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Author Topic: Hello There  (Read 3240 times)
P8tience
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~Hubby's Support Bra~ Ha Ha~

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« on: October 18, 2008, 04:06:50 PM »
Hi My name is Patience (really no lie)  and i am the wife of a dialysis patient.  He is also a member here but sometimes you need your own space to rant or ask questions ya know?  This whole thing has been a nightmare for both of us.  It was unexpected for him, but really when is it expected?  He didnt have diabeties, I do!  He was and still tries to be the typical macho male.  its been a very wierd road.  My dad died in 2006 so we moved in to take care of my mother.  Then Ron started having small heart attacks, ... we moved out and up to Oregon, then he really went bonkers with more heart attacks uncontroled high blood pressure and a nervous breakdown that seemd to be a stroke!! then my grandmother died during al this,I went to the funeral and came back to a dialysis patient!  Man is God a joker or what?  Oh theres more but this is about dialysis and stuff so i will just leave it at that. I have lots of questions and some may be a bit odd but i bet ya money others have wanted to know but affraid to ask :yahoo; So to all I say hello :bunny:
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Caregiver to My husband, In-center Hemo 2007
Rerun
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Going through life tied to a chair!
« Reply #1 on: October 18, 2008, 04:10:18 PM »
You were named approately!  You will need lots of Patients to be the spouse of a blood sucking dialysis patient.  Welcome to IHD and I hope we can help.

Do not ask me any SEX questions because I would not know!    :waving;
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Joe Paul
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« Reply #2 on: October 18, 2008, 04:30:19 PM »
Welcome Patience, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
monrein
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Might as well smile
« Reply #3 on: October 18, 2008, 04:39:38 PM »
Welcome Patience.  Glad you decided to join for yourself.  Ask any and all questions and I'm sure several people will chime in.   :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jessup
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Gemma - the tucker monster
« Reply #4 on: October 18, 2008, 05:02:52 PM »

 :welcomesign;
 :pics; :pics; :pics;
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cookie2008
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« Reply #5 on: October 18, 2008, 07:05:27 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
G-Ma
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« Reply #6 on: October 18, 2008, 07:13:44 PM »
Welcome Patience..so glad you are here.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
southyard
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« Reply #7 on: October 18, 2008, 08:26:59 PM »
Quote from: P8tience on October 18, 2008, 04:06:50 PM
Hi My name is Patience (really no lie)  and i am the wife of a dialysis patient.  He is also a member here but sometimes you need your own space to rant or ask questions ya know?  This whole thing has been a nightmare for both of us.  It was unexpected for him, but really when is it expected?  He didnt have diabeties, I do!  He was and still tries to be the typical macho male.  its been a very wierd road.  My dad died in 2006 so we moved in to take care of my mother.  Then Ron started having small heart attacks, ... we moved out and up to Oregon, then he really went bonkers with more heart attacks uncontroled high blood pressure and a nervous breakdown that seemd to be a stroke!! then my grandmother died during al this,I went to the funeral and came back to a dialysis patient!  Man is God a joker or what?  Oh theres more but this is about dialysis and stuff so i will just leave it at that. I have lots of questions and some may be a bit odd but i bet ya money others have wanted to know but affraid to ask :yahoo; So to all I say hello :bunny:
Hi Patience; First  gal wor me named that.  Take care of the old guy  he needs you
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willieandwinnie
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« Reply #8 on: October 19, 2008, 05:05:37 AM »
:welcomesign; Patience. Another caregiver  :clap; to join the group. We have bunches of information and even more support to offer. Good to have you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
jwaynebo
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« Reply #9 on: October 19, 2008, 07:36:36 AM »
Welcome from another newbie.
As Red Green says, "We're all in this together. I'm pullin' for ya." :welcomesign;
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Peace,

Jeffrey

"I'm pullin' for ya, We're all in this together." - Red Green
Romona
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« Reply #10 on: October 19, 2008, 02:45:35 PM »
 :welcomesign;
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pelagia
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« Reply #11 on: October 19, 2008, 06:14:40 PM »
Welcome to IHD.  This crowd seems to be able to handle almost any question, so ask away.  :welcomesign;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
boxman55
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« Reply #12 on: October 19, 2008, 08:15:37 PM »
welcome to IHD. posts as often as you like. we are ready to take on your questions

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Sluff
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« Reply #13 on: October 20, 2008, 07:25:42 PM »
Welcome P8tience to ihatedialysis.com,

Cool way to spell your name, very unique.  Sounds like life is throwing rocks at your family lately. Fight back with boulders(LOVE) and you can't go wrong. I'm glad you found us because there is a ton of helpful information here. If you need any help or have any questions, you will get straight answers from anyone here. The one thing that binds us all together is ESRD. See you in the forums.

Sluff/Admin
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Ang
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« Reply #14 on: October 21, 2008, 04:07:21 PM »
 :welcomesign;  patience
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live  life  to  the  full  and you won't  die  wondering
paris
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« Reply #15 on: October 23, 2008, 11:43:21 AM »
Welcome, Patience.  Wow! The two of you have been through hell.    I am glad you decided to join us.  Caregivers need support and understanding also.  And hearing from others going through kidney failure may help you, too.   I think everyone is lined up and ready for your questions!  :2thumbsup;    Looking forward to more of your posts.  Glad you are part of our family. :grouphug;






paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
paul.karen
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« Reply #16 on: October 23, 2008, 11:49:13 AM »
 :welcomesign;

Im also a newbie and i have learned TONS of good info here.
And like you :-)  karen also needs her own space and seperate name here.  She lurks but has yet to introduce herself so i best have a  :secret; with her.

Great to meet you.

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Zach
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"Still crazy after all these years."
« Reply #17 on: October 23, 2008, 11:49:21 AM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
annabanana
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« Reply #18 on: October 23, 2008, 12:00:07 PM »
 :welcomesign;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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