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Author Topic: yet another newbie..  (Read 3233 times)
theone
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« on: December 04, 2008, 09:00:34 PM »

I am a private person and don't want to reveal too much.

I am being trained now for CAPD but will be on APD pretty soon hopefully.

I had kidney problem for about 9 years and so finally, with about 16% kidney function left, my doctor suggested me to go on dialysis.

I enjoy working and will continue to work.

The only problem I am seeing now is my wife loves to travel and I probably won't be able to do much.

Thanks for providing a forum to support/share the experience.
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Joe Paul
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« Reply #1 on: December 04, 2008, 10:49:52 PM »
Welcome theone, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
monrein
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Might as well smile
« Reply #2 on: December 05, 2008, 05:32:28 AM »
 :welcomesign;  You can reveal only as much as you are comfortable with.  I know what you mean about the traveling.  However, we have some members who still manage to travel (of course it's different than "before" D...) and capd means you can still do mini trips at least and maybe more.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
annabanana
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« Reply #3 on: December 05, 2008, 09:11:43 AM »
 :welcomesign;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
willieandwinnie
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« Reply #4 on: December 05, 2008, 09:57:27 AM »
 :welcomesign; theone. You'll open up when you have been around here a while. Impossible not too. Lots of information and support for what you are going through by folks that have gone through it or caregivers. Please post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
peleroja
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« Reply #5 on: December 05, 2008, 10:00:58 AM »
Welcome aboard.  Traveling is no problem once you get settled on PD.  I've been on cruises, trains, buses, etc.  I just call Baxter and tell them where I'm going and they have my boxes waiting for me.  If it's a short trip, you can just take your boxes and supplies with you.  Good luck in your new venture and getting to travel!
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jessup
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« Reply #6 on: December 05, 2008, 12:45:02 PM »
g'day and  :welcomesign;
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MiSSis
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« Reply #7 on: December 05, 2008, 01:00:47 PM »
Welcome theone.  I'm also on PD and I use a Fresenius cycler and suppies.  Like Peleroja, I've also been able to travel quite a bit.  I just let my PD nurse know when and where I'll need a machine and supplies delivered and she places the order with Fresenius.  I haven't traveled outside of the US but my husband and I will be leaving later this month for our 4th trip this year.  PD hasn't slowed us down in this respect.  I hope all goes well with you and know you will find lots of useful information here at IHD. 
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Razman
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« Reply #8 on: December 05, 2008, 02:06:17 PM »
It's great that you joined and I hope that you will visit often.     :welcomesign;
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boxman55
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« Reply #9 on: December 05, 2008, 02:20:31 PM »
Welcome to IHD. We are glad you joined. You nailed it, this site is the best for support. We are here for you and look forward to your posts.


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
cookie2008
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« Reply #10 on: December 05, 2008, 02:31:44 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
Bajanne
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« Reply #11 on: December 06, 2008, 01:41:14 AM »
Welcome to our community!  We are so glad that you joined us.  First off, I have to admit.  I don't know what APD is.  Please clarify.  You see, the only option in my area (British Virgin Islands, Caribbean)  is in-centre HD and I have heard of CAPD on this site, but not APD.
This is a great site for information, support and even a bit of fun.  Please take advantage of all it has to offer.
My wanderlust has been cut a bit by the need to dialyse, but I have become a weekend traveller.  I even managed to have a fantastic weekend in Las Vegas at our last IHD reunion!
so please keep reading, and keep posting, so we can know how you are doing (even if you are a private person)



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
G-Ma
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« Reply #12 on: December 06, 2008, 05:51:55 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Mimi
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« Reply #13 on: December 06, 2008, 10:44:40 PM »
Welcome to IHD TheOne.
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Ang
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« Reply #14 on: December 07, 2008, 04:56:57 PM »
 :welcomesign;  The  One
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live  life  to  the  full  and you won't  die  wondering
theone
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« Reply #15 on: December 08, 2008, 07:52:26 PM »

Thanks for the warm welcome.

APD is basically using the cycler :)
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paris
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« Reply #16 on: December 13, 2008, 10:11:57 PM »
We are very glad to have you here.  This is the best site for real information and for support.  If you have a question, someone here will have an answer.  And we are availabile any time, night or day.  No schedule needed  :rofl;   We take care of each other and it is nice to talk to people in the same situation.  Looking forward to hearing more of your story.  Welcome!!






paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
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« Reply #17 on: December 14, 2008, 06:50:10 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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