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Author Topic: Hello all  (Read 2592 times)
Alesa875
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« on: December 21, 2008, 11:39:28 AM »
Hello everyone. My name is Alesa. I'm from New Orleans,LA. I'm 33 with two kids, daughter,8 and son,2. I'm still a little new to the "dialysis thing". Here's my story in a nutshell: Felt "yucky" in Feb., was diagnosed in March, catheter placed in March, started PD in April, and here I am, still lost,confused,stressed, and a bit "sick" of the whole thing!!  So any help, advice, or words of wisdom are greatly appreciated and much needed.
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Rerun
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Going through life tied to a chair!
« Reply #1 on: December 21, 2008, 12:14:49 PM »
Alesa875 welcome to IHD.  You are new to this whole dialysis thing.  I suggest reading this website, especially the PD part.  Actually PD works really well.  I'm sure you are a busy mom and this dialysis thing doesn't help.  Hang in there. 

       Read ....  Read .... Read...                      :welcomesign;
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willieandwinnie
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« Reply #2 on: December 21, 2008, 12:49:38 PM »
:welcomesign; Alesa. Rerun is right, read, read and read. This is a wonderful web site and somebody will answer any questions you ask. Please post often and you better get busy reading because there is lots of information.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kellyt
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« Reply #3 on: December 21, 2008, 12:59:23 PM »
Welcome Alesa!  You have found the perfect place to land in your time of confusion!   Being diagnosed and getting your catheter placed all in the same month must have been really difficult.  I was diagnosed in 1994 and didn't have to have a fistula placed until Sept 2007.  I can imagine your brain was spinning! 

Reading the posts here will both comfort and empower you.  You will find SO MANY useful tips, hints, suggestions, and most importantly answers.  There are no stupid questions!  Give your kids a big hug!

Are you going to test for "the list" and/or a living donor?  I look forward to hearing you story in more detail later.    :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
jessup
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Gemma - the tucker monster
« Reply #4 on: December 21, 2008, 02:38:13 PM »
G'day and  :welcomesign;
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monrein
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Might as well smile
« Reply #5 on: December 21, 2008, 02:45:58 PM »
 :welcomesign;  Alesa.  You've found the best site for both information and support so as Rerun said so well...Read...Read...Read.  Also ask any specific questions you may be wondering about if you can't find an answer.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
boxman55
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« Reply #6 on: December 21, 2008, 02:57:32 PM »
Hi Alesa, welcome to IHD. we are glad you found us. there is a ton of info for you here and also if you want just go to the general discussion forum and ask any dialysis question yo might have

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
cookie2008
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« Reply #7 on: December 21, 2008, 03:44:24 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
Zach
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"Still crazy after all these years."
« Reply #8 on: December 21, 2008, 04:06:28 PM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #9 on: December 21, 2008, 09:42:17 PM »
Welcome to our community, Alesa!  This is a very good move - joining our IHD family  :grouphug;  This is the place for information, support and even some fun.   Feel free to vent, rant, rage or rave when you need to.  here is a group of people who fully understand all that you are going through.  So, as many have counselled you already, read as much as you can.  But also post as much as you can.  The support here is awesome, if we know what you are going through.
A special welcome from a sister in the Caribbean.  :cuddle;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Joe Paul
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« Reply #10 on: December 21, 2008, 10:49:24 PM »
Welcome Alesa, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
idahospud
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« Reply #11 on: December 22, 2008, 04:08:13 AM »
:welcomesign; everyone is right this is the places to be . Its grate family of information and support . it will give you a good handle on the hole thing   :grouphug; Carol
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Ang
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« Reply #12 on: December 29, 2008, 10:19:04 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
Chris
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WWW
« Reply #13 on: December 29, 2008, 10:34:20 PM »
Hello and  :welcomesign;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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