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Author Topic: Hello everybody  (Read 2292 times)
jane14
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« on: January 13, 2009, 04:30:15 PM »
Hi,
Thanks for the welcome.  I am a dialysis social worker (14 years both hemodialysis and PD).   I ran across your site while looking for other internet resources to pass on to patients.  I thought I should register since I was enjoying reading the posts.  I have utmost respect for my patients, enjoy my job.....this site was informative and refreshing to me.  It has touched me to see that this could be real supportive community for those of us in the renal world.   Keep up the good work caring about each other and offering help.  You all going through kidney disease are the real experts...
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jessup
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Gemma - the tucker monster
« Reply #1 on: January 13, 2009, 04:31:45 PM »
G'day and  :welcomesign;
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willieandwinnie
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« Reply #2 on: January 13, 2009, 04:32:21 PM »
:welcomesign; jane. We are a great group and we hope you tell your patients about us.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #3 on: January 13, 2009, 04:35:54 PM »
 :welcomesign;  Jane.  I hope you'll let your clients know about this site and encourage them to join too.  I was a social worker, doing individual, family and group therapy with adolescents and their families (also within the court and school systems)  for my second career.  This is a great support for us and I would love to have had it available to me when I first went on D in 1980, before having a transplant.  Post often and chime in wherever, whenever.  We can't so much close our eyes and pretend we don't see you here on the forum board.  LOL.  :waving;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Joe Paul
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« Reply #4 on: January 13, 2009, 09:49:29 PM »
Welcome Jane, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Chris
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WWW
« Reply #5 on: January 14, 2009, 01:42:41 AM »
Hello Jane, :welcomesign;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
RichardMEL
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« Reply #6 on: January 14, 2009, 03:50:25 AM »
G'day Jane and welcome! As the son of a former Chief Social Worker for a large hospital here I definitely apprieciate your input! I also apprieciate that you want to find useful resources and communities for your patients. Often so many want to dismiss the internet as the harbinger or incorrrect and harmful information, and clearly if you go looking in the wrong place and take stuff you read out of context and without your own medical advice then bad things may occur, but you've certainly discovered that IHD is a valuable community and potentially good for your patients. So often renal social workers get a bum rap, and sadly it's often deserved when some fail to be of much help etc but clearly you're not one of those!

Welcome! :welcomesign;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
paul.karen
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« Reply #7 on: January 14, 2009, 04:23:55 AM »
:waving;  Jane

Thanks for the great introduction.  Glad to have you aboard.  Hope to see you on many boards
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
boxman55
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« Reply #8 on: January 14, 2009, 01:52:40 PM »
Hi Jane, Welcome to IHD Your intro was great and very sincere. I look forward to your posts and keep letting your patients know about our site


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
kellyt
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« Reply #9 on: January 14, 2009, 02:19:04 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
G-Ma
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« Reply #10 on: January 14, 2009, 03:54:48 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #11 on: January 14, 2009, 10:58:40 PM »
Welcome to our community, Jane!  So glad that you found us!  Our founder wanted this to be a place where everyone connected to this renal challenge has a chance to express themselves.  You are an important part of our network and I appreciate your understanding what this site is all about.  In fact, this is more than a site now.  It is a genuine family.  :grouphug;   And you are part of the family now. This has been an important weapon for many of us in our fight.  So please give us your  :twocents;
Looking forward to hearing from you. :flower;




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Wenchie58
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Always carrying the big silly grin!
« Reply #12 on: January 16, 2009, 04:45:00 PM »
 :welcomesign; :welcomesign;

Glad to have you along!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Normie
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Ellie
« Reply #13 on: January 21, 2009, 05:53:17 PM »
Hello and  :welcomesign;

Normie
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Normie

Kidney damage 4/22/07

Predialysis
paris
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« Reply #14 on: January 21, 2009, 07:21:24 PM »
Jane, we are glad you joined and hope you can point some of your patients to this great site.  As you can tell, we really care about each other and have made important friendships with others who understand what we are dealing with.    Thanks for being a part of the renal community.  We appreciate all who work to help the kidney family.





paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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