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Author Topic: Im fairly new to this, started dialysiis in Aug.  (Read 3024 times)
fishin4fun
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« on: January 04, 2009, 03:54:33 PM »
 Hello all, This forum is just what ive been looking for, Im in my mid 30's and single and have been type I diabetic for 27 yrs now, I was diagnosed Aug1st with stage 5 renal failure and have been on hemodialysis since and it has been a true shock to me, my dialysis center is made up of people in there 60's thru 90's and me being in my mid 30's has been a shock to me. I have 3 exact matches and recently they have given my father the ok to be my donar, he still needs to get one last ekg and ultrasound butthe docs are pulling for late january or early febuary for my surgery. I know many of you have the time and experience of the process and to be honest with you im scared to death and have an endless amount of questions about the whole thing. but in advance thanks for the info and thanks for the support.    Scott
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Rerun
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Going through life tied to a chair!
« Reply #1 on: January 04, 2009, 04:05:55 PM »
Scott, welcome to IHD.  I'm so glad you found us.  No matter your age, dialysis is a shock.  But, seeing all the old people is hard.  I started when I was 24 and from the people I saw on dialysis I just knew it must lead to brain damage.  But, it sounds like you will get a transplant and be on your way.  Lots to learn about dialysis and transplants, so stick with us and you will learn lots.

                                                                              :welcomesign;
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paris
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« Reply #2 on: January 04, 2009, 05:08:42 PM »
 :welcomesign;  Scott!  So glad you found us. There are many here in their 30's and some have had transplants.  They will be glad to share their experiences.  Ask any questions you have.  The members are very helpful and we give each other so much support.  It is a great place to vent when you are just fed up with everything.  I am very excited about your upcoming transplant.  We admire living donors and think your Dad is a hero.  Post often.  We are always here  :2thumbsup;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
peleroja
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« Reply #3 on: January 04, 2009, 05:11:07 PM »
Welcome, Scott.  This is a wonderful place for information and friends who really know what you're going through.  Post often and let us know how you're doing.
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fishin4fun
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« Reply #4 on: January 04, 2009, 06:05:28 PM »
yeah it was a shock for sure, and I cant imagine someone not being shocked, Its just at my center everyone seems so brittle and old and there health just seems very bad. Myself I have been very active and a outdoorsman but now im just not the active person I once was. I thought once I got my chest cath out and they started using my fistula I would be more active spending time on my boat or being outdoors, but that never happened. I know I am very fortunate to possibly only spend 5 to 6 mos on dialysis before a transplant, but man its been tough mentaly and physically. I just want to get the transplant over with and get on with my life by finding a wife and millions of $$$ LOL the diagnosis has really put my priorities in order and made me see things totally different than before.
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pelagia
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« Reply #5 on: January 04, 2009, 06:09:51 PM »
 :welcomesign; to IHD.  My husband had a transplant in May.  The kidney was donated by our brother-in-law (our hero) and it has worked out really well so far.  Hopefully all will go well for you and you will get back to women and $$$ soon.  :2thumbsup;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paris
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« Reply #6 on: January 04, 2009, 06:14:03 PM »
Hi Scott---just looked at your profile wanted to add that my family is all in Columbus.  I am in NC now, but to back to Ohio when I need a White Castle or Donato's fix!   :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Wenchie58
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« Reply #7 on: January 04, 2009, 06:16:06 PM »
Ummmmm I'm older and have had my transplant...but if you get the $$$$$$ we can talk about the wife thing!   LOL  The transplant surgery is surgery, so it takes healing time, but the outdoors isn't going anywhere.  Take your time, heal, it will be there waiting for you!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Razman
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« Reply #8 on: January 04, 2009, 06:26:34 PM »
You've found the best web site to share questions and concerns with others that will understand.  Please stay in touch and let us know how things work out.
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cookie2008
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« Reply #9 on: January 04, 2009, 06:31:08 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
kellyt
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« Reply #10 on: January 04, 2009, 06:34:36 PM »
 Welcome Scott and Congratulations on your up-coming transplant.  I transplanted (pre-dialysis) on Nov. 5th and I'm doing great!  Feel free to PM or email me if you have any questions!   Your Dad is a hero!
« Last Edit: January 05, 2009, 03:01:46 PM by kellyt » Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Joe Paul
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« Reply #11 on: January 04, 2009, 10:53:42 PM »
Welcome Scott , good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #12 on: January 05, 2009, 05:03:46 AM »
:welcomesign; Scott. You did the the best site for support and information. We hope to hear more from you and your father is our hero. Please let us know how things go and ask any questions you have, we will answer.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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« Reply #13 on: January 05, 2009, 05:32:09 AM »
 :welcomesign;  Scott.  This is hard at any age and none of us choose it.  I started at 26 but had a great transplant (cadaveric) that lasted over 23 years.  Hoping for another (living donor) coming up soon.  This is the best place for both information and support from others who really know what you're facing.  Post often and ask any questions you may have.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
boxman55
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« Reply #14 on: January 05, 2009, 05:53:22 AM »
Welcome to IHD,Scott. Please take some time to read our transplant forum there is a ton of info that will help you understand the process. I look forward to your posts


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Hilrose
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Me and my sister 09/08
« Reply #15 on: January 05, 2009, 08:49:11 AM »
Hi  :welcomesign; to our family,  :grouphug;
Please keep us updated with your coming transplant.

H
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hilrose- hemodialysis patient since April 2007
Transplanted from living donor March 2007 and failed
Kidney rejected August 2008 no longer considering removing
No longer on waiting list 2008

Neverless very happy to be alive!
Romona
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« Reply #16 on: January 05, 2009, 01:08:36 PM »
 :welcomesign;
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Bajanne
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« Reply #17 on: January 06, 2009, 11:23:15 PM »
Welcome to our community, Scott!  We are so glad that you found us and decided to join.  You will find that this site is amazing when it comes to information, support and caring.  We are more than just a website - we are family  :grouphug;  Please take advantage of all this site has to offer.  Our caring thoughts and prayers are with you concerning your transplant.   Keep reading and keep posting.  We need to know how you are doing.
Looking forward to hearing much from you. :flower;




Bajanne, Moderator
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I LOVE  my IHD family! :grouphug;
jessup
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« Reply #18 on: January 07, 2009, 03:20:18 PM »
G'day and  :welcomesign;
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