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shadowlurker
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« on: December 19, 2008, 02:26:49 PM »
I just joined the site. I didn't know such a thing existed !!! Awesome! I have been a dialysis patient for 2 1/2 years. I damaged my kidneys while in the U.S. Air Force. It took 23 years to come to end stage. I had a transplant in 2007 which failed.( they damaged the kidney when removing it from my sister).She almost died and because of that I have opted out from taking any kidneys from family members.So I am on "the list" until whenever.I try and live my life as normal as possible, I hunt ,fish, and my passion is Indian artifacts. I spend as much time as possible looking in corn fields for arrowheads.Sometimes it's tough. But I know maintaining a good attitude will get me through this.I go to dialysis 3 times a week 3 1/2 hrs. each time. Going to dialysis gets me out amongst people as I also suffer from a trashed lower back and was some what antisocial for awile.For that I am in a pain clinic which has done wonders for my anti-socialism. I am married with 4 children, 1 grandson and a grandaughter on the way in March 09.  My family is my life, without them I would have ended this along time ago. They keep me sane. Well I quess that enough for now. Again awesome site and I will surely return. Peace to everyone and theirs. 
P.S.Try to focus on the holidays and not the needles.
Shadowlurker
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monrein
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Might as well smile
« Reply #1 on: December 19, 2008, 02:31:56 PM »
 :welcomesign;  So glad you decided to come out of the shadows and on to IHD.  Hope to hear more from you.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Zach
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"Still crazy after all these years."
« Reply #2 on: December 19, 2008, 02:33:24 PM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
jessup
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Gemma - the tucker monster
« Reply #3 on: December 19, 2008, 02:47:06 PM »
G'day and  :welcomesign;
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kellyt
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« Reply #4 on: December 19, 2008, 02:56:09 PM »
:welcomesign;  Shadowlurker!  Isn't this site fabulous?  I found it by accident in Sept 2007 just before getting my 1st fistula.  I've said it before and I'll say it again, it was/is a true lifesaver!

I look forward to hearing more about you and your family.  Read as many posts as you can and soon you'll be welcoming new members like a true pro!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
cookie2008
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« Reply #5 on: December 19, 2008, 03:13:25 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
willieandwinnie
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« Reply #6 on: December 19, 2008, 03:24:50 PM »
:welcomesign; shadowlurker. So glad that you found us. We are a wonderful bunch. There is a ton of information here and lots of support. Please post often as we are sure you have things that would help someone else. Bless your sisters heart.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
pelagia
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« Reply #7 on: December 19, 2008, 03:27:50 PM »
 :welcomesign;  love your post.  thanks for coming out of the shadows!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #8 on: December 19, 2008, 03:28:09 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
boxman55
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« Reply #9 on: December 19, 2008, 04:15:47 PM »
Hey shadow, Glad you found us. I also love to hunt and fish. Look forward to you posting here. Do you have good luck in the cornfields for the arrowheads?

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
peleroja
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I have 16 hats, all the same style!
« Reply #10 on: December 19, 2008, 07:36:57 PM »
Welcome aboard.  This is a great place for information and the occasional shoulder to cry on.  Come back often and keep on posting!
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Joe Paul
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« Reply #11 on: December 19, 2008, 09:58:22 PM »
Welcome Shadowlurker, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
babi68
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« Reply #12 on: December 19, 2008, 10:43:49 PM »
 :welcomesign; :welcomesign; :welcomesign; LIz
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Mimi
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For any who do not like me I use - prayer.
« Reply #13 on: December 19, 2008, 11:02:51 PM »
Hi Shadowlurcker and welcome to IHD.  First thing I thought about when you said hunting
and fishing was Boxman.  You two would make a good team.  Hope to hear lots more from you.

Love,
Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
thegrammalady
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« Reply #14 on: December 20, 2008, 03:33:42 AM »
 :welcomesign; this is a good place to land
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #15 on: December 20, 2008, 07:56:17 PM »
Welcome to our community!!  You lurkers make my welcoming task very easy!  I don't have to sell you on the site!  You already know that this is the best place for information, support and fun!!!  So you just keep reading and PLEASE keep posting!!!  You are part of the family now :grouphug;
Looking forward to hearing from you.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Ang
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« Reply #16 on: December 29, 2008, 10:20:38 PM »
 :welcomesign;  shaowlurker
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live  life  to  the  full  and you won't  die  wondering
Chris
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WWW
« Reply #17 on: December 29, 2008, 10:33:00 PM »
Hello and  :welcomesign;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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