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Author Topic: Greetings from a Newbie  (Read 2830 times)
klibanow
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« on: December 23, 2008, 08:22:13 PM »
Hi.  My name is Bill.  I'm brand new here -- and fairly new to hemodialysis (about 4 months). 

My kidneys have failed because of a congenital disorder called Alport Syndrome.  The rest of me is pretty healthy and I'm 56, so I guess I'm lucky.  My older brother had the same condition, but his kidneys didn't fail until he was 62.  Then, he got a very successful transplant from his oldest daughter.  He's now 9 years post transplant and doing great!  My 26 year old daughter is not healthy enough to donate to me, and neither are the other 4 people who tried, so I guess I'm stuck here for a while.  I've been on the transplant list for more than a year, but my center tells me it's a 7 year wait out here so I'll have to be a patient patient.

I work as a Mental Health Court judge here in LA County.  I love the work and I finish early enough to be able to get home, feed my doggie, Maggie, and head on out for a night on the town ... or, more often, in the chair.  Maggie looks a lot like the picture I chose -- a golden retriever, and my best buddy.  Maybe I'll download a picture of me instead after a while.  Seems more appropriate.

I did have a love relationship -- or so I thought -- when I began dialysis.  But the growing closeness of our 8 month relationship -- and the onset of dialysis in particular -- scared Melanie to death.   She freaked out, so to speak.   Even though I was more caretaker of her than visa-versa, the perceived responsibility of being with a dialysis patient frightened her.  She focused on the dialysis as an issue but, ultimately, I think it was commitment she feared.  So ... who needs someone who doesn't want you in hard times; right?  I miss her nonetheless.  But I've moved on.  Sort of.

Well, I guess that's enough blather for now.  I've introduced myself, so I'll stop now.

Best regards to all of you.  Bill


 
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Bill
monrein
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Might as well smile
« Reply #1 on: December 23, 2008, 08:38:46 PM »
 :welcomesign; Bill.  You've found the best site for information and support.  Between all of us here , we have a wide range of experience.  Post often.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Wenchie58
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Always carrying the big silly grin!
« Reply #2 on: December 23, 2008, 08:58:29 PM »
Welcome Bill!
I've found this group to be an informative and jolly lot!  I think I will keep them!

Vicki
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Joe Paul
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« Reply #3 on: December 23, 2008, 10:10:43 PM »
Welcome Bill, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #4 on: December 24, 2008, 04:23:54 AM »
:welcomesign; Bill. We are so glad you found us. Lots of information on here and support when you need it. Please post often and check out some of the older threads as they have tons of information.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paul.karen
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« Reply #5 on: December 24, 2008, 05:19:16 AM »
 :waving; Bill nice to have you with us.

See you around the boards
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
nursewratchet
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"Either do it, or don't do it, don't try"
« Reply #6 on: December 24, 2008, 08:13:09 AM »
Welcome Bill,

  You'll meet some great people here.  Lots of supprot and info.  Ask away, and share.   :flower;
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
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I have 16 hats, all the same style!
« Reply #7 on: December 24, 2008, 08:50:23 AM »
Welcome aboard, Bill.  This is a wonderful site for information and the occasional shoulder to cry on or ears to listen to a rant.  Please come back and post often and let us know what's going on in your life.
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kellyt
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« Reply #8 on: December 24, 2008, 10:05:37 AM »
Keep us!   Put us in your pocket!    :bandance;

Welcome Bill!  This site is a wonderful tool, both for your mind and soul!  I look forward to hearing more about you!    :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
boxman55
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« Reply #9 on: December 24, 2008, 10:24:27 AM »
Hi Bill, welcome to IHD. Glad you found us. We look forward to your tales with your doggie.

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Rerun
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Going through life tied to a chair!
« Reply #10 on: December 24, 2008, 10:30:29 AM »
Hi Bill and welcome to IHD.  If you are a Mental Health Judge you will find lots to do here!  You can start with Sluff!  HA 

I'm so glad you found us.  We are all in the same boat here.  On dialysis or love someone who is and we all have our other problems too.  We do have fun on this site also.  I look forward to your posts.

                                                                           :welcomesign;
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Ang
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« Reply #11 on: December 25, 2008, 01:19:06 AM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
jessup
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Gemma - the tucker monster
« Reply #12 on: December 25, 2008, 03:37:46 AM »
G'day and  :welcomesign;
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coorsbob
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I dont live for dialysis, I do dialysis to live.
« Reply #13 on: December 31, 2008, 11:43:09 AM »
 :welcomesign; Bill and hang in there!
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Diabetic 1990
Discovered Bladder defect 1995
Bladder Surgery 1995
Retinal Hemorrhage 2005
Eye surgery 2005
ESRD February 2008
Perm-Cath installed March 2008
In-center Hemo March 2008
PD Cath installed July 2008
CA PD June 2008
CC PD November 2008
Fistula placed Sept 2009
Training for Home Dialysis on the NxStage System One January 2010
thegrammalady
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« Reply #14 on: December 31, 2008, 12:51:15 PM »
 :welcomesign; glad to have you join us
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
aharris2
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Volcan Pacaya, Guatemala
« Reply #15 on: January 01, 2009, 09:19:10 AM »
 :welcomesign;
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Hilrose
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Me and my sister 09/08
« Reply #16 on: January 02, 2009, 05:01:37 AM »
 :welcomesign; and :thx; for your introduction, it great... Looking forward to hearing more from you. H
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hilrose- hemodialysis patient since April 2007
Transplanted from living donor March 2007 and failed
Kidney rejected August 2008 no longer considering removing
No longer on waiting list 2008

Neverless very happy to be alive!
G-Ma
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« Reply #17 on: January 02, 2009, 06:51:48 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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