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Author Topic: Mysupport group  (Read 2850 times)
keith
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« on: October 16, 2008, 07:12:41 AM »

I would like to let everyone know bout the kidney walk that my support group has got started we got approved.That is why i have not been on line in a while.I am also helpping a young man that has no where to stay, he is a migrant worker he is staying in a camp wit no heat or electric,and no food. So I'm taking him around trying to get his paper work rite. Now just imagine startong dialysis witout any family,friends or a place to stay.I guess this  is why i started this group to help others
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Life ain't Life wit out Me!!! U Heard Me  
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
NOW RUN-Tel-Dat
paris
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« Reply #1 on: October 16, 2008, 09:39:56 AM »

Thank you, Keith, for helping this man.  I can't imagine kidney failure alone, with no safe place to lay his head.  Please let us know how he does.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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Might as well smile

« Reply #2 on: October 16, 2008, 09:49:35 AM »

Good for you Keith.  I wish you the best of luck in all your efforts to help other patients.  I'm sure your involvement means a lot to this young man and it feels good to help others when we can.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
boxman55
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« Reply #3 on: October 16, 2008, 04:01:18 PM »

thanks Keith for letting us know what you have been up too. Also you are a saint...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
G-Ma
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« Reply #4 on: October 16, 2008, 05:21:00 PM »

 :grouphug; to you keith...how wonderful for that young man and others.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
keith
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« Reply #5 on: October 20, 2008, 07:02:26 AM »

Update. The man in question now has a roof over his head it's not much but at least he won't be out in the cold.The members of my support group came through in a great way, he has an electric heater ,a small fridge,an something to cook on. i was able to get him like over 400 dollars he has sent off for his birth cert. SS. card. Now he's wait for those things so that he can open a bank account and try and get on the best he can for now and he also is coming over every now and then just to talk.
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Life ain't Life wit out Me!!! U Heard Me  
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
NOW RUN-Tel-Dat
willieandwinnie
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« Reply #6 on: October 20, 2008, 08:06:12 AM »

 :flower; keith, bless your heart.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
peleroja
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I have 16 hats, all the same style!

« Reply #7 on: October 20, 2008, 09:36:59 AM »

Kudos to you, Keith.  The need for more renal support groups is great.  That's why when AAKP disbanded all their chapters my friend and I formed a partnership called The Kidney Beings (so we could accept checks), in order to keep our support group going.  This board is a great support group for those who don't have a kidney community support group they can attend in person.
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paris
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« Reply #8 on: October 20, 2008, 04:47:13 PM »

Keith,  You are very special. Thanks for making a difference in this man's life.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sunny
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Sunny

« Reply #9 on: October 20, 2008, 05:05:18 PM »

You are doing a wonderful thing. I admire your ability to get things done. Hope all continues to go well with your support group.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Sluff
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« Reply #10 on: October 20, 2008, 06:18:13 PM »

Good Job Keith.
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keith
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« Reply #11 on: October 21, 2008, 08:07:27 PM »

Thanks to everyone. But i have some bad news the young man in question had to be taking to the hospital today right after his treatment. The doctors think that it's his liver failing. I was up at the hospital with him, i had to take him because he didn't want to go by him self so i took him to the ER, and sat with him until maybe an hour ago. They admitted him i told me thank you and to go home and if i could come back tomorrow and just sit with him and i of course said yes.I never in my life time thought that i would ever see anyone go through so much and still manage a smile. This is something that i can't do and yet i find myself to the point that I'm ready to cry cause i know that this man is going to pass in afew months and the fact that he is @ peace with this and is basically looking death in the face with a smile and not worried about it.He gave me his brothers name and possible number that is in North Carolina, i've been trying since i got the number.He hasn't talked to this brother in over 12years.I just thought that i would update everyone
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Life ain't Life wit out Me!!! U Heard Me  
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
NOW RUN-Tel-Dat
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #12 on: October 22, 2008, 12:10:24 AM »

I can just imagine the comfort you are to him - to have someone with you who cares enough to stay with you at a time like this.  I am sure it is your care and concern that is helping him to smile.  You just keep on keeping on.  You are doing a great job.  :cuddle;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
G-Ma
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« Reply #13 on: October 22, 2008, 11:26:32 AM »

You are a wonderful support.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
twirl
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« Reply #14 on: October 23, 2008, 04:21:06 AM »

Keith
you are a hero and I am damn proud to know you
that person will die in peace and comfort due to you
what else better could you give a person than peace of mind
you are like so cool
( spirit of Marley)
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rose1999
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« Reply #15 on: October 26, 2008, 03:14:45 AM »

The world needs more people like you Keith  :cuddle;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #16 on: October 26, 2008, 10:55:44 AM »


 :cuddle; Keith
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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