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Author Topic: What are good web sites for potential donors?  (Read 2983 times)
kidney4traci
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« on: October 28, 2008, 09:15:44 AM »
I can't believe it, but I finally have found a match!!!   :bandance; :bandance; But now she has a lot of questions.  I am sure someone here would have some sites that offer potential donors with good information.  All help appreciated!!




Edited: Fixed spelling error in subject line - okarol/admin
« Last Edit: October 28, 2008, 10:18:02 AM by okarol » Logged
Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: October 28, 2008, 09:50:38 AM »

I PM'd you but there's a great site with lots of info: Living Donors Online http://www.livingdonorsonline.org and they have a message forum where you can post comments and questions for other donors.

I know other people have used Transplant Buddies http://www.transplantbuddies.org but I have only visited there a few times.
« Last Edit: October 28, 2008, 10:18:17 AM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #2 on: October 28, 2008, 10:16:45 AM »
Send a PM to xtrememoosetrax.  She will be glad to share her donation experience and answer questions!     Congratulations on a match!!  That is very exciting.  :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kidney4traci
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« Reply #3 on: October 28, 2008, 10:27:12 AM »
Thanks for your help and well wishes!!!!!!!!!!!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Lori1851
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This is me Lori , Dustin's mom
« Reply #4 on: October 28, 2008, 11:37:38 AM »
Go to www.kidney.org this is a good web site for questions on donation and kidney related articles.
Hope this helps ;)

Lori/Indiana
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xtrememoosetrax
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« Reply #5 on: October 28, 2008, 11:44:20 AM »
Quote from: paris on October 28, 2008, 10:16:45 AM
Send a PM to xtrememoosetrax.  She will be glad to share her donation experience and answer questions!     Congratulations on a match!!  That is very exciting.  :2thumbsup;
Indeed, I would be happy to talk to you or your friend and tell you what I know.  Please feel free to send me a PM.
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
Sunny
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Sunny
« Reply #6 on: October 28, 2008, 12:57:13 PM »
Glad to hear you have a match. Good news for you.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
kidney4traci
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« Reply #7 on: October 28, 2008, 05:30:02 PM »
Thanks again!  I jsut pray she agrees.  She called yesterday when she got the news and we were both shocked.  I have had about 10 people try and no matches thus far, so when she called I was ready for her to say sorry, but... 

Wow!   :cheer:
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
pelagia
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« Reply #8 on: October 28, 2008, 05:37:16 PM »
GREAT NEWS  :flower;

I bet my brother in law would be happy to talk to her too.  He wanted to get involved in some way that would help increase donation, but still has dial-up so he doesn't spend a whole lot of time online.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kidney4traci
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« Reply #9 on: October 28, 2008, 05:39:29 PM »
Thanks - if he wants to just pm me his phone# and I will let her know.  Donors rock!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
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