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Author Topic: Thank you for this site  (Read 4271 times)
Katey
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« on: November 08, 2008, 11:04:43 PM »
My name is Katrina (friends call me Katey and I am amongst friends), 37 yrs old and been on hdialysis for the 2nd time as of Aug 2008.  I was diagnosed with medullary cystic disease in 1985 after a traumatic fall from a horse.  I first went on capd in 1997 then had awful bouts of peritonitis causing me to go on hemodialysis.  I received a cadaver
kidney on October 31, 1999 (yep great Halloween present)  The docs are unsure why my kidney decided to fail except for normal causes??? so I am now back
on hemodialysis 3x a week for 4 hrs each session.

My nurse practitioner told me about this site and I thank her for it.  This site, testimonies and facts have been such a welcoming thing to me!!!

Thank you all for your honesty and sincerity!

Katrina AKA Katey
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Diagnosed July 1985
Started CAPD 1995
Changed to Hemo 1996
Cadaver Transplant 1999
Back on Hemo Aug 2008
Found this wonderful site Nov 2008!!
Lucinda
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Life is great!
« Reply #1 on: November 08, 2008, 11:50:58 PM »
 :welcomesign; I am sure you will find everyone on this site a terrific support.  All the best and look forward to reading your posts. xx





EDITED: Fixed smiley error - Sluff/Admin
« Last Edit: November 08, 2008, 11:56:11 PM by Sluff » Logged
G-Ma
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« Reply #2 on: November 08, 2008, 11:53:50 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
idahospud
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« Reply #3 on: November 09, 2008, 01:09:14 AM »
:welcomesign; glad you found us  :grouphug; carol
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #4 on: November 09, 2008, 01:42:56 AM »
Welcome to our community, Katey!  You are not just among friends;  you are now part of the IHD family  :grouphug;  I am so glad that you found us.  This is a great place for information, support and even fun.  Please keep on reading, but also you must keep on posting.  Ask questions, answer some, share your HD experiences, good and bad.
Looking forward to hearing from you. :flower;



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
willieandwinnie
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« Reply #5 on: November 09, 2008, 04:26:23 AM »
:welcomesign; Katey. This is a great place for all kinds of information and support galore. Hope you post often.  :cuddle;
« Last Edit: November 09, 2008, 05:30:22 AM by willieandwinnie » Logged
"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #6 on: November 09, 2008, 05:00:47 AM »
 :welcomesign;  So glad to have you here Katey.  We can learn so much from one another.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
lola
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I can fly!!!
« Reply #7 on: November 09, 2008, 06:45:42 AM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
twirl
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« Reply #8 on: November 09, 2008, 06:53:12 AM »
we are twins - well sisters, anyways
my first day on dialysis was Halloween - three years ago
glad you are here
we are wonderful :sir ken;
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jessup
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Gemma - the tucker monster
« Reply #9 on: November 09, 2008, 12:05:12 PM »
  :waving; :waving; :waving;
:welcomesign;
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pelagia
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« Reply #10 on: November 09, 2008, 12:08:04 PM »
 :welcomesign; to IHD 
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Zach
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"Still crazy after all these years."
« Reply #11 on: November 09, 2008, 12:34:49 PM »
It's real good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Wallyz
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« Reply #12 on: November 09, 2008, 12:59:11 PM »
Welcome.
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boxman55
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« Reply #13 on: November 09, 2008, 03:16:19 PM »
Welcome Katey, Glad you are here. Please post often we look forward to getting to know you better

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Ang
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« Reply #14 on: November 09, 2008, 04:25:28 PM »
 :welcomesign;  Katey
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live  life  to  the  full  and you won't  die  wondering
RichardMEL
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« Reply #15 on: November 09, 2008, 07:12:05 PM »
G'day Katey/Katrina (both lovely names, but then again I am biased!) and great to have you with us. Not great that you're back on hemo after a transplant failure that's kinda sucky. Still, hopefully we can help make it a bit easier for you and a place to vent and share :) So... glad you found us and also glad some nurses are spreading the word!!!!

 :cuddle; :welcomesign;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Joe Paul
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« Reply #16 on: November 09, 2008, 11:46:23 PM »
Welcome Katey, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paul.karen
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« Reply #17 on: November 10, 2008, 09:10:36 AM »
 :waving;  katey

Nice to have you aboard.
many great people here for fun and real life issues.

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
paris
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« Reply #18 on: November 10, 2008, 11:55:57 AM »
 :welcomesign;   Katey, we are glad you are here.  We are also glad to hear that your nurse practitioner recommended IHD.  It is the best site on the internet for information.   And we are also the best place for support.  The members are very caring and helpful. I hope you post often and we learn more about your journey.   :grouphug;






paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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