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Author Topic: Turned down two donors last Week-  (Read 3829 times)
Wallyz
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« on: December 15, 2008, 01:25:10 PM »
Wow. This is fast. I was just listed last month, and becasue I have A blood type and 3 indeterminate proteins, I am right at the top of the list.  Craziness.  I will try to post here as soon as it happens. Of course, now that they tell me I am near the top, it will be another 6 months or more.


I am looking at a Simultaneous Kidney and Pancreas cadaver transplant.  I am in Seattle Area, and working with Virginia Mason Hospital.
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paul.karen
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« Reply #1 on: December 15, 2008, 01:27:27 PM »
Sounds like you may have a GREAT new year coming up.
Glad to hear it WallyZ..
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
monrein
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Might as well smile
« Reply #2 on: December 15, 2008, 01:27:33 PM »
I hope it comes very soon and goes really well, Wallyz.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Joe Paul
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« Reply #3 on: December 15, 2008, 01:48:36 PM »
Good luck for a speedy and healthy dual transplant  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
jessup
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Gemma - the tucker monster
« Reply #4 on: December 15, 2008, 02:00:00 PM »
great news mate
 :2thumbsup;
best wishes for the future  -  hope all goes well
 :flower; :flower; :flower;
 
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Romona
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« Reply #5 on: December 15, 2008, 02:48:04 PM »
 :yahoo; I hope it is soon.
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kellyt
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« Reply #6 on: December 15, 2008, 02:50:08 PM »
That's really great news!  I guess you won't be traveling for a while!  This is so exciting!  Keep us posted!!!!!   :2thumbsup;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
willieandwinnie
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« Reply #7 on: December 15, 2008, 03:06:30 PM »
 :flower; Wallyz, I hope it happens real soon. Keep us posted.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
donnia
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me and my donor Joyce
« Reply #8 on: December 15, 2008, 07:10:15 PM »
Fantastic news!!  I will be praying for a speedy transplant and recovery!!!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
G-Ma
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« Reply #9 on: December 15, 2008, 07:54:29 PM »
 :cheer:
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Chris
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WWW
« Reply #10 on: December 15, 2008, 08:27:33 PM »
Wallyz,
I hope it happens soon and that you will feel a big difference like I did after waking up. For me they took off my insulin pump 5 hours prior to surgery and I felt my blood sugar rise. When I woke up, I felt normal.

Here's to no more injecions or pumps. However I am suppose to at least check my bs once to twice a day still. Not sure how your center is going to have you do that, but good luck.
« Last Edit: December 16, 2008, 08:19:06 AM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
RichardMEL
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« Reply #11 on: December 16, 2008, 05:26:52 AM »
Wow Wallyz! That's amazing and so fantastic for you. I understand traditionally Kidney/Pancreas transplant waiting times are always much less.. but this is some kind of record!! Let us hope YOUR transplant comes soon!!!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Wallyz
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« Reply #12 on: December 16, 2008, 10:34:38 PM »
Mna, I'm getting jumpy. Hospital called today, I picked up the phone. breathless.

"We're calling in regards to the payment plan we have set up..." 

I think I may have sworn at her.  I need to calm down. :stressed;
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Chris
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WWW
« Reply #13 on: December 17, 2008, 12:57:21 AM »
Quote from: Wallyz on December 16, 2008, 10:34:38 PM
Mna, I'm getting jumpy. Hospital called today, I picked up the phone. breathless.

"We're calling in regards to the payment plan we have set up..." 

I think I may have sworn at her.  I need to calm down. :stressed;

Aren't you glad you do not have voice activated caller ID. You'd be really flying to the phone then just to find out "We want money first!"

Remember to breathe in and out, slow.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #14 on: December 17, 2008, 03:53:29 AM »
Just waiting and hoping with you, getting ready to celebrate  :yahoo; :yahoo; :yahoo; :yahoo;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
willieandwinnie
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« Reply #15 on: December 17, 2008, 04:05:41 AM »
Wallyz, we all hope you get that call soon.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
pelagia
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« Reply #16 on: December 17, 2008, 05:02:57 AM »
sure would be a great way to celebrate the new year!  :clap;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
thegrammalady
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« Reply #17 on: December 17, 2008, 12:02:41 PM »
 :cheer: :cheer: :cheer: here's hoping
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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