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Author Topic: BK Polyoma Virus and Greetings from a New Memeber.  (Read 2794 times)
cmazure
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« on: December 25, 2008, 08:13:06 AM »
Hello. My name is Caren, and I am new to this. I had a kidney transplant in 2005, but as of February, 2008 I experienced kidney failure again due to the BK Polyoma virus. This virus exists in everybody's urine, but only becomes symptomatic in people whose immune system is suppressed, including those who are maintaining organ transplants. I have been on dialysis, and getting treatment for the virus in hopes of becoming eligible for another transplant. I'd like t know what anyone else knows about this virus - such as getting blood levels low enough for having a transplanted kidney continue to function, and keeping the level low.
I also had a double lung transplant in 2001. My transplant related problems are originally due to tuberous sclerosis. I would also like to hear from anyone else who is familiar with that.
Happy holidays to all.
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Razman
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« Reply #1 on: December 25, 2008, 08:21:07 AM »
Its great that you joined and I hope that you will look around the site and visit often.  I cannot answer your questions but here is a site I posted in Internet Links.  The doctor may be able give some input.

http://ukidney.com/forum/
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willieandwinnie
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« Reply #2 on: December 25, 2008, 08:28:56 AM »
:welcomesign; cmazure. So glad you found us. We are a wonderful group with information and support for all you are going through. Please post often and good luck with getting on the transplant list fast.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
boxman55
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« Reply #3 on: December 25, 2008, 08:47:35 AM »
Welcome Caren, So glad you found IHD. I am sorry to hear about your failed transplant and hope you can get back on the list soon. Look forward to your posts

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
cookie2008
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« Reply #4 on: December 25, 2008, 09:13:37 AM »
 :welcomesign; :rudolph; :santahat;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
Joe Paul
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« Reply #5 on: December 25, 2008, 01:35:27 PM »
Welcome Caren, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
jessup
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Gemma - the tucker monster
« Reply #6 on: December 25, 2008, 01:48:51 PM »
G'day and  :welcomesign;
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monrein
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Might as well smile
« Reply #7 on: December 25, 2008, 02:23:06 PM »
 :welcomesign; 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #8 on: December 27, 2008, 10:22:34 AM »
 :welcomesign;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #9 on: December 27, 2008, 01:29:31 PM »
Welcome to our community, Caren!  I am so glad that you found us and decided to join us.  I am not familiar with your particular situation, but we are all dealing with this renal challenge.  Hope you find answers.   This is a great site for information, for support and even for some good fun.  Keep reading and keep posting.  Remember, we are family now.  :grouphug;
Looking forward to hearing from you. :flower;




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
pelagia
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« Reply #10 on: December 28, 2008, 05:32:53 PM »
 :welcomesign;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Ang
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« Reply #11 on: December 29, 2008, 10:04:45 PM »
 :welcomesign;  caren
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live  life  to  the  full  and you won't  die  wondering
paris
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« Reply #12 on: December 30, 2008, 09:28:23 AM »
Caren,  you may know more about transplants than anyone.   Double lung and kidney!  What an incredible story you are living.  We are glad you joined this great site.  We all care very much for each other and give great support.  There is a wealth of information here and I think you can add to that.  Thanks for joining and please post often.  I would love to hear more of your story.    :grouphug;





paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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