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Author Topic: I got my meds list  (Read 2226 times)
draven
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« on: October 21, 2008, 08:33:44 AM »

hi guys

just got a letter from my doc listing what meds he wants me on

Predisone 5mg

Tacrolimus 5mg

MMF BD

Do you guys know what some of the side effects are ?

What can i expect?


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Romona
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« Reply #1 on: October 21, 2008, 01:17:57 PM »

I don't know the Predisone side effects.

Prograf has a lot of side effects. I have had tremors, weight gain, irritability, constipation, headaches, muscle pain, vivid dreams and nightmares, sleep problems ,and high blood pressure. Taking Prograf has damaged my transplanted kidneys, I lose phosphorous and bi-carb and take supplements.

At times it can be annoying and frustrating. But it is not all gloom and doom. As my nephorlogist told me,"Miracle drugs keep you alive, but they are damaging to your body". If you go to drugs.com and read the information for consumers first, then for professionals you will learn a lot about the drugs. Good Luck! I hope your side effects are few.
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pelagia
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« Reply #2 on: October 21, 2008, 08:19:43 PM »

It can be really different for different people.  My husband has had few problems with the drugs.  They did have to cut back on his Cellcept at about month 3 because his white blood cell count was going down.  They are talking about cutting down his prednisone to 5 mg a day soon.  He is still gaining weight and has a bit of moon face as side effects of the prednisone.  He also had to begin taking a low dose of a statin to lower his cholesterol, which tends to go up as a side effect of the immunosupressives.  He has not had any problems with his blood sugar or any other blood chemistry other than being slightly anemic.

If you go to the home page for forums and use the search feature you will find information on most of the drugs..
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Chris
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« Reply #3 on: October 21, 2008, 10:03:02 PM »

I'm only on CellCept and Prograf. The side effect I have from Prograf is tremors which aren't so bad unless my level is up and more noticable when I'm sick. I don't have the weight gain, phosphorus and bi-carb loss or hair loss associated with Prograf. CellCept on the other hand when first taken can give you diarrhea, but as the dose is lowered it went away. Some people can tolerate CellCept and some cannot. I never was on Prednisone, so I don't know what to expect from that.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
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« Reply #4 on: October 28, 2008, 12:45:16 PM »


There is a good discussion here -  Transplant Recipients: What side effects do you have from transplant meds? http://ihatedialysis.com/forum/index.php?topic=4933.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
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