acer
Newbie
 Offline
Gender: 
Posts: 3
|
 |
« on: January 09, 2009, 06:40:02 AM » |
|
Hi, I'm Roy, I'm British and I live on the S.W. coast of France close to the Spanish Border. I was born with one kidney and last year discovered a tumour on the top half of it. My French Specialist tried to remove the tumour along with half of the kidney in the hope of sparing the remainder and me living a fairly normal life. Unfortunately the risk was too great so my kidney was removed. I have been on dialysis for one year now and have to wait a further year before I can go on the transplant list. Although I have only just introduced myself, I have been a member for a couple of months and find the site extremely helpful. I'm getting to grips with Dialysis but have occasional problems and as my French is by no means perfect I don't always understand what the doctors are telling me. I'm so glad that I will be able to speak to people with similar problems.  |
|
|
|
|
Logged
|
|
|
|
|
Sluff
|
|
« Reply #1 on: January 09, 2009, 06:43:56 AM » |
|
Glad yo have you here Ace. You will gain much knowledge and friendships through IHD. Thanks for taking an intetrest in us and allowing us to take an interest in you. If you have any questions just ask. Feel free to post as often as you want.
Sluff/Admin
|
|
|
|
|
Logged
|
|
|
|
coorsbob
Jr. Member
Offline
Gender:
Posts: 64
I dont live for dialysis, I do dialysis to live.
|
|
« Reply #2 on: January 09, 2009, 06:49:38 AM » |
|
 Roy 
|
|
|
|
|
Logged
|
Diabetic 1990
Discovered Bladder defect 1995
Bladder Surgery 1995
Retinal Hemorrhage 2005
Eye surgery 2005
ESRD February 2008
Perm-Cath installed March 2008
In-center Hemo March 2008
PD Cath installed July 2008
CA PD June 2008
CC PD November 2008
Fistula placed Sept 2009
Training for Home Dialysis on the NxStage System One January 2010
|
|
|
|
willieandwinnie
|
|
« Reply #3 on: January 09, 2009, 06:52:06 AM » |
|
Roy. Glad you found us and you already know the information and support from this site is the best there is. Hope to hear more from you.  |
|
|
|
|
Logged
|
"I know there's nothing to it, but I want to know what it is there's nothing to"
|
|
|
|
monrein
|
|
« Reply #4 on: January 09, 2009, 06:54:55 AM » |
|
Welcome Roy. Where do you live exactly? Near Biarritz? I love the south west of France and regret that my visits there are currently curtailed by my need for dialysis. I'm glad you joined us here and hope that you will post as often as possible and ask any questions you might have. How does organ donation work where you live? Is it reverse onus like in Spain or is it an opt-in system like in North America?
|
|
|
|
|
Logged
|
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
|
|
|
|
Tinah1968
|
|
« Reply #5 on: January 09, 2009, 07:10:25 AM » |
|
|
|
|
|
|
Logged
|
Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
|
|
|
|
peleroja
|
|
« Reply #6 on: January 09, 2009, 09:12:44 AM » |
|
Welcome, Roy. Glad you came out of lurking mode. This really is a great site!
|
|
|
|
|
Logged
|
|
|
|
|
Joe Paul
|
|
« Reply #7 on: January 09, 2009, 11:26:48 AM » |
|
Welcome Roy, good to have you aboard.
|
|
|
|
|
Logged
|
"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
|
|
|
|
MandaMe1986
|
|
« Reply #8 on: January 09, 2009, 11:36:08 AM » |
|
hi
|
|
|
|
|
Logged
|
Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.
Matthew 5:3-9
|
|
|
|
paul.karen
|
|
« Reply #9 on: January 09, 2009, 11:40:52 AM » |
|
Roy. Glad you decided to be known.
|
|
|
|
|
Logged
|
Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
|
|
|
|
Zach
|
|
« Reply #10 on: January 09, 2009, 12:25:42 PM » |
|
Good to have you here!  |
|
|
|
|
Logged
|
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.  I make films. Just the facts: 70.0 kgs. (about 154 lbs.) Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk Dialysate flow (Qd)=600; Blood pump speed(Qb)=315 Fresenius Optiflux-180 filter--without reuse Fresenius 2008T dialysis machine My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day. "Living a life, not an apology." |
|
|
|
cookie2008
|
|
« Reply #11 on: January 09, 2009, 02:25:54 PM » |
|
|
|
|
|
|
Logged
|
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
|
|
|
|
|
|
Wenchie58
|
|
« Reply #13 on: January 09, 2009, 02:31:06 PM » |
|
We can all use another Ace..... |
|
|
|
|
Logged
|
Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"
Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match 10/24/08
|
|
|
|
pelagia
|
|
« Reply #14 on: January 09, 2009, 06:29:15 PM » |
|
Welcome |
|
|
|
|
Logged
|
As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
|
|
|
|
Romona
|
|
« Reply #15 on: January 09, 2009, 06:41:22 PM » |
|
|
|
|
|
|
Logged
|
|
|
|
|
rookiegirl
|
|
« Reply #16 on: January 09, 2009, 06:56:57 PM » |
|
Acer to IHD Family. |
|
|
|
|
Logged
|
2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
|
|
|
|
Bajanne
|
|
« Reply #17 on: January 13, 2009, 01:37:44 PM » |
|
Welcome to our community, Roy! I love it when lurkers finally introduce themselves. I know my task is made easy - you are already sold on IHD. When you said you lived in the south of France, I was just about to lapse into French, but you then said your French is not that good. Just want to welcome you to the family  This is a great place for support. You don't go through anything on your own when you are a part of the IHD family. So keep reading and keep posting.  Bajanne, Moderator |
|
|
|
|
Logged
|
"To be found in Him, not having a righteousness of my own ...but that which is based on faith"  I LOVE my IHD family! |
|
|
|
|
|
kellyt
|
|
« Reply #19 on: January 21, 2009, 08:07:12 PM » |
|
|
|
|
|
|
Logged
|
1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
|
|
Normie
Jr. Member
Offline
Gender: 
Posts: 89
Ellie
|
|
« Reply #20 on: January 27, 2009, 06:50:41 PM » |
|
Hi Roy and I am British too. I have lived in the USA for a long time now. Sorry you lost that kidney--at least he tried to save half of it. It must be hard to live in a country that you don't know the language of. Here you will find we all speak the same language--the language of kidney failure. You will find information and support here. Post often. Normie |
|
|
|
|
Logged
|
Normie
Kidney damage 4/22/07
Predialysis
|
|
|
|
I Hate Dialysis Message Board
Author
