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Shadows mom
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Hi
« on: November 10, 2008, 10:45:56 AM »
Hi everyone,

I'm new to the IHD website and would like to introduce myself.  I've been on dialysis for a bit over 2 and 1/2 years.  I lost my kidney function due to AA amyloidosis which is a rare disease that deposits amyloid protein in varies organs as it has in my kidneys (and GI tract, thyroid and liver).  I started doing PD but switched to hemodialysis in January 2007.  I go to a clinic near my home three times a week and manage there all right.  I've had some complications and other difficulties because of the amyloidosis so I am pretty short on stamina and energy but I do like to keep busy as much as possible.  I still quilt with my group usually weekly, read, do puzzles and spend time with my husband, family and friends.  I have a wonderful support system of friends and church members and am truly blessed to have them in my life.  Before I quit working, I was a microbiologist for 20 years and had a wonderful career where I did very interesting research, traveled quite a lot and met many people from around the world.  I miss the people but not the stress of the work.

Oh, and Shadow is my almost 5 year old Alaskan Malamute dog.  She's a little gimpy now, too as she recently had surgery for a blown out ACL.  My poor husband has to take care of both of us!

Hope to learn some new things about dialysis as well as AA amyloidosis from this message board.  Thanks for the opportunity.
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paris
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« Reply #1 on: November 10, 2008, 11:36:56 AM »
 :welcomesign; Shadows Mom,  We are very glad to have you here.  It is amazing how many different reasons for kidney failure; thank you for explaining yours.  You seem to have a great attitude and are continuing on with your life.   I love Malamutes!  My Mom had several and always named them for Alaskan cities.  Sitka was my favorite.  Hope yours is recovering well.   Bless you husband's heart---he is busy taking care of everyone!   This is an amazing support group; we really care about each other.  There is also more information here that any doctors office.   Thanks for sharing your story.  I look forward to hearing more from you   :grouphug;





paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
willieandwinnie
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« Reply #2 on: November 10, 2008, 11:42:34 AM »
 :welcomesign; Shadows Mom. Glad you joined us. We are a wonderful group with loads and information and even more support. Hope you post often and welcome to the family.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
jessup
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Gemma - the tucker monster
« Reply #3 on: November 10, 2008, 11:47:42 AM »
G'day and  :welcomesign;
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monrein
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Might as well smile
« Reply #4 on: November 10, 2008, 03:20:14 PM »
 :welcomesign; to IHD.  Glad you found us and decided to become one of us here on this board.  Post often.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #5 on: November 10, 2008, 03:22:24 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
boxman55
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« Reply #6 on: November 10, 2008, 04:38:18 PM »
Welcome to IHD we are so glad you are here. How about a picture of Shadow

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Razman
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« Reply #7 on: November 10, 2008, 04:45:05 PM »
It's great that you joined and you seem so positive.  Please stay in touch.   :welcomesign;
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Rerun
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Going through life tied to a chair!
« Reply #8 on: November 10, 2008, 05:23:17 PM »
Hi Shadow's Mom.  Welcome to IHD.  I too had a wonderful 20 year career where I got to travel and meet lots of great people.  Now I to like to keep busy and do puzzles.......  Just shoot me!  I want my life back!!!  I hope you can be an inspiration to all of us as you continue to have a positive attitude.

                                          :welcomesign;
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mcjane
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« Reply #9 on: November 10, 2008, 06:40:54 PM »
Hello Shadow's Mom, good to see you here.
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Ang
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« Reply #10 on: November 11, 2008, 12:24:28 AM »
 :welcomesign;  shadows  mum
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live  life  to  the  full  and you won't  die  wondering
Normie
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Ellie
« Reply #11 on: November 11, 2008, 02:11:48 PM »
 :welcomesign; Shadows Mom.

Glad you joined us.  Just last night, I watched a show where this lady had Amyloidosis and it took the doctors six months to figure it out.

I am Mom to Ella and Sierra.  Ella Mae is an English Cocker Spaniel (in the picture). My hubby calls her Ellie hence the name under the pic.  Sierra is a Siberian Husky.  Black and white with blue eyes--beautiful dog and actually my son's dog, but we keep her.

Hope to see your posts.

Normie     :grouphug;
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Normie

Kidney damage 4/22/07

Predialysis
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #12 on: November 13, 2008, 07:06:26 AM »
Welcome to our community!  You are doubly welcome - as you can see, this site doesn't only contain people connected to the renal challenge; there is also a host of pet lovers!!  There is even a thread where you can post picts of your pet.  I am glad that you decided to join us.  You are going to find that this is a great place for information, and lots of support.  Any challenge you go through, there will be people who understand and who will be with you all the way.  In fact, we have become a bona fide family  :grouphug;   So please take advantage of all this site has to offer.  And keep posting!



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
iowakitkat
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« Reply #13 on: November 15, 2008, 02:15:14 PM »
Welcome, Shadow's Mom ... glad to have you aboard
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