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VeloTypo
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« on: October 24, 2008, 07:47:08 AM »
Well I have been on Dialysis for almost a year. It started last October (2007) with me feeling sick, having acky joints, and being tired, etc., things just kept getting worse and I finaly went to the doc and the blood tests came back with acute renal failure, by the end of November I end up in the hosp. for 22 days, with a diagnosis of Wageners or Anca associated vasculitus (What the hell is that?)

So, now I do dialysis MWF, I am now sticking myself via a fistula, I had to fight high blood pressure for months until they found the right drug to bring it down (lots of bad headaches) now I am working on getting on the transplant list and maybe doing Home Hemodialysis (If I can find the time/energy to get trained while working full time)

I love the website, the name of it brought me in, that is just how I feel, I know that dialysis is keeping me alive but I HATE it at the same time.
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xtrememoosetrax
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« Reply #1 on: October 24, 2008, 08:00:15 AM »
 :welcomesign; velotype. 
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
willieandwinnie
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« Reply #2 on: October 24, 2008, 08:05:39 AM »
:welcomesign; VeloTypo. You landed in the perfect web site for information and support. We are a great group and hope to hear lots from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
devon
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« Reply #3 on: October 24, 2008, 08:44:27 AM »
Welcome!  Looks like you came to the right place!

-Devon
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Razman
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« Reply #4 on: October 24, 2008, 09:09:43 AM »
It's great that you joined.  Please stay in touch.  You you ever off work for a few weeks or did you just keep working ?
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paul.karen
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« Reply #5 on: October 24, 2008, 09:11:42 AM »
 :waving; :welcomesign;

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
paris
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« Reply #6 on: October 24, 2008, 10:18:28 AM »
 :welcomesign;  We are glad you joined this great site.  As you can tell, it is full of information, but there is even more support.  It helps to be with people who truly understand what you are going through.    We look forward to reading more posts from you.   :2thumbsup;






paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
VeloTypo
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« Reply #7 on: October 24, 2008, 11:50:22 AM »
Quote from: Razman on October 24, 2008, 09:09:43 AM
It's great that you joined.  Please stay in touch.  You you ever off work for a few weeks or did you just keep working ?
I was obviously off while in the hosp. but then went back and for a month or 2 worked about half days. Now I work about 7 hours on dialysis days and extra on non-dialysis days to make up for the other days. (Does that make sense?)
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monrein
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Might as well smile
« Reply #8 on: October 24, 2008, 12:58:24 PM »
 :welcomesign;.  First off, I'm curious about your name?  Is it anything to do with the French word vélo for bicycle and a corruption of the French word type for guy...so bicycle guy??? 

Second of all, congratulations on sticking yourself.  Just that little bit of control we can take back.  I love not having to wait for a nurse to put me on or take me off  plus you're that much more ready for home hemo if you want to try that.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Zach
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"Still crazy after all these years."
« Reply #9 on: October 24, 2008, 01:07:35 PM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Joe Paul
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« Reply #10 on: October 24, 2008, 02:17:39 PM »
Welcome VeloTypo, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #11 on: October 24, 2008, 03:52:19 PM »
Welcome to our community!  I was wondering about that name as well.  I thought maybe you are a speed-typer!   You found a great place for anyone facing this renal challenge.  There is lots of information here, and support and fun as well.  Keep posting and let us know how you are doing.
You have found another family here.  :grouphug;
Looking forward to hearing more from yoiu.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
jwaynebo
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« Reply #12 on: October 24, 2008, 04:31:43 PM »
 :welcomesign; VeloTypo
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Peace,

Jeffrey

"I'm pullin' for ya, We're all in this together." - Red Green
Ang
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« Reply #13 on: October 24, 2008, 08:47:14 PM »
 :welcomesign;VT
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live  life  to  the  full  and you won't  die  wondering
G-Ma
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« Reply #14 on: October 24, 2008, 09:35:28 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
pelagia
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« Reply #15 on: October 25, 2008, 03:37:22 PM »
 :welcomesign; to IHD.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
jessup
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Gemma - the tucker monster
« Reply #16 on: October 25, 2008, 09:20:34 PM »
 :welcomesign; :welcomesign; :welcomesign;
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VeloTypo
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« Reply #17 on: October 29, 2008, 07:08:10 AM »
Quote from: monrein on October 24, 2008, 12:58:24 PM
:welcomesign;.  First off, I'm curious about your name?  Is it anything to do with the French word vélo for bicycle and a corruption of the French word type for guy...so bicycle guy??? 

Second of all, congratulations on sticking yourself.  Just that little bit of control we can take back.  I love not having to wait for a nurse to put me on or take me off  plus you're that much more ready for home hemo if you want to try that.

The name is a mix, Velo is for bicycle (I used to race) Typo is for typographical error (I am a typographer), I did not know the french word for guy is typo, I think that is pretty cool!!!
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monrein
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Might as well smile
« Reply #18 on: October 29, 2008, 09:30:47 AM »
Actually the French for guy is "type" but I thought maybe you'd deformed it to rhyme.  Thanks for the explanation VT.  Hope you're doing OK these days.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #19 on: October 29, 2008, 01:43:03 PM »
 :welcomesign;
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