Mom of new to this

[scott2009]

Hi!!! My son is a fairly new Dialysis Pt. (August) I am an RN who works in a Major OR (Operating Room). I have seen and have participated in many Transplants as well as Recoveries.(Formerly known as Harvests). WELLLLL there is nothing like HITTING HOME when it is one of your own!!!!I have totally done a 360 since my own son  is in this category. I use to marvel at the great gift of life that transformed but at the same time (Ashamedly so) hate how long these procedures would take as many OR nurses do!!! SHAME ON ME!!! Living with ESRD has changed all that... Iwish I could Kiss all of you going through this LIVING HELL and take it away ,,, BUT I can't... I n only share with my colleagues  how WONDERFUL TRANSPLANTS are!!! My expertise is OR. But living with this disease is new ground for me.. Scott is 36 and has been Diabetic for 24 years...Need I say more??? My husband (his dad) is in current workup for donation ,hopefully in Feb sometime .. My interest in this website is twofold!! First I hope Scott will find comfort in similar situations and hopefully gain inside knowledge from the PRO'S (those who live it not teach it), Secondly I need knowledge to carry through this transitional  time of our lives and last but not least WE ALL NEED EACH OTHER TO MANAGE THIS DEAMON!!!!!!I need strength on days when watching my son's stamina and outlook on life seem to be fading. Well E-NUFF  fom Deb (Scott,s Mom)

[monrein]

  Deb.  I look forward to getting to know both you and Scott through this site which is a really great source of both information and support. 

[Rerun]

Deb, welcome to IHD.  I'm so glad you found us.  The best thing you can do for us is spread the word that Transplants are wonderful.  I hope Scott gets his soon.  Living week to week on a machine sucks big time.  You can also find support on this site in the Caregivers Section.  I can't read stuff in there because I'm on dialysis and just want to slap the crap out of those people.  BUT, you may need to go there to vent. 

Tell Scott that we are here for him too if he cares to join.

                                                             

[RichardMEL]

Good stuff Deb! Your post reminds me of a conversation I had just yesterday with one of my nurses who was looking after me. She was talking about how she felt this was "my year" and then she started talking about how this time of year was a "great time" for transplants (not something that makes me totally comfortable, to be honest) and then she started talking about how she spent many years on the wards and she would always know when a neph called at 3am that it was a transplant comign in and it was always exciting for them.

Hoping all the best for Scott and his dad's transplant!

[Razman]

It's great that you joined. You are now in a special place and can see both the medical side and the patient and I hope that you will use this time wisely on teaching others about  kidney failure.  Not just the importance of donation but also the importance of how a patient is treated.  Please stay in touch and let us know how things work out and ask all the questions you want.   

[willieandwinnie]

Deb. What a wonderful introduction and we are so glad that you found us. My husband is the kidney patient and this site has given me more information and support then any health care provider was willing to or able to.  I hope Scott joins us too so he can read first hand the stories here and gather information that might make things more bearable. We look forward to hearing more from you and bless your heart and that wonderful husband of yours. We just love donors. 

[okarol]

I am a mom of a dialysis patient - she had a transplant from a living donor and is doing great. I hope you learn a lot, there's some really wonderful folks here who have amazing strength and optimism. Your husband may want to check out another site - it's for living donors www.livingdonorsonline.org - also lots of support there too. Best wishes to all of you.
okarol/admin

[Romona]

 

[G-Ma]

 

[paris]

I am so glad you found us.  Scott is very fortunate to have you for a Mom.  I think this site will be usefull for both of you.  We are very supportive of each other and share so much.  There are many your sons age here either on dialysis or have had a transplant.  Everyone will be glad to answer any questions you have.  And we have very big shoulders, if you just want to come and rant, cry and be mad!   Looking forward to learning more about you and Scott ( and his hero, his Dad).




paris, Moderator

[pelagia]

 

[kellyt]

 

[Joe Paul]

Welcome Deb, good to have you aboard.

[Bajanne]

Welcome to our community, Deb!  We are glad you found us and joined us.  Scott is truly fortunate.  Your intro was very interesting as you showed yourself seeing things from a very different perspective now!  Please continue to share with us, as we want to take this journey with your family.  You see, we consider our site a genuine family as you will find out if you stick around.    So please let us know how things are going.
Looking forward to hearing from you.



Bajanne, Moderator

[boxman55]

Welcome Deb, and tell Scott hello also. Glad you joined. Your input will be of great help here. Along with all the info available for Scott, I welcome you aboard


Boxman,Moderator

[jessup]

G'day and 

[Wenchie58]