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Author Topic: Hello  (Read 3904 times)
Aubrey
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I say, you fellows!
« on: November 10, 2008, 09:46:17 AM »
Hello. First, I might be over-lucky, or haven't done enough research, but dialysis has been ok for me so far (about 5 weeks). The worst thing is the liquid limitation - the main reason I joined is to find hints about how to deal with this, and also to read stuff from other kidney patients. I live in England, so the cost thing hasn't been a problem - I don't know how it works in the US, but from what I've read on here the cost of treatment sounds like a big problem.

Just reading a few people's experiences of dialysis on here, I think I have been very lucky, so far.

(PS Aubrey isn't my name. It is the name of one of our cats. I may put his picture as an avatar, if I can work out how to do it. Yay! Done it!)
« Last Edit: November 10, 2008, 09:51:29 AM by Aubrey » Logged
Rerun
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Going through life tied to a chair!
« Reply #1 on: November 10, 2008, 09:52:16 AM »
Aubrey!  Welcome to IHD.  Yes, I'd say you have been lucky that nothing has happened in the WHOLE 5 weeks you have been on dialysis.  I hope it continues.  Fluid restriction is hard.  Suck on ice chips or hard candy and just tell yourself "no".  Do you pee at all??  That helps.  Once you have no urine output what ever goes in..... stays in unless you workout and sweat.  Ask Zach about that.

                                                           :welcomesign;
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Joe Paul
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« Reply #2 on: November 10, 2008, 10:41:03 AM »
Welcome Aubrey, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paris
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« Reply #3 on: November 10, 2008, 11:41:29 AM »
 :welcomesign;  Aubrey,  I am glad you found this site while you are in the adjustment period of dialysis.   We have many members from England and it is always interesting to hear how each country deals with ESRD.   LOVE your cat's picture!  What a beauty!  There is so much information here, and even more support.  Please feel free to ask questions or share your experiences.  We are all here for each other.    :grouphug;





paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
jessup
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Gemma - the tucker monster
« Reply #4 on: November 10, 2008, 11:45:04 AM »
G'day  :waving;
 :welcomesign;
 :ausflag;
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monrein
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Might as well smile
« Reply #5 on: November 10, 2008, 03:31:34 PM »
 :welcomesign;  Aubrey, what a fine and handsome fellow you are, with all that nice white fur.  I'm glad your adjustment to dialysis so far has been relatively smooth and I'm equally glad that you decided to join us.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
boxman55
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« Reply #6 on: November 10, 2008, 04:28:24 PM »
Welcome Aubrey, there are a lot of cat lover's on this site so you will fit right in. Look forward to all your posts

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Razman
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« Reply #7 on: November 10, 2008, 04:36:41 PM »
It's great that you joined and I hope that you will  post often.  Your start on dialysis sounds great.  I hope that mine goes that well.  :canadaflag;
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RichardMEL
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« Reply #8 on: November 10, 2008, 04:38:01 PM »
G'day Aubrey... love the kitty :) meow.... looking forward to hearing more from you and hope the rest of your experiences with dialysis - however long that is - continue to be hassle free! :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
willieandwinnie
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« Reply #9 on: November 10, 2008, 04:44:14 PM »
:welcomesign; Aubrey. Beautiful kitty. We are a great group of folks with information and emotional support. Hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
mcjane
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« Reply #10 on: November 10, 2008, 06:35:42 PM »
Welcome to both Aubreys. Such a beautiful cat.
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Ang
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« Reply #11 on: November 11, 2008, 12:26:10 AM »
 :welcomesign;  aubrey
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live  life  to  the  full  and you won't  die  wondering
Aubrey
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I say, you fellows!
« Reply #12 on: November 11, 2008, 07:55:43 AM »
Thanks, everyone. The people at the hospital are trying to get me to set up the machine myself now, so I don't know how smooth my dialysis experience will continue to be. Still, we'll see.
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G-Ma
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« Reply #13 on: November 11, 2008, 08:05:29 AM »
Beautiful Aubrey........  :welcomesign; 

You will do great setting up your machine....I have gone back in center for several diff reasons but now I wish I could set up myself as well or find a place I could do my home hemo in center..that would be ideal I think.......ok I want to win the lottery and do that...set up a building that will have home hemo units for anyone that wants to use them and have helpers available..that is my dream so pray for me to win the lottery.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Normie
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Ellie
« Reply #14 on: November 11, 2008, 02:27:15 PM »
 :welcomesign;  Aubrey.

Glad you have joined us.  A lot of information here.  Great people here too.

I was born in London.  Actually Finchley.  Now I am in the USA, since I was four.  Maybe it is good that I am here.  I hear that if you are over 55 in England they won't give you dialysis.  Is that true?

Hope you post often.

Normie
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Normie

Kidney damage 4/22/07

Predialysis
Joe Paul
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« Reply #15 on: November 11, 2008, 11:23:55 PM »
Welcome Aubrey, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Aubrey
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I say, you fellows!
« Reply #16 on: November 12, 2008, 09:53:59 AM »
Quote from: Normie on November 11, 2008, 02:27:15 PM
:welcomesign;  Aubrey.

Glad you have joined us.  A lot of information here.  Great people here too.

I was born in London.  Actually Finchley.  Now I am in the USA, since I was four.  Maybe it is good that I am here.  I hear that if you are over 55 in England they won't give you dialysis.  Is that true?

Hope you post often.

Normie

I've seen plenty of people who look over 55 having dialysis where I go. I mean well over 55, as well.
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #17 on: November 13, 2008, 08:45:59 AM »
Welcome to our community, from one born under the Union Jack (born in Barbados and now living in the British Virgin Islands). Sorry the West Indies beat you at 20/20 cricket!!  I am glad that you found our website.  we already have a great group from the UK here.  I am glad, too, that your dialysis is going well.  I hope it continues that way.  Mine started okay, then got worse and now is quite good.  So please read, there is so much information here.  And keep posting.  You now are part of our caring and sharing IHD family. :grouphug;
Looking forward to hearing more from you.



Bajanne, Moderator
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I LOVE  my IHD family! :grouphug;
pelagia
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« Reply #18 on: November 14, 2008, 05:58:13 PM »
 :welcomesign;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Mimi
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For any who do not like me I use - prayer.
« Reply #19 on: November 14, 2008, 08:53:08 PM »
Welcome Aubrey!




Mimi
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it is putting out the lamp because the dawn has come.
iowakitkat
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« Reply #20 on: November 15, 2008, 01:51:08 PM »
Welcome to IHD, Aubrey
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