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Author Topic: On standby again..  (Read 4223 times)
Wallyz
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« on: January 24, 2009, 07:05:17 PM »
We should know by 1:00 AM PST on the 25th.

Thanks for all your support and prayers.
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aharris2
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Volcan Pacaya, Guatemala
« Reply #1 on: January 24, 2009, 07:49:24 PM »
Best wishes WallyZ!!!
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Sluff
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« Reply #2 on: January 24, 2009, 07:59:11 PM »
You da man!  Good luck! Keep us in the loop when you can.   :beer1;
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rose1999
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« Reply #3 on: January 25, 2009, 12:38:31 AM »
 :grouphug; good luck.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: January 25, 2009, 12:40:31 AM »
 :2thumbsup; Best wishes!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Kitsune
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Sometimes the dragon wins.
« Reply #5 on: January 25, 2009, 12:49:01 AM »
Good luck Wallyz. Hope it happens for you!!
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"Run your mouth when I'm not around
It's easy to achieve
You cry to weak friends that sympathize
Can you hear the violins playing your song?
Those same friends tell me your every word"- Pantera "Walk" (1991)
Joe Paul
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« Reply #6 on: January 25, 2009, 12:56:22 AM »
Best wishes, I hope you get it  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
RichardMEL
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« Reply #7 on: January 25, 2009, 02:04:50 AM »
wow so soon!!! Fingers crossed that this is the one for you mate!!!

 :2thumbsup;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Chris
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« Reply #8 on: January 25, 2009, 02:24:52 AM »
Hopefully this is the one Wallyz.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Romona
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« Reply #9 on: January 25, 2009, 06:53:18 AM »
 :grouphug;
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monrein
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Might as well smile
« Reply #10 on: January 25, 2009, 08:02:21 AM »
Everything crossed for you.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Wallyz
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« Reply #11 on: January 25, 2009, 08:02:46 AM »
Organs went tot the primary candidate.  Thanks for your support.
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willieandwinnie
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« Reply #12 on: January 25, 2009, 08:39:12 AM »
Wallyz you know you are at the top of the list. The next call is yours.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #13 on: January 25, 2009, 08:42:06 AM »
This really is the bumpiest part of the rollercoaster, in emotional terms anyhow.  Hang in there.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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Posts: 8859
« Reply #14 on: January 25, 2009, 10:11:17 AM »
Stay strong. I can't imagine what your emotions are right now.   We are all here for you   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Romona
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« Reply #15 on: January 25, 2009, 12:04:38 PM »
Third times a charm!  :cuddle;
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thegrammalady
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« Reply #16 on: January 25, 2009, 12:05:49 PM »
hang in there  :cuddle;
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
kellyt
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« Reply #17 on: January 25, 2009, 02:59:06 PM »
I'm sure your emotions are running high.  Be ready for another call!  Here's hoping!   :beer1;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
MIbarra
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Stopping to smell the bluebonnets
« Reply #18 on: January 25, 2009, 03:33:57 PM »
2 calls in such a short time!

Even though you weren't picked, think of it this way.. the calls mean it will be very soon for you now! How exciting.  :cheer:  Here's hoping the next call comes through.
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Cadaver transplant April 29, 2007
Chris
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« Reply #19 on: January 25, 2009, 03:45:08 PM »
If they are charging you each time you come in, charge them for mileage and gas!
Hopefully the next call is the one, or do what I did when they called me. I asked if they we're sure, fortunately they said yes.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Wallyz
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Posts: 991
« Reply #20 on: January 25, 2009, 06:34:59 PM »
This standby is  a good set up.  It usually involves food restriction, but since we are 40 minutes away, we are able to stay home.  There actually may be people fuirther up on the list that me, but if they are in Montana, they will not be called for standby, only for primary.  This may go on for some time.
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RichardMEL
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« Reply #21 on: January 25, 2009, 11:42:51 PM »
Gee how frustrating this must be!! Still it seems like you are close to the top which must be encouraging. Here we don't get called to be standby or anything.. we get called with an offer which is both good and bad... in a way if I got standby like you I'd at least know that there would only be a few folks ahead of me on the list and that if it isn't this time it should hopefully be soon. As it is no calls could mean anything.

Hang in there mate and hoping the next call comes soon and it is yours!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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