Dialysis sucks

[southyard]

To everyone who has responded to me: i cant believe the warm welcome you all gave me in a matter of minutes....thank you for that. it is better to know i am not in this alone and have all of you to lean on.  im gonna get through this its just hard right now making this adjustment of all this time spent there. i want my life back and i havent even been on dialysis for two weeks! i dont know how you all do it over and over for years...i really have to hand it to you all...your much stronger than i am!!!

[annabanana]

 

[kellyt]

  Christine and Welcome!

That is so exciting to hear you're going to be getting a kidney from your Father in January!  When is the scheduled date?  We will want to hear all about it!

I was fortunate enough to receive a living donor from my sis-in-law on Nov 5th (pre-dialysis) and I was pushing the envelope!  I was literally just any day with starting.  My nephrologist had my name on the last available nocturnal chair since about July!!!  But that the Lord I was able to transplant and never do dialysis!  I feel great and I'm recovering right on schedule.  Still a little sore in the incision site, but that's okay.  I'm working that out.

PM or email me anytime!  I'd love to chat!  I'm so happy for your future!    And, of course, I hope your short course of dialysis gets 100% better and better!  We're here for you!!! 

[irv31]

Hi Chrisitne
 I'm about to sign up for a transplant as well, I live in New York as well, do you have any places to recomend going to, good luck, Irv

[christine029]

well my dialysis sessions were going better and they cut them down to 3hours which i like....i go tues thurs and sat...however, this past saturday when they were doing the standing blood pressure, when i stood up i broke out into a cold sweat, my vision got blurry and i completely passed out,,,luckily a nurse caught me and threw me back into the chair...from that point on i could hear but it was muted and it was like i was in another world so to speak. i heard the nurse yelling shes crashing shes crashing and they rushed to hook me back to the machine...i guess my blood pressure had dropped to 50/30 or maybe it was even lower,,,after they gave me something i felt better and slowly came out of it...this ever happen to anyone else? later they had figured out they had taken too much fluid off of me? is that so??


christine

[RichardMEL]

yes Christine this is all too common - or can be - if too much is taken. The BP will fall and you can crash - this is one of the main reasons they take a sitting then standing BP. I'd say they would have given you some saline quick into your system. If they felt it was that serious otherwise what they do in our unit is make a cup of tea or coffee or some other drink to up the fluids a bit.

And yes, they're right that most likely too much fluid had been taken off - this (crashing) is a common symptom of having too much fluid taken off and it totally sucks.

I can only advise you to keep track of your dry weight yourself(if you don't already) and confirm with yourself how much you should be taking off (as in your pre-dialysis weight take off your dry weight plus a washback - usually 0.5) and make sure they've set the machine to the right amount. Every so often I catch mine out setting it wrong, though these days I usually come in and tell them how much and we confirm it amongst outselves... mostly there is no problem

I'm sorry you had that experience - it sounds like a rather bad crash. You may have also put on some body weight and need your dry weight raised - specially if you notice this happening again....

 

[Wenchie58]

From one IHD newbie to another.  I am also a NYer. I had my transplant in October.  Where are you doing yours?  Best of luck!  Bless your Dad.  I spent 15 months on the list.