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| | |-+  going to do NxStage
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Author Topic: going to do NxStage  (Read 2436 times)
jonn r
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my little girl maiah

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« on: November 17, 2008, 02:53:06 PM »

ok so here is the deal...... i dont know what questions to ask.......so i need your help.....what should i ask???


thanks





EDITED: Removed color prompt - Sluff/Admin




« Last Edit: November 17, 2008, 09:22:28 PM by Sluff » Logged
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: November 17, 2008, 02:59:26 PM »

You could read Meinuk's posts and get some ideas of what you need to know http://ihatedialysis.com/forum/index.php?topic=5229.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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« Reply #2 on: November 17, 2008, 08:09:52 PM »

Every center has a different policy.  Things to find out -

Will they train you to do it alone or do you need a partner?  Can you train more than one partner?  Will your partner need to be there for every training session, or only some of them?
How long will they insist on training you?  NxStage thinks 2 to 3 weeks is sufficient, but some centers drag it out to 6 or 8.
Will they support a 5 day schedule, or will they insist on 6?
How do they plan to deal with blood testing?  Will they be paying to have the blood mailed to a lab, or will you need to deliver it?  How often will they want blood testing?  Once a week, bi-weekly, once a month?
What equipment will they supply?  Some centers cover nothing, not even the centrifuge for blood work, others have even covered a recliner.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Sluff
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« Reply #3 on: November 17, 2008, 09:23:05 PM »

Good for you John R hope it goes smoothly for you.  :thumbup;
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Wallyz
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« Reply #4 on: November 21, 2008, 05:59:19 AM »

Ask about nocturnal, extended therapy. Its better.
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