's but I'm only 50 yr's old so I want to know if I ever recover after a transplant will I have to go back to work?
      I use to like my job, I've been there since I was a 17 yr old kid.  I grew up there, always thinking I would always have a job while people needed food. I didn't ever want to have a position in the company that wasn't " Union" because of my diabetes and needing my health benefits
when I retire. Well, here I am ever so much needing my benefits. Sorry if it soumds like I'm a ranting old dud, but IHD!!!!!!!   Gus
I would like to keep you who read this in my prayers. Thank you.
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Gus-
paul.karen
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« Reply #16 on: January 13, 2009, 12:52:28 PM »
Gus sorry your feeling so down.  But understood.

From what i understand if you get a transplant yes you will have to go back to work.  I think they consider you healthy again?

Please put a search in the search box and see what you come up with.  Rerun and others were talking about this just today.   I just cant find the link.
Maybe go to the members section and click on reruns name. From there look at her previous posts and go from there?  Sorry i am not more helpful kinda computer lame.

Or you could start a thread outside of the introduction section.  It takes a little time but you will figure out the boards likely faster then i do....

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #17 on: January 13, 2009, 01:23:45 PM »
Welcome to our community, Gus!   Forgive me, but when I hear that name I think of the cute chubby mouse in Disney's Cinderella!!!  Maybe that can be your avatar!!! We are glad that you found us and decided to join us.  This site can prove to be an important weapon in your dealing with this renal challenge so many of us are facing.  Here is loads of information, support and even fun.  We are more than a website; we are a family  :grouphug; and if you stick around you will find out how true that is.  So keep reading and keep posting.  We need to know how you are doing.


Where your questions are concerned, this section is only for introduction.  We have a section 'Working While on Dialysis'. Copy and paste your questions in a new topic in that section.  Looking forward to hearing from you.  :flower;



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Normie
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Ellie
« Reply #18 on: January 27, 2009, 07:36:30 PM »
Hi Gus and  :welcomesign;

You will find the support you need and the answers to your questions here. 

Glad you joined.  We are a family.    :grouphug;

Normie
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Normie

Kidney damage 4/22/07

Predialysis
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