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waitlisted
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« on: August 22, 2006, 07:31:25 PM »
Hi,

I am not actually yet on the list, but hopefully very soon...

I am 36 years old man originally from Finland, but currently living in Texas. I have had CKD whole my life and the disease has progressed very slowly. However now I am getting closer to the time when I will need replacement therapy. I am not yet in dialysis and started the process to get to transplant list in July and have been going through all evaluation tests during last 2 weeks. I am hoping everything would go smoothlyand I would be able to skip the dialysis phase totally, let's see what happens...

I have read the discussions on this forum already some weeks and now I decided to register as well.
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Rerun
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Going through life tied to a chair!
« Reply #1 on: August 22, 2006, 07:48:23 PM »
Waitlisted....hummm you are not on dialysis yet......you are not on the transplant list yet......Why don't we just call you "Transplanted"  ;D  Let's hope so anyway! 

Welcome to the site.  If you haven't done so already, please read the Site Rules and Regulations under General Discussion.

 In my experience it would be better if you suffered through dialysis a couple of times so you TRULY appreciate your transplant.  Best of luck to you.
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kitkatz
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« Reply #2 on: August 22, 2006, 09:23:45 PM »
Good luck on the transplant.  If you are going to be listed and do not have a living donor the wait time is 6 to 8 years average. If a living donor is going to give you a kidney 6 months to a year is the wait time.  Good luck!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
BigSky
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« Reply #3 on: August 23, 2006, 09:14:45 AM »
Hopefully everything will go smoothly.

Welcome to the board.
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Zach
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"Still crazy after all these years."
« Reply #4 on: August 23, 2006, 06:17:11 PM »
Great to have you here!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Sluff
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« Reply #5 on: August 24, 2006, 04:47:53 AM »
Welcome
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waitlisted
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« Reply #6 on: August 25, 2006, 07:50:46 PM »
Just an update, now I should have gone through all evaluation test and after the committee meeting I should be able to start my long wait...

I am with O blood, so the average waiting time on this area is about 5 years, so I should surely still get my share of suffering in dialysis like Rerun wished, if I don't find matching living donor earlier.
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Zach
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"Still crazy after all these years."
« Reply #7 on: August 25, 2006, 09:05:06 PM »
You can always move to Tampa, Florida.

Because the state has no helmet law, and with highway speeds up to 75 miles per hour ... your wait might be half what the wait is in Texas.    :o
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Joe Paul
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« Reply #8 on: August 26, 2006, 02:31:20 AM »
Welcome waitlisted, good luck with your wait, hope it isnt too long.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
angieskidney
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« Reply #9 on: August 26, 2006, 02:38:55 AM »
Welcome Waitlisted!
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Sluff
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« Reply #10 on: August 27, 2006, 07:36:35 AM »
I am type 0 blood also but I really don't think you would want my kidneys..lol I am fsgs diagnosed.
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Sluff
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« Reply #11 on: August 27, 2006, 07:37:48 AM »
Quote from: Zach on August 25, 2006, 09:05:06 PM
You can always move to Tampa, Florida.

Because the state has no helmet law, and with highway speeds up to 75 miles per hour ... your wait might be half what the wait is in Texas.    :o

It's not the helmet law it's the way they drive in FL.
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Python
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Bobby the Python
« Reply #12 on: August 27, 2006, 01:34:13 PM »
Welcome Waitlisted.  This is a great site ;D
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Alports Syndrome - A Rare Breed Indeed!!!
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